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Diagnosis of Aspergers for DS last wk..

10 replies

earthtomummy · 29/08/2006 16:35

which I expected, but still I felt v. upset hearing the paed. say that was her opinion too. I suppose there's some relief in knowing what is going on, but a lot of sadness too. It seems ok at times, until I start to imagine what the future might hold for him as he gets older and his behaviour seems more noticeable. Can't really register what's happening.

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desperateSCOUSEwife · 29/08/2006 16:38

not very comforting to hear
but at least you have the news now
and you can now build on it
and give him all the help and attention he needs
hugs
xxx

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dinosaur · 29/08/2006 16:41

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

chocolatemummy · 29/08/2006 16:48

just wanted to say that I recently left a job as manager of a day service for young adults with ASD, We had several ends of the spectrum there but all of them were very kind, pleasant individuals and Aspergers sufferers often do very well as long as they have support and people who believe in them. There is a future for them depending on. Obviously its all very well me saying this but honesty it could be alot worse!

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Davros · 29/08/2006 20:23

earthtomummy, sorry you are sad. It is better to know but it hurts.

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coppertop · 29/08/2006 20:37

I agree with dinosaur. It's horrible even when it's something you've been expecting.

(The dx - not the agreeing with dinosaur!)

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earthtomummy · 29/08/2006 20:49

Thankyou everyone for your support. It's a bit of a weird time really. I sort of register what is being said and think I'm ok and taking it all in and handling it really well. But when i really, truly stop to think about it i just seem to crumple. I suppose that will improve quickly! Friends are being nice but it is impossible to convey how i feel at the moment. Things like planning another baby have suddenly got a whole new complexion thrown upon them. we will but the padiatrician gave me some stats about the likelihood of this repeating with another child. I've never approached a pregnancy with the thought like this.Sorry to be so self-pitying - give me a day or two and I'll be better!

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earthtomummy · 29/08/2006 20:49

Thankyou everyone for your support. It's a bit of a weird time really. I sort of register what is being said and think I'm ok and taking it all in and handling it really well. But when i really, truly stop to think about it i just seem to crumple. I suppose that will improve quickly! Friends are being nice but it is impossible to convey how i feel at the moment. Things like planning another baby have suddenly got a whole new complexion thrown upon them. we will but the padiatrician gave me some stats about the likelihood of this repeating with another child. I've never approached a pregnancy with the thought like this.Sorry to be so self-pitying - give me a day or two and I'll be better!

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earthtomummy · 29/08/2006 20:50

oops, sorry to have repeated myself!

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coppertop · 30/08/2006 09:11

I think you're more than entitled to a bit of self-pity.

FWIW I can relate to your dilemma about another baby. Ds2 was already here when ds1 was dx'ed but by the time we'd decided to go ahead with no.3 we had 2 boys on the spectrum. So far dd seems to be very NT, though obviously it's still too early to be sure.

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Pages · 30/08/2006 20:20

Don't apologise for feeling these very natural feelings and you may well need more than a day or two to come to terms fully with the dx.

Just thought I'd mention I have friends whose DS was diagnosed with aspergers when a baby and he is now 12, no longer needs his statement and has developed incredibly. I saw him a couple of weeks ago and I honestly wouldn't have known that he had aspergers, he was sociable and interesting and very bright. His dad says he has developed beyond all measure and expectations - he will always be quirky but they put his progress down to getting the statement and huge amounts of one on one input.

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