Our SN area is not a substitute for expert advice. While many Mumsnetters have a specialist knowledge of special needs, if they post here they are posting as members, not experts. There are, however, lots of organisations that can help - some suggestions are listed here. If you've come across an organisation that you've found helpful, please tell us. Go to Special needs chat, Parents with disabilities, SN teens, SN legal, SN education, SN recommendations.

Friday Night Thread - come and share your news (and yer chocolate ;)

(87 Posts)
moosemama Fri 01-Mar-13 18:14:51

Never started one before - barring a mistake once when I started one on a Thursday during the holidays. blush

Hoping I haven't crossed with someone else now.

Roll up, roll up ... share yer woes, celebrations, congratulations and/or commiserations - but don't forget the chocolate. grin

PolterGoose Fri 01-Mar-13 18:16:00

zzzzz did have chocolate cake to share grin

Ineedmorepatience Fri 01-Mar-13 18:19:57

I have chocolate but I find sharing trickygrin

Dd3 has gone to a stayawakeover, DP and I are going out for dinner. Its her 4th night away from me in 10 yrs so something to be celebrated, we will be having a down day tomorrow and I will be wearing my hard hat and flack jacket when she gets home.

Have a good weekend everyonesmile

EllenJaneisstillnotmyname Fri 01-Mar-13 18:20:37

Did have, being the operative words. grin

I'm really happy because DS3 has a place in the same lovely school that DS1 and DS2 go to. Somehow I've managed to get all 3 into an out of catchment comp with no sibling policy. Amazing, although DS2's statement might have helped a bit...

DS1 is away on a canal boat weekend, dickhead has gone skiing so I've got to get a babysitter for the other 2 for my book club tomorrow. Gulp. 15 yo boys make good babysitters, don't they?

Scary meeting with school this week. All over now - phew. Scary not because it was going to be hostile, but because I really didn't want it to be, and it wasn't - yay.

Cuppa then wine I reckon.

moosemama Fri 01-Mar-13 18:32:42

I am halfway through a packet of cooperative dark chocolate hard caramels, they are my absolute favourite chocolate, but I might be persuaded to share with you lot. grin

Ineed - a whole night of freedom and a meal out! envy Enjoy! grin

My news is that ds1 was offered a place at the out of area independent we were desperate for him to go to and the LA are sounding like it's all going ahead.

Unfortunately he isn't well and I'm quite worried about him. Off to the hospital for bloods - again - on Monday and sample sent off to lab today - so hoping we'll know more in a few days.

Oo - and had parents' evening this week. Sat there and was told face to face, that they don't worry about spelling because at ds2's age (nearly 9) it's not part of the assessment criteria for NC levels! shock angry and that ds1's teacher has set him a target she knows he'll never achieve because not only does he flatly refuse to do it, it's something he finds exceptionally hard. On top of that I was told that he is a comfortable 5 for reading, but that he won't get any higher because he can't do inference and understanding character emotion - er, yes he can - with support, as set down in his bloody statement.

Basically the jist was that as long as he gets national expectation or higher in his SATs they aren't going to bother teaching him much from now on. hmm Whereas the head of the independent was totally taken with him, saw massive potential based on his verbal and written skills and talked about building on his strengths and supporting him to reach his true potential - which he feels is exceptional. Primary happy for him to scrape 4s in subjects he's always been top of until this year - indie head talked about his future as a brilliant writer or poet and the potential for future applications to Cambridge etc! shock Such a difference in attitude, to have heard both in one week is, well, confirmation of everything I suspected about the primary really. angry and sad

Oh - and the suspension collapsed on the car. hmm

But, I am in a good mood anyway! grin

moosemama Fri 01-Mar-13 18:33:49

Well done Star, I was wondering how you got on (read your thread but didn't have anything intelligent to contribute). Glad it was all sorted amicably.

SallyBear Fri 01-Mar-13 18:38:02

<passes large bar of Cadburys Fruit n nut>
Had the weirdest week. Took TDD to an appointment at GOSH to get a date for surgery on her jaw, found the surgeon to be peculiarly vague as opposed to that previous appts. Felt very uneasy about what he wants to do (involves a lot of bone grafts), and could give no real assurances that it would work. "Spoke" to a forum I'm on, and was basically advised by people that I respect that I am right to feel uneasy about it all. Now trying to scrabble about looking for alternatives and to defer the surgery. Sometimes it sucks making these decisions and being her mum. I hate seeing her in pain and the anxiety that she goes through everytime. It's getting harder each time now.

Meanwhile back on the ranch, TDS has had his application for Statutory Assessment approved, so if all goes well and we get a statement then I will have THREE statemented children. Good grief!! <eats more chocolate>

moosemama Fri 01-Mar-13 18:41:26

<swaps precious caramel for chunk of fruit n nut - cos obv fruit and nut is healthy, having fruit in it an'all>

That sounds really hard Sally. Is there any chance you can get a second opinion from somewhere/someone?

silverfrog Fri 01-Mar-13 18:41:48

we had dd2's parent's evening this week - she's doing really well academically, but the teacher does now agree that there is probably enough to start the ball rolling re: investigations. which given that last term she was absolutely convinced there was nothing at all to worry about is quite a turn around grin

dd1 is having a tough week, as one of her favourite teachers is leaving. so this weekend will not be a happy one in the frog household, as she will be trying to process that.

ds is eating me out of house and home confused, and has started waking up multiple times int he night again - boo! here's hoping it's a growth spurt and soon over....

PolterGoose Fri 01-Mar-13 18:43:58

Sorry about the crap moose but it is great news about indie school, and school for Ellen too. Well done Star and have a fab evening Ineed, tomorrow is another day, sometimes we have to live for the moment.

I had a lovely time at zzzzz's eating cake and drinking coffee and her ds1 did some beautiful singing. My ds has had a super week because his LSA is actually doing something pro-active and taking him and his friends into the neglected wildlife area at school where they saw frog sex grin and he really enjoyed the Alert programme this week. SENCO has done her report following my request for SA, it's a bit nothing really, all the interventions look ok on paper but mean little in real school life hmm I don't expect the LEA to agree to SA but it has given the school a big fat kick up the arse.

SallyBear Fri 01-Mar-13 18:43:59

Moose that was the second opinion! She's had 26 generals. I've lost count of how many surgeries she's had, I think it's about 20-22. She's only 13, its no life but then without these surgeries she wouldn't be here. I think the issue that I have is that all of these surgeons just think about their specialty and not how it affects the child in the long term.

BaggyKnickers Fri 01-Mar-13 18:45:11

Evening all <hands out Maltesers,Ripples,Bounty and a few small carrots>
Moose I was wondering how your school issue was going - that's good news.
What's the name of the school? (pm me if you'd rather). We have 'chatted' loads of times but I'm always name-changing.
Mixed bag here - ds starts at residential independent next week. He has had a few days transition but it's not been easy so am hoping that a full week will make him feel more settled. It is going to be very quiet around the house sad

PolterGoose Fri 01-Mar-13 18:46:35

I saw your other thread Sally and really don't envy you that decision sad

Silver here's hoping froglet is just having a growth spurt

SallyBear Fri 01-Mar-13 18:47:29

I think DS4 has hurt his hand. Lots of flapping it and for a boy with ASD he never flaps..... Shame he can't tell me what's wrong.

SallyBear Fri 01-Mar-13 18:48:36

Thanks Polter. It's hard definitely. Sometimes I don't like my shoes...
<eats some of moose's caramels>

moosemama Fri 01-Mar-13 19:01:22

sad Sally. You're absolutely right about these surgeons, they all have such a narrow view of things and at some point they seem to stop seeing the child/person and just start seeing, cases and challenges, iyswim.

BaggyKnickers I give up - pm me. grin I can't work out who you are, I have enough trouble remembering what's going on for regular names. blush I think I know based on your ds's new placement, but don't want to embarrass myself or out you.

Hope your ds settles into his residential school ok. It's bound to be really hard on both of you.

hazeyjane Fri 01-Mar-13 19:02:30

Hello all

I found a large Lindt reindeer left over from Christmas, which I will happily share with you all. And a friend has just bought round pizza and wine to say thankyou for having her daughter for the day. The dds school was closed due to a powercut, so ds and I couldn't go to hydrotherapy. And I am knackered having spent the day trying to keep the 4 of them happy (it is amazing just how much chaos, and mess 3 x 6 year old girls can make!!)

Sallybear, I saw your thread, what an impossible situation to be in. I really hope you can find a solution.

Had an annoyingly garbled conversation with a cosultant from the hospital about ds's ecg results, which were on the whole normal, but with a ...something something...involving the pacemaker of the heart, when ds's heat slows, they want to monitor it along with the pda. I couldn't even hear half the conversation because of the noise of the consultants bloody printer, and ds screaming at my end.

Good news is that ds's chest is sounding a lot better, there is still noise, so he is having a chestxray in a couple of weeks, but he seems so much brighter and happier. Oh and ds is getting a 1-1 at preschool, who signs, and has already started signing everyday with the children there. She is someone I know, I think she is going to be great at working with ds, it all feels very positive.

signandsmile Fri 01-Mar-13 19:04:42

Hi all, yay for all the good news this week, (and sad for the tough weeks).

good week on the whole here, heard that my college assignments have been passed at Masters level, so thats a relief. Moondog's training last Sat was fab, and I have lots of good ideas from it, dh has been falling all over the place, smashed the (new) wardrobe door in a fall, the time for referral for a wheelchair fast approaches... sad we are also about to book a stairlift assessment appointment, (dh's mum has said she wants to pay for one for him.. bless her!)

EllenJaneisstillnotmyname Fri 01-Mar-13 19:06:22

Lots of school interactions this week, everyone. It must be parent evening season. DS2's isn't for another couple of weeks, but his AR is creeping up. It's all been about DS3 this week, so I haven't been thinking that much about DS2.

BaggyKnickers, you seem strangely familiar...

PolterGoose Fri 01-Mar-13 19:09:43

Oh dear sign poor dh, and you too

Congrats though on the assignments, I'm nearly two thirds way through my Masters, it is proving much harder studying at 42 with a ds and a job than in my early 20s with a dog grin

moosemama Fri 01-Mar-13 19:13:17

Good to hear your ds is feeling brighter Hazey. You definitely deserve wine after looking after 3 6 year old girls and a littley all day. Great news about the 1:1 - even more reason to celebrate with wine grin

Congratulations on passing your Masters assignments sign. smile Sorry to hear about ds's falls though. sad

EllenJaneisstillnotmyname Fri 01-Mar-13 19:15:21

Crossed with you, sign. That's going to be difficult for your DH, accepting he needs to use a wheelchair. sad

moosemama Fri 01-Mar-13 19:17:44

Blimey - my typing is dire tonight. Sorry sign - that should read dh's, not ds's.

TaggieCampbellBlack Fri 01-Mar-13 19:20:15

Evening all.

Good school news it seems.

DD has sutpassed hersrlf...

On sunday 2 of her friends weren't at church. Both mums ssid 'oh, they are revising for their science mocks this week'.

Me: 'DD why have you not done any revision?'

DD: 'I don't have the revision guide'.

Me: 'I gave you money for that before christmas'.

DD: 'I bought jeans instead'.

AAAAAAAAAAAAAAAAAAAAARRRRRRRRRRRRRRRGGGGGGGGGGGHHHHHH.

She got a G.

Bloody bloody infuriating child.

I'm working nights. Again.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now