Petition to increase funding for congenital research

[mumofeight]

Some thing has been bugging me for a long while now, we see children being born every day in this country with congenital conditions, and have no idea why they occur. What research is done, is financed by charities. Why ? Surely in the 21st century the government can find the money to help perform the research. Surely if research can find reasons for cot death and spina bifida then research can find the cause of all congenital conditions, and find ways to prevent the conditions without the parents being asked if they wish to terminate.

I love my daughter to pieces, and would not have missed out on having her for anything, but yes I do wish she hadn't got her condition.

So far this year, in my little heart babies world I have seen six babies die, SIX. One was just 8 months old and had spent his whole life in hospital. It breaks me in to pieces to know that somewhere there is an answer, somewhere theres a reason for these conditions, and if its preventable, like preventing spina bifida by taking folic acid ( though I understand that not all cases of Spina bifida are prevented this way) surely its got to be a good thing ?

Anyway, I have started a petition on the prime ministers website, asking that the government gets its wallet out and starts to fund research into the causes and therefore the prevention of all congenital conditions.

If you would like to add your name to the petition please go \link{ petitions.pm.gov.uk/congenitalhelp\here}

Many thanks xxx

Sorry had to repeat the thread as forgot to put a title !!

[mumofeight]

Trying again !!

here

[MaryHinge]

Re done your link mumofeight

here

[MaryHinge]

Oh you beat me to it - and I've just realised I know you.

[mumofeight]

oooh heck Mary where from

[MaryHinge]

Oh nowhere embarrassing

This isn't my usual name here. I'm usually saggarmakersbottomknocker but I'm having a problem changing back I might be stuck with this for life lol.

You'd recognise dd from my profile.

[mumofeight]

Hehehe oooh now I know lol Helllooooooooo

[mumofeight]

Bumping any more signatures ??

[tomkat]

Yep, I've signed

My 4 y.o. dd, and dh have got a genetic condition called Marfan Syndrome. Ds (age 5) didn't inherit it.

Dh's was a spontaneous genetic mutation, and it's only thanks to recent medical advances/luck that he is alive now... my MIL was told when dh was a teenager (upon diagnosis) that he might not live past the age of 30, and he is now 38.

I agree with what mumofeight said. I wouldn't have missed out on having my dd either. I just didn't know that there was a chance that she would be more affected by this condition, and at a much younger age than dh

[kreamkrackers]

done.

thanks for putting this on mn

[kreamkrackers]

bump