just posting for a bit of hand holding!
DS background - he had a number of medical issues until he was around 4 when things started to just go better, i.e. failure to thrive, heart murmur, 'weird' blood results etc. in a nutshell he had a number of issues that raised questions about different syndromes, but he never fitted anything in particular and as his medical health had vastly improved we agreed that he no longer needed to be in the care of the several medical specialists (including a geneticist from a major city).
Luckily, as I am in education I knew that I needed to stamp my feet very early on in order that his learning needs were met and he has been in receipt of a full statement since he was 5 and has attended a special school since. He has learning difficulties, signs of ASD, signs of ADHD to name a few and we have been happy that his needs were being met (his school is fantastic) and that there were no need to be concerned that his statement wouldn't continue.
I have though recently become aware of all the changes occurring in terms of support/funding etc (he currently receives DLA) and am getting concerned that he has no formal diagnosis anywhere on his medical records of his needs and therefore would be classed as a 'vulnerable adult' and at risk of not gaining the full support he needs when he leaves eduction (he is currently 13, therefore would be year 9 in mainstream).
I am therefore going to go through the mill of doctors, specialists again - just sat here now before we go to the GPs (who have also been fantastic with him) to ask for a referral to gain some form of 'label' on his records.
Just slightly worried if I am doing the right thing; we have just got on with things, just thinking that this is 'littlecricket' and despite the initial desire for a label we have spent the last 10 years not being bothered and just going on the day-to-day needs but am I going to open a can of worms by demanding a label on his records?
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1 reply
cricketballs · 01/11/2012 09:20
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