I'm told there's no dedicated chromosome disorder thread so I thought I'd start one!
I know some people (myself included) won't want to state the specific disorder that our DC is affected by as some are so rare it would 'out' us, but I think a lot of the effects of chromosome disorders are quite similar.
My DD (3.5 months) has a very rare disorder. She seems to have quite a few of the more minor physical effects and none of the serious ones thank goodness. As for the learning difficulties, time will tell.
We are in the process of joining Unique etc and have had her exact karotype matched.
So come and chat about your DC, how you felt when they were diagnosed, what services you've found useful, any particular groups etc.
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SN children
Chromosome disorder thread
86 replies
Bluebirdonmyshoulder · 06/11/2012 08:48
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