Hand holding needed...

[CouthySaysEatChoccyEggs]

DS1 was taken to hospital this morning. He had a seizure that lasted over 10 mins, had to call an ambulance out.

He had been unresponsive for about an hour before, we couldn't wake him up, just thought he was overtired and really deeply asleep.

Was getting frustrated as he would be late for school, so I popped downstairs to grab a drink.

Heard a massive this, three myself up the stairs 5 steps at a time, found him on floor breathing bit quite right & still unresponsive.

Called ex up as he's first aid trained, as he came up the stairs, DS1 started twitching - not jerking but obvious twitching. Still unresponsive. He was breathing really slowly and shallowly too.

So I went to call NHS direct but by the time I told them I was in England ex shouted that I needed to ring for ambulance.

DS1 fine now laughing and joking but massive headache and achy limbs.

They are sending him to the 'first fit' clinic for an EEG & MRI.

He's never shown any signs before but he had just hit puberty, even though he's only just 11 his voice has started going weird the last two weeks etc.

I feel so guilty this is all MY fault if I didn't have stupid bastard epilepsy he'd have not had this, I bet.

I just hope it never happens again.

Sorry I'm garbled just really stressed.

[OneInEight]

Holding out a hand. Hope he's O.K. and no it's not your fault!

[Badvoc]

God, how scary for you!
Am so sorry couthy :(
It may never happen again - I hope not.
X

[BeeMom]

Hand holding from here. I have often thought that seizures are as tough if not tougher on the family/friends as they are on the individual experiencing them.

Been through it from both sides of the equation, and even though Bee's seizures occur daily, they are "mild" - I still have flashbacks to the bad convulsive ones she has had before. Those are things that you can't erase from your memory.

Don't blame yourself - it is not like you willingly made a choice to have this happen. Hopefully, it is just a "one-off".

[Badvoc]

I vividly remember holding dn as he had a grand mal seizure.
As you say, not something you can erase from your memory :(

[Ineedmorepatience]

Honking for you couthy, hope he is ok

[CouthySaysEatChoccyEggs]

He is fine now. I'm not!!

[CouthySaysEatChoccyEggs]

Didn't need this two days before the TAC/TAFamily meeting either!! Especially when it's been called because DS1's father made malicious allegations that I'm 'making medical stuff up about all my DC's'...

OK, the fact that DS1 was non-responsive and twitching was seen and noted by the ambulance crew, but still, monumentally BAD timing - the hospital have had to inform the SW's of what's happened too.

[CouthySaysEatChoccyEggs]

And I feel worse because I didn't call sooner, when he was unresponsive when me & my ex were trying to wake him up, because although I was concerned about his unresponsive red after a while, I didn't trust my instincts to call an ambulance then, before he had the sz, because I don't trust my judgment any more because of this SS stuff.

[MareeyaDolores]

Couthy, you both witnessed this, right? And your older dc dad has been calling SS and claiming you make up illnesses. So is there any chance you can send his dad to the fit clinic rather than you? Might not hurt to have one letter in the file without, 'mum says, history from mum was' etc.

[CouthySaysEatChoccyEggs]

I've invited him to come when we get the appointment...it wasn't DS1's dad that witnessed this though, if never have him stay in my house! It was DS2 & DS3's dad that witnessed this, along with the ambulance crew.

[CouthySaysEatChoccyEggs]

But at least if I have offered DS1's dad to the appointments, he can hear what's being said. He won't go though. I can almost guarantee it.

[EllenJanesthickerknickers]

Bloody hell, couthy. It might be a one off. I really hope it is. My DS2 had a shorter seizure 18 months ago (aged 12 at the time, he has ASD) and they told me 10% of the population have one seizure in their lives.

The epilepsy and autism specialist paed didn't bother with an EEG because his brain patterns would be likely to be abnormal anyway due to his autism, apparently. Hope you get some answers. (((Hugs)))

No point doing the guilt thing, ok? He's fine.

[MareeyaDolores]

In fact, even if he's not attending the TAC meeting in person, he can speak to someone who will be eg Ds's teacher / the GP/ SW / family worker

[MareeyaDolores]

He could go with you anyway. He's basically his step-dad.

[MareeyaDolores]

Sorry cross posted.

Was mixed up, thought allegation-man was just your big dd's father .

Agree that Ds1-dad and younger-dc-dad arguing over whether a fit is a fit (in the hospital appointment ) might get a bit Jeremy Kyle . On the other hand, it would clearly show you didn't invent the story, and your ds1's dad would either be reasonable, or demonstrate clear oddness to the doctor (both good outcomes).

[CouthySaysEatChoccyEggs]

Ah, would be unlikely to take both, it would end up a bit Jeremy Kyle-ish!!

[coff33pot]

This is not your fault. You called NHS direct you were following what any other parent would do as you had concerns and dealt with it the right way.

Your ex was medically trained you are not and he spotted the need for an ambulance. NHS direct would I have no doubt told you to do the same. :)

[moosemama]

Couthy, you poor thing. Of course you're not ok. ((hugs))

Agree with coff33pot, it's absolutely not your fault and you have nothing to feel guilty about. You did act quickly, you called someone who was medically trained to observe him while you called the NHS for advice. No other parent could have done more.

[NoHaudinMaWheest]

So sorry this happened Couthy. Don't worry about how you handled it, you definitely did the best you could at the time.

[magso]

You did your best. I find it hard to think clearly when its my own child (Ds had a couple of long seizures together some years back and someone else rang the ambulance whilst I tipped water over him thinking it was the heat!)- you reacted fine. Don't blame yourself! Hope you stop shaking soon. Honks