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Here are some suggested organisations that offer expert advice on special needs.

Here are some suggested organisations that offer expert advice on special needs.

SN children

After being toilet trained for 3 years now wee, wee, wee, wee, wee everywhere

21 replies

Jimjams2 · 27/08/2006 15:03

Well not quite but am a bit concerned.

Ds1 toilet trained day and night aged 4. He has always been very reliable- can hold for ever. Abnout 6 months ago started wetting his bed- on purpose- every night. Tried tackling it, no success as of yet although I will try an all in one suit soon.

In the last few days he has started wetting himself during the day. He doesn't seem to be aware of it (very strangely he doesn't strip off after doing it). It may be behavioural as it seems to be very common in the car, although has occurred elsewhere. I will get his urine checked for sugar or infection- could he be having small seizures? Or is it almost certainly behavioural? I would automitically assume behaviioural but the thing that makes me wonder is that normally he gets great enjoyment from being "naughty" and will laugh his head off- in this case he's not making any sign of having even noticed that he's wet.

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bananaloaf · 27/08/2006 15:38

my godson had the same but with poo. would poo himself and never let on and wouldnt go to the loo. this went on for a year. went down the medical route but was behaiour and seems to have righted itself as he started school last week. i think i would get to speak to a urologist about if as there maybe a problem with internal sensors. if its not physical is there anything else in his behaviour that has changed

Jimjams2 · 27/08/2006 15:55

can that come on suddenly? He;s not acting in pain which is why I'm not convinced he has an infection. He just doesn't seem to notice, it's very odd. If he was doing it on purpose I would expect him to laugh when I pointed it out. I am most worried about the possibility of seizure activity (but I am paranoid about seizures with him so not even sure its a possibility or my imagination running overtime).

`Mum is coming over with some testing sticks. May have to pay the GP a visit to see what to do. REALLY don't want to have to go back to nappies At least I don't have to worry about school if I do- lots of the kids are in nappies, but don't want to go back after so long.

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Jimjams2 · 27/08/2006 18:25

urine stick test negative.....

So I guess it's behavioural then. if we have to go back to nappies I can tell I'm going to get more upset than I should be (was about to staert potty training ds3 as well). I've just found his last wee- next to the toilet- what on earth is all this about. He pooed on the floor the other day as well, which I kind of ignored, but if he starts doing that again.....

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dinosaur · 27/08/2006 18:26

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This has been withdrawn by MNHQ at the poster's request.

Jimjams2 · 27/08/2006 18:34

thanks dino you got here already.....

nappies might not work anyway if he's weeing on the floor next to the toilet (then getting dressed in a dirty pair of his borther's shorts). ....

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dinosaur · 27/08/2006 19:09

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

Jimjams2 · 27/08/2006 19:21

he seems able to wee on demand weirdly. Each time we've left the house ttoday I've made him go to the toilet 1st, but he's still weed in the car. weird.

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dinosaur · 27/08/2006 19:24

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This has been withdrawn by MNHQ at the poster's request.

Jimjams2 · 27/08/2006 19:27

I wonder if it happened once by mistake and is now routine....

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Blossomhill · 27/08/2006 19:28

I am not at all sure if this would work with your ds but the NAS and our local support group highly recommend using an:-

ABC behaviour monitoring chart

You date and time when behaviour occurs and then also add 3 columns for

A ~ Antecedent - describe what occurred immediately before the behaviour

B ~ behaviour - record a variety of different behaviours throughout day to establish pattern of frequency

C ~ consequence - Record events immediately after behaviour. What was said, What did parent and child etc.

Sorry jj as you are probably more than aware of this. However with dd when she was doing something similar recently I realised it was my reaction that kind of escalated the whole thing so totally ignored her and she was beside herself. Has stopped so far (fingers crossed!)

If you don't think it is behavioural could you get him checked out with the gp, just incase?

I think it would be a shame for him to go back to nappies after being out of them for so long too.

throckenholt · 27/08/2006 19:45

my DS has just started doing that as well (he is only 3.5, but has been dry and reliable for a year). He is not special needs - so just a bit of solidarity. I am trying to stay calm (and failing) and remind myself "it is just a phase".

Jimjams2 · 27/08/2006 19:53

alright it's defintiely behavioural, he's just taken off his pyjamas and weed on them. I suspect its a new compulsion which has gone from 0-60 in a few days. I need to consult with Donna Williams again anyway so now is the time to do it I guess- she's good with compulsions (and will be able to identify whether it is or not). Only other thing I can think of is to PECS out a worksheet/mini social story. This is how the nighttime stuff started and is now so ingrained..... grrr.

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Jimjams2 · 28/08/2006 11:40

And he's wet himself again.
I've put him in eenies incontinence pants- look like normal pants but have a disposable pad inside, got cross with him (which is dangerous as it can backfire into him liking that), and keep marching him to the toilet. I'm concerned that we'll suddently end up with a completely incontinent boy within days if I don't do something to stop this. He just doesn't seem to care if he gets wet, which makes it hard.

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r3dh3d · 28/08/2006 12:37

No experience of this JJ, but sounds horrible so am sharing random thoughts off the top of my head in desparate hope one may be of a little use....

if he's able to wee so often, presumably he's not doing much wee when he does use the loo? When you get him to wee on demand, he isn't emptying his bladder iyswim? Can you think of anything, any reward, that will persuade him to wee for longer when you do get him to use the loo?
I would get him checked out medically in case there is something funny going on with muscle control or with the sensation of "needing to go". Like you say, it's a bit odd that he can wee on demand 24/7. I certainally can't. Maybe it does just become easier the more frequently you wee, but maybe there's something funny going on which is making this behaviour easier for him.
Unless you have some medical reason not to, is there any way you can restrict what he drinks?

none of those help the behaviour side (eg weeing on your pyjamas) but might restrict it a bit. Like you say, it sounds like one of those things that will escalate the more often he does it so your chances of fixing the root problem might be better if he could do it less often.

Mitchell81 · 28/08/2006 12:45

Hello, I have never posted on Special needs before, but could it not be trying to get attention from starting toilet training with Ds3.
My daughter is 5 and just started P1, she wears nappies and is in a wheelchair, but is nowhere near toilet training.

Jimjams2 · 28/08/2006 12:47

He's always been funny about weeing. When we were toilet training him he held on for so long (over 24 hours) that he ended up in hospital unable to go (baldder had gone into spasm).That happened TWICE! (although once the GP dealt with it).

I'm staying with him when he's on the toilet and checking him. I hope that if the incontinence pants keep his clothes dry then wetting himself with lose its "shock" value, so if he's doing it to get me going it won't work. Last time he wet himself he went upstairs and changed into pyjamas so maybe he likes the getting changed routine......

Thanks for the suggestions, much appreciated. I'd worry a bit about restricting drinks as I dont think he drinks enough anyway (he has this thing where I give him a drink, he takes a couple of sips then chucks the cup in the sink- I think he's applying a "tidy up" rule inappropriately).

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Jimjams2 · 28/08/2006 12:50

Hmmm that's a thought mitchell. DS3 is only 19 months so I haven't really being doing much other than sitting him on the potty very occasionally. I'm not really sure that ds1 really notices what either of his brothers are up to.

The appearance of the potty might have triggered all the messing about though, as ds1 did try to wee and poo in the potty last week (and missed) - it might have clued him into thinking it was funny. Perhaps I should hide the potty again?

Welcome to SN!

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Davros · 28/08/2006 19:38

It does seem a bit of a coincidence coupled with the appearance of the potty. Any chance of going straight to the toilet with DS3 without using a potty? We had the same thing with DS, he started trying to use DD's potty and he's 11! So I had to remove the potty and persuade her to go upstairs to the toilet. She didn't like it I can tell you and certainly affected her toilet training.
BH, you are now officially an ABA mum! ABCs are a fundamental practice in ABA. Bloody things, I've got stacks of old ones clogging up the attic. Good idea though and something I always resort to in emergencies.

Saker · 28/08/2006 19:47

I don't have any advice but reading your thread and seeing Davros's suggestions I thought that you might not have seen this which is quite a good product if you do decide to skip the potty with Ds3 and go straight to the toilet.

Jimjams2 · 28/08/2006 20:37

oh that looks good Saker, I'm not worried about going straight to the toilet- we did wiith both ds1 and ds2 anyway. He's only 19 months- I just thought I'd try him because last week after a bath he ran off, I left him whilst I dressed the others, then he came to get me to show me where he'd weed behind the curtain Clever boy!

Some success with ds1 today, I put him in the incontinence pants after he'd wet himself, told him off, then repeatedly took him to the toilet throughout the day. Will see how he goes tomorrow. he's got a bit of a thing going about weeing outside (this started after he asked for the toilet in the middle of Dartmoor), so I figure it;s all tied in. I guess I'm not really sure yet what constitutes 'A' so find it hard to tackle.

I am now assuming he's doing it on purpose though and taking it from there.

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mixedemotions123 · 29/08/2006 08:04

Hi Jimjams. We are having problems in the wee dept too although slightly different to yours. DS aged 7 who is ASD has over the last month or so been going to the loo literally ever 2 mins if not sooner. He doesn't do this through the night, wee sample completely normal, so again it looks as if it is behavioural. He is even weeing outside behind the shed, and despite being told over and over again that he shouldn't be doing that as it is dirty and naughty, he still does it again. It is a real worry. Does anyone know if this is common with ASD?

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