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SN children

Honk needed today - More surgery planned

24 replies

SallyBear · 23/11/2012 07:43

Off to GOSH today to see DD's (she is 13 next month) new craniofacial surgeon, to discuss his proposed jaw distraction surgery; vectors that he'll use, internal or external distractors, what the outcome should be etc. it's complicated Smile as we've been here twice before with her over the years.

So a little honk please ladies, this will be her 27th surgical procedure and it really doesn't get easier the longer you do it for. Thank you x

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Firsttimer7259 · 23/11/2012 07:55

Honk honk Sallybear

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proudmum74 · 23/11/2012 07:57

Honk - good luck!

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Scottishdancer · 23/11/2012 07:59

Honk. Thinking of you

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hazeyjane · 23/11/2012 08:00

honk and a hug for you and dd. x

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SallyBear · 23/11/2012 08:32

Thanks ladies. Its chaos here today. dS3 announced ten mins before leaving for school that it was non uniform day and the school want Xmas food for hampers. DS dispatched with Choccie dodgers expiring on the 15th Dec. grandma bought them for the kids months ago, and they've been festering in the cupboard until today! Blush

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pinkorkid · 23/11/2012 08:34

honk - hope all goes well for you and dd today.

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Strongecoffeeismydrug · 23/11/2012 08:44

Honks sent

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coff33pot · 23/11/2012 09:50

Honking for you sallybear and your dd xx

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moosemama · 23/11/2012 10:26

Honking for you both Sally. x

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NoHaudinMaWheest · 23/11/2012 10:29

Honking here too. Hope it goes well.

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TaggieCampbellBlackFriday · 23/11/2012 10:32

Honk.

Good luck!

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mariammma · 23/11/2012 10:36
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lisad123 · 23/11/2012 11:15

Honking for you and thinking of you.
When you know date, let me know if I'm innlondon that day happy to meet if that helps

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Iceflower · 23/11/2012 11:40

Honking for you too!

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SallyBear · 23/11/2012 14:20

That's kind of you Lisa123. It looks like we are going to be doing a different type of surgery to what was originally planned. She won't be having a jaw distraction which is where they break the jaw, put pins in and lengthen it every day by turning screws. Horrible surgery. We've done it twice already. This time they are going to be reconstructing her Trans Mandibular Joints (TMJ) by grafting rib bone and cartilage and also using hip bone. So she will have to wait until the summer for it to be done, and will have to wear a bite block for eight weeks to keep the area stretched. Lots to think about.

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Ineedalife · 23/11/2012 14:22

Honking for you sally

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EllenJaneisstillnotmyname · 23/11/2012 14:23

Is that less invasive, SallyBear? Hope so. X

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SallyBear · 23/11/2012 14:29

Well it's invasive certainly, but the post surgery recovery will be better as there isn't anything that needs to come out again. Hopefully less scarring too. The funny thing is that I hated biology at school, avoided dissections yet I am now well qualified in all things Treacher Collins. Hmm

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EllenJaneisstillnotmyname · 23/11/2012 14:37

Dropped biology at the first opportunity! I preferred subjects where you could work thing out! I can't work out my DS2, though. Grin

So it's a rather more serious op, but better recovery time? Swings and roundabouts, I suppose.

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Badvocsanta · 23/11/2012 17:58

Honk honk

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ImStickingWithYou · 23/11/2012 18:20

I rarely post, although have lurked for years, but I had to add my sympathies to your DD and hope that it all goes OK. I was also at GOSH MaxFax today with my DS who is 10. We also discussed the same surgery but with a view to do it just as puberty starts aged 12/13. How old is your DD? We were meant to do a distraction first as well but unfortunately DS got diagnosed with arthritis in the TMJs so we have had to hold off for a while.
I will be very interested in how this all goes for you as I don't know anyone else who has had it done.

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SallyBear · 23/11/2012 20:21

Oh did you see Mr. Ayliffe? We were there at 11. DD is 13 next month, but a small 13.

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SallyBear · 23/11/2012 20:28

Thanks for the honks today. It was much needed Grin

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ImStickingWithYou · 23/11/2012 20:46

Yes we saw the lovely Mr Ayliffe, must have walked past you as we were seen at 10:25!

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