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SN children

getting worried about DLA / PIP

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thriftychicken · 01/08/2014 16:50

I have been getting DLA for ds2 for the last 2 years , he has Aspergers . He will be 16 in February so if i understand correctly he will need to apply for PIP instead.
Ds2 has never accepted his diagnosis and mentioning it has always been a big mistake , so much so that we rarely do these days . He has no idea that i get DLA for him . I mostly use it to fund his expensive hobby which benefits him enormously , keeps him calm and not so depressed .
When he leaves school next may , he says he wants to work in a shop . I am really hoping he can manage this , that this will happen but i just don't know . He seems to think that if he can't find a job he likes he will just stay at home while we support him as he won't go to work if he doesnt like it .
He is very high functioning , tbh if you met him you probably wouldnt spot a problem .
I am worried that (a)if he gets pip he wont bother going to work at all anyway he will use his AS as a reason to not even bother

(b) He will spend the money the minute he gets it and then look to us for more .
(c) He may not get it anyway as he will probably look fine and tell them when they visit him that he is fine
(d) If i sit there telling them how he is at his worst ds2 will be badly affected and hate himself (as he does often)

sorry if this doesnt make much sense but i haven't been working due to needing to be around for ds2 and i am also not in good health now with the stress etc dh has been the breadwinner . the dla has been a lifesaver and i have no idea what is going to happen when ds leaves school , its worrying .
what do you think would be my best thing to do ?

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