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Advice needed for Dd's behaviour, please

7 replies

deepbreath · 12/09/2007 17:15

My dd is 4, and has a genetic condition.

There is some doubt over whether this can affect behaviour or not, but I am finding her such hard work atm... I caught her earlier deliberately tipping her drink all over the carpet. The kind of thing that a baby might do.

I asked why she'd done it, and she said she "didn't know". She wasn't sorry either. A couple of hours later, and she'd tipped orange juice all over the sofa. A whole carton's worth.

She started school on Monday, and stood there and wet her pants immediately after telling the teacher that she didn't need to go (teacher had noticed her jigging about, and asked if she needed the loo). She then had to be told that she'd had an accident

I just don't like where this is going... it will be hard enough for her with her physical problems without having additional stuff thrown in for good measure.

Anyone got any ideas? The last time I approached the health visitor for advice on behaviour, I was treated like an idiot...

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electra · 12/09/2007 17:18

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Twiglett · 12/09/2007 17:21

oh god this is a tough one

its tough because all the behaviour you have described could just be associated with the change of starting school. That is to say that it could be NT behaviour.

I have known NT children, mine included do the purposeful juice tipping up. I have known an NT 6 year old use weeing to get attention also

BUT you know your child best, if you do think there may be an issue then maybe it would be best to get an assesment. Does she have ongoing consultant involved with the physical aspects of her SN

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Twiglett · 12/09/2007 17:22

oh and HVs tend to not be the best primary source of help for anything to do with children IMVHO

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deepbreath · 12/09/2007 17:26

Hi electra, thanks for the fast reply.

No, she hasn't got a statement. There is no more support in class for her than anyone else. Would it be out of order for me to ask to speak to the SENCO at the school for some input so early in the year?

She suffers from palpitations because of a heart condition, and the anxiety that she gets because of this doesn't help things.

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deepbreath · 12/09/2007 17:30

Hi Twiglett, thanks. I can see where you're coming from. It doesn't help that my ds is only 11 months older. He hasn't got the genetic condition, and it is very hard to ignore the differences between the 2 of them as they get older.

I don't know if I'm just being extra paranoid because of her other problems iyswim?

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electra · 12/09/2007 17:35

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deepbreath · 12/09/2007 17:56

Thanks electra, I will speak to her teacher in the morning to see what she says. I trust her judgement as she taught my ds last year.

The condition that my daughter has got makes her tired. Adults with this have described to me how exhausting the simplest activity can be.

She has hypermobile joints, her sight is deteriorating (on 3 monthly sight checks), and her heart will start racing for no reason. She is seeing 3 consultants for the heart, eyes and joints.

I think that she will need help in class as she gets older, but I was hoping that she'd be OK for this year.

Maybe it is just extreme tiredness coupled with being somewhere new. Something just doesn't "feel" right.

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