MY SKIN COULD KILL ME 8PM ITV

[misdee]

looks interesting.


Real Families: My Skin Could Kill Me
Documentary about two pairs of teenage sisters with an incurable and potentially fatal genetic condition known as Harlequin ichthyosis, which causes them to grow too much skin. To stop it cracking and becoming infected, they must constantly scrub off the top layers. All four girls have provided DNA in the hope that a cure may one day be found, and discuss their constant struggle to lead normal lives

[spooklymieow]

I am sure I read that one of the families come from our town Misdee..

[misdee]

think they live in herts.

[bigdonna]

just watched it.It had me crying and thanking god for what i have.Will talk about it tomorrow to my ds and dd.

[mamadadawahwah]

How incredibly brave those girls were and the nicest wee girls too, all of them. I pray to God that they get some help and that money comes rolling in for research for a new skin treatment.

[misdee]

i thought the difference in what SS offered was appauling. one family got respite, one didnt. shows what a difference in makes in where you live.