I am not sure what I am after really but i'll post in case anyone has ever been in this situation and can offer any pearls of wisdom.
My daughter is 3.5. with severe global developmental delay/chromosome disorder. As time goes on her behaviour is gradually becoming a bit more challenging and this (based on others with the same syndrome) is likely to continue/increase.
I have been umming and ahhing over requesting a referral for respite. It has never been offered, and I know even with a referral you are not guaranteed to get it or if you do, much of it! But leaving that bit to one side...
Part of me just feels so terribly guilty for even thinking about respite at all. She is my DD and my responsibility and can I really be thinking about 'palming her off' on someone else just because things are sometimes difficult. I would like to say as well that from an objective point of view I think respite is very much needed for parents and it's a good thing and wholeheartedly support anyone that uses respite, but somehow when I come to think about it for myself/my daughter I feel sick with guilt and the worst mother there could be.
So do I just wait and in time the guilt will pass and then request a referral? Or will the guilt never pass and I either deal with that or not go down to the respite path?
I have 2 other younger DD's and another baby due any day, in some ways it would be nice to have time with them/to focus on them without the extra difficulties that SN's can bring, but then the thought of us all going for a nice day out and leaving my other DD behind...well, it just doesn't seem fair.
As I say, I really do support anyone else that uses respite, I am just struggling with the guilt when it comes to myself.
Has anyone ever felt like this? (off to go and get myself a tissue now)
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Feel guilty about respite
15 replies
MooMummyMoo · 12/07/2013 12:55
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