The hospital paed has said she has reasonable tone in her lower limbs,but extremely hypermobile joints,so the thinking is that the delayed speech is due to her jaw suffering with severe hypermobility too.The paed said many of us could show up as had having a small bleed,if we were MRI'd,they are caused by lack of oxygen to the brain,which could have happened at any time from conception to birth(but dd2's birth & my pregnancy were fine,no probs).

I usually just glance back & shake my head...

Although i did feel awful the other day, I caught myself staring at a young boy, with the same w/chair as ds2. Not sure why i was looking other than his w/chair was much cleaner, thing is the mum didn't know I ahve a disabled ds at home, she obviously thought I was some sort of nutter.
She was too far away for me to discretely explain without me chasing them like a stalker.

Ah I asked about chromosomal abnormalities cos I know Ehlers-Danlos syndrome and Marfan syndrome cause hypermobility.

Does she have hypotonia because I know that can affect speech.

What do they think the small bleed is due to?

Hi nappy addict,MRI was clear except there was a small bleed of 5mm,which the paed said would not contribute to her probs.Yep,had chromosomal bloods,they were clear.She goes for regular hearing tests & they are clear.She is a right puzzle!!!Comm paed seems to think if she has intensive help at special needs school for the next 2 years she shpuld be ready for MS school at 4.Not sure if she has hypermobility syndrome,but she is too young to dx yet.

THAT ZAZZLE IS GREAT SITE THANKS HAD NEVER heard of them

oh thanks will have a look is it something i should do or like my husband says it could draw more attention to her.

we were in an airport one year late at night and she was screeching and people staring i got so angry and just shouted all over the place get your cameras out and take a picture !!!

You can get them from cafepress and zazzle as well.

i have had this same conversation with my dh recently and sometimes its cracks me up

recently mum mum had my autistic child out (5) they were at a craft event and when it was time to go she freaked as she loves art so much.

anyway this woman just tutted at her as she lay on the ground and had her meltdown, my mum who is so protective just turned and said no my granddaughter is not being naughty she has autism !!

and the woman apologised

anyway we are going to euro disney soon and i dont want people staring and pushing so i seen hoodys on ebay saying i love my daughter with autism maybe if i wear this they will back off !!

it mite just save me getting so angry
x

Love the smile and wave tip. Deffo going to try that!

Me and dh have perfected a great passive aggressive technique which is to say to DS, very loudly, something along the lines of 'shhhh, that lady over there is getting very upset with you, look at her cross face!'. It's a great way of saying 'what the ** are you looking at?!' without having to say it to their face always makes me feel better as well.

Oh also has she had a CT scan or hearing test?