I think this is more orientated towards carers of spouses and older relatives but it might be interesting. It is written by a man who has cared for his wife who has Huntingdon's, I read an article in Carers UK magazine. Its about £7.99 although I think Amazon have it for £4.99. There is also a website at www.selfishpigsguidetocaring.co.uk
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Here are some suggested organisations that offer expert advice on special needs.
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