I have Ehlers Danlos Syndrome. A number of people in my family over several generations have also had similar almost identical traits but this was before EDS was really recognised.
I really worry that my little boy will have EDS as well. We have a pediatrician until he's one or two after being in NICU for two months but she doesn't think there will be any sign of EDS until he's about 7.
I am a first time mum and I wondered how flexible babies are meant to be I know we were told he's meant to be bendy. But how bendy is too bendy?
Thanks for reading x
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3 replies
LittleTalia · 30/08/2014 18:03
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