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Here are some suggested organisations that offer expert advice on special needs.

SN children

it's been really nice knowing some of you

17 replies

devientenigma · 01/02/2013 18:45

however I'm not coming back, however I will still see some of you on FB

OP posts:

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Ineedmorepatience · 01/02/2013 18:48

What has happened dev

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silverfrog · 01/02/2013 18:53

dev, please don't go.

it's always tricky when disability is discussed as a whole, but don't walk away from people who understand some of what you are going through

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cansu · 01/02/2013 19:22

I think it would be a shame if you stopped posting. I think sometimes that this board is made up of people with very similar viewpoints which has both positives and negatives. I think that disability throws up some challenges that can't always be overcome by battling school etc and I think it is important for people to be able to make those points. Maybe there will be someone else in your shoes or similar who would benefit from your advice. Anyway do consider this.

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inappropriatelyemployed · 01/02/2013 19:39

Oh no, what has happened?

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imogengladhart · 01/02/2013 19:44

This reply has been deleted

Message withdrawn at poster's request.

StarlightMcKenzie · 01/02/2013 20:40

Oi! Where you going? Stop it.

I'll miss you. You've had it tougher than many here, but you're an inspiration and I for one want to hear the success stories from the next chapter in you and your ds' life.

I don't understand it all, but I understand some of it, and listen lots, as do many others here.

So, do what you have to, if you really have to, but don't be gone for long.

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FightingForSurvival · 01/02/2013 20:56

Hi dev, I don't know your story but I read some of the other thread. It's different for everyone and one persons problems might seem nothing to someone else. I have a friend who has been supportive to me while my son is going through ASD assessment and in some ways, we now have more In common. But she also has another child with physical disabilities and I think maybe her child's ASD is more severe than my child's (though I may be kidding myself there). So when I'm moaning, I'm probably getting on her wick a bit, but I don't mean to and her input to me has been invaluable. She's the only friend I have in rl who understands. But in some ways, my moans isolate her more, she would swap places I guess. Don't isolate yourself more.

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devientenigma · 02/02/2013 09:44

Just popping in to say thanks for the support, I just wish I was an inspiration. However with comments about not understanding disability and under estimating what parents go through it is defo not for me. When parents in similar situations can make another feel like the world has ended and the dire you are in is nothing I don't need to be part of that. If anyone does know of a more appropriate board, somewhere where they are similar to mine please let me know.

Good luck everyone x

P.S. When something does move forward I may just come back to let you know

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MareeyaDolores · 02/02/2013 10:57

dev, I can see that being here might feel like I do when politely nodding while people moan about their child's failure to get their grade 5 piano first time.

Given the state has basically withdrawn and left you to it, the knowledge of various posters in how to kick official a*s could still be of some help to you and DS. I know the situation is as vad as it us; it just seems to me that claiming nothing can be done (now, anyway) whilst leaving you to despairingly agree, is just a bit too convenient fir the budget holders.

Your DS's package (if needs were properly met) sounds like it'd be £150k annually. Current dismal input is probably costing £15k. Would it help to shift to SN: legal for a while and have a few of us follow you?

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MareeyaDolores · 02/02/2013 11:00

Aargh. Bad. Not Vad.

Really a typo not a Freudian slip are the LA/SS vampires sucking you dry

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Cornycabernet · 02/02/2013 13:42

oh no dev

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Ilisten2theradio · 02/02/2013 14:48

Dev don't go. I don't know which threads you have been reading, but perhaps you can stay and be a bit more selective?

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proudmum74 · 03/02/2013 10:41

Oh no, what happened?? - sorry DD been unwell so not checked here for a few days.

Really sorry you feel that way Dev, you've been a great help to me over the years, and you are an inspiration to me!

Genuinely hope you manage to find the support you need / deserve. Take care of yourself x

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devientenigma · 03/02/2013 11:48

sorry Mare had a little lol at that. You are so right with all of it. It's not what Iv'e been reading, it's what Iv'e been told, I'm so gobsmacked by it. I underestimate what parents of SN DC go through.

Have TBH I'm going out of my brain with no where to go, sims is battering as no one's sending what I need to continue with my quest, FB's quiet and with not coming on here, bit bored.

I could go out or tidy up if it wasn't for youngest DS who is so controlling and aggressive but then I wouldn't know that or what thats all about.

Sorry the sarcasm always comes at times like this.

Thanks everyone, Take care xx

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Oblomov · 04/02/2013 07:33

I have not seen your previous threads Op. But don't go. Sn boards are so supportive. they are a font of knowledge, really. Stay and let all our experienced and knowledgeable people help you. ( God they have helped me many times over the years)

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bochead · 04/02/2013 10:21

Please don't go Dev. I don't often respond to your threads simply because I don't know what to say that'll help .

Sleep deprivation often completely removes my ability to be diplomatic or sensible in thread responses. The result can be a snarkiness that reflects my own sense of guilt and failure, & is NOT a dig at anyone else. I think many of us sometimes feel so bloody isolated that we lose any sense of rationality and "snap" in the sanctuary of this forum as in real life "anything you say can and will be used against you as evidence". We all have bad days, and I'm just wondering if someone at the end of their own tether has inadvertently upset you?

I remember going to a group locally last year and discovering that the local support services given to other families made our own experience seem like we were living on a different planet. I haven't been able to go back as it hurt so much.

Take a break if you need to, but don't disapear for good please. Several of us will be left fretting as to how you are getting on (not all of us use facebook!).

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devientenigma · 04/02/2013 14:38

I'm really sorry for the few who would of liked me to stay. I have decided to de reg, not NC or anything else. I feel the majority of the SN board would love to see me go. I would feel uncomfortable posting and commenting. I wish you all well and if anyone does want to follow me on FB feel free. It might make you's without FB accounts join the fun, beware though I will ask you to play sims lol.