Dd 13 has developed joint pains and weakness after taking a drug for her acne. This has been going on since October last year and no medical reason for it has been identified. Last weekend she got considerably worse and can now barely mobilise at all even on her crutches. She has always been quite stoical about it but is now fed up and complaining of being in a lot of pain.
Paed reckons it may be psychosomatic because of the 'difficult home situation' ie Ds's disabilities. He has referred her to a psychologist - the waiting list is over a year.
Yesterday I phoned the paed again and he did phone back. He wants to admit her as an inpatient to do further tests, physio, get a second opinion and bypass the waiting list by getting her to see the ward mental health worker.
Now I am glad something is being done, but I feel quite upset about the thought of my little girl who has always been the ok one being in hospital. It is so sad to see her struggling and she is mostly very brave.
I think myself that it doesn't seem psychological but if it is I am doubtful about effective treatment being available. And if it isn't I am terrified about the possiblity of her having a long term disability even though I should be used to that and accepting.
I phoned the SENCO at school today to ask for some quite minor adjustments to be made for her and got a load of patronising stuff. SENCO: Have you told the paediatrican about her deterioration?
Me: Yes I have just told you that I have and what he planned to do about it.
SENCO: Bottom shuffling (which is what she is doing to get around the house at the moment) is bad for her psychologically.
Me (thinks): Maybe but is being stuck in one place any better? AArrggh.
All this on top of all this Ds is stressing about finishing course work and exams. I have been pretty unwell myself with whatever mystery illness I have and DH is being worse than no help at all.
Can I resign?
Sorry that was long.
Rant over (for now).
Here are some suggested organisations that offer expert advice on special needs.
SN children
Don't know if I need a rant or a moan or a honk but here goes.
NoHaudinMaWheest · 23/04/2013 20:20
This reply has been deleted
Message withdrawn at poster's request.
This reply has been deleted
Message withdrawn at poster's request.
This reply has been deleted
Message withdrawn at poster's request.
This reply has been deleted
Message withdrawn at poster's request.
This reply has been deleted
Message withdrawn at poster's request.
Don’t want to miss threads like this?
Weekly
Sign up to our weekly round up and get all the best threads sent straight to your inbox!
Log in to update your newsletter preferences.
You've subscribed!
This reply has been deleted
Message withdrawn at poster's request.
This reply has been deleted
Message withdrawn at poster's request.
To comment on this thread you need to create a Mumsnet account.