Hi,
I am getting frustrated with lack of progress from the NHS on DS's therapies / treatments.
He has glue ear in both ears, profound deafness in one ear, the other ear is compromised, and we were told today that the wait on the NHS for grommets is "endless".
I have received a letter from Portage, but we are on the waiting list. He is no. 7, but they said that is meaningless as it depends on their caseload - might hear back from them in a "few weeks".
There is no PT in our CDT (the one I met is from overseas and she apparently has a "better job").
All OT seems to want to do is get him a special bath seat and play seat (well, at least the younger one does, the more experienced one this week did say he sits too well independently for a Ladybird, Giraffe, or Busy Bee. She thinks he might benefit from a low floor table though, and I agree with that).
SALT so far has comprised one home visit where they assessed his eating and drinking, which they said was better than how I described. They can offer one one to one session each two months, or one group session once a month.
He will be reviewed again by the CDT dev ped in six months from his original assessment, which was the end of September. Oh and if he doesn't respond to therapy, which they will provide only in one area at a time, rather than increase the frequency they will reduce it.
We took our concerns to the Health Visitor in June, and he had his assessment in September. I think we will be lucky to get Portage, etc, before Christmas. Each day he is getting further behind, and I am getting frustrated!
Anybody else find that NHS therapies are virtually non-existant? I hear on here about the very young babies who have been dxed with Downs or CP (or whatever) and how great the NHS therapies have been, but I am not seeing it ("all" DS2 has is development delays, comprised vision and hearing and mobility problems, but no definite dx).
Yes I am a bit fed up and feeling a bit hopeless!
Thanks if you read this far...
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How long did you have to wait for all your DC's therapies to kick in?
14 replies
mm22bys · 02/11/2007 15:33
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