ADOS done two weeks ago. Got the draft report from the psychologist yesterday, with 'Diagnosis: Aspergers Syndrome, written on the front page. Nothing we weren't expecting. However, I'm shocked that Ds got 18 on the ADOS, when the cut off for a diagnosis of autism is 10. 17 of these points were from the first two parts of the test - for language and communication, and reciprocal social interaction. He only scored 1 on the 'stereotyped behaviours and restricted interests' section of the course.
Reading the report it's coming home to me just how abnormal his interaction is with other people. I'm so used to him, love him so much and enjoy his company that I've adapted to the way he is. His brother, who he's very close to in age to, is a very sensitive and amenable little boy, and he's also adapted his behaviour and communication to fit around him so that when you watch them playing together it's not always obvious that DS2 has autism. Somehow their relationship works. But reading the report and thinking back to observing the tests, it's made me realise how much DS2 is living in his own world. How little true 'reaching out' to other people there is. Everything is on his terms. And somehow we've arrived at a situation where we don't mind that so much, because he's usually nice to be with. But I worry about his relationships in the future with people outside of the family who adore him, and wonder what, if anything, can be done to change the way he interacts with other people.
I'm not sure why I posted this by the way, just wanted to set out my thoughts and feelings about his diagnosis.
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ADOS results. Bit shocked.
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minifingers · 23/11/2012 11:04
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