Hope this is the right place to come, apologies if it is not.
My baby boy contracted group B strep meningitis at birth 10 weeks ago, he was ravaged with it and we came close to losing him. He fought hard and did however pull through. We then had the MRI and were not prepared for the news we received. From what I managed to take in, there is damage to the basal ganglia and elsewhere which was described as 'startling', they predict spastic quadriplegia, severe CP and learning difficulties, in fact they seemed to think we should be prepared for anything and were unsure if he would be able to even swallow etc.
I have never been so frightened and lost in all my life and ten weeks on can only hope I have misunderstood or it is all just the worst of bad dreams.
After five weeks in hospital (and another meningitis scare), he is making (I think) good progress. He breastfeeds (which they didn't think he would manage) and has just started smiling at me occasionally, is tracking better with eyes - although he prefers looking to his right and does this most of the time. He still has no head control.
I'm not sure what I want to hear, I guess some words of positivity from people who might actually understand. I was told I would go through a grieving process and should allow myself to 'fall apart'. I don't want to do this though as I have a two and four year old who need me to be strong, my baby needs me to be strong and positive surely too and why grieve when my beautiful boy is here with me and smiling? I do get very sad though of course and can't bare to think what the future might hold for him, I just feel so sad for him and angry too that I wasn't tested for this infection.
Please or to access all these features
Please
or
to access all these features
Here are some suggested organisations that offer expert advice on special needs.
SN children
Baby son - MRI bad news
28 replies
biglill · 30/07/2013 16:37
OP posts:
zzzzz ·
30/07/2013 16:59
This reply has been deleted
Message withdrawn at poster's request.
PolterGoose ·
01/08/2013 14:01
This reply has been deleted
Message withdrawn at poster's request.
PolterGoose ·
01/08/2013 14:04
This reply has been deleted
Message withdrawn at poster's request.
Please create an account
To comment on this thread you need to create a Mumsnet account.