Disclaimer/Helpful Links for SN too?

[Davros]

Similar to the idea for the Feeling Depressed section, we did talk about doing something like this on SN, plus a possible Q&A somewhere (which could be links to threads) and Dinosaur offerd to write a Red Flags & Red Herrings document. Also the links on the Weblink thing from the HOme page could do with improving (with our help of course).

[coppertop]

What about a list of sites that are regularly recommended? I can't remember the addresses atm but things like:

• NAS
  
• the CHAT test
  
• the online ASD/PDD tests
  
• the Dyscovery site
  
• the sites that help with DLA forms
  
• the Family Fund site
  
  Sorry that these are mostly ASD-related but hopefully people will suggest some for other kinds of SN too.

[JJmumsnet]

The webguide is a continual work in progress and it'd be great if you could email suggestions of sites to [email protected] . Our excellent Link Manager will then add them into the Special Needs section. The faq is a good idea also - love the name 'Red Flags & Red Herrings'. If you could get dinosaur or whoever to like to help on that to email us , we'll start in on it.

[JJmumsnet]

argh - can't type. It should read: if you could get dinosaur or whoever would like to help on that to email us, we'll start in on it. Of course, feel free to try to get people to like to help, too.

[LinkManager]

I am indeed excellent

[LinkManager]

(but I didn't know you could do direct "mail to" links in a post)

[Janh]

heehee

Who is LinkManager?

JJ, why don't you ever chat any more? (or do you and I've missed it?)

[LGJ]

JJmumsnet


What have you done with Justine ??


Us pesky kids might kick up a stink..........on the other hand..............if you are not Justine ...........ignore this post

[LinkManager]

It's not Justine, it's JJ.

[LGJ]

Obviously before my time............no need for the pesky kids then


A la Scooby Doo................

[lou33]

hey jj how you doing?

[Davros]

So what about a one line-ish disclaimer thingy then? Something like

If you post here we may eat you alive (!)

no how about something like

Please bear in mind that MNers who have children with special needs and/or diability are more/less able to errr... something or other

Any ideas?

[eidsvold]

think it sounds like a fab idea - am sure you could add links to any society/group for whatever special need such as DS etc.

[JJmumsnet]

Hi - will pass on the ideas for the link wording to the others. What about: my child's symptoms: red flag or red herring?

And I've been good. Thanks for asking! Very very busy, so not much chatting. But the webguide has a nice new look, thanks to our LinkManager's great idea for format, and all of the reviews , every last one, have been updated. Now if we could just get the library done...

[coppertop]

I like the new layout. I'm guessing "food for your brian" was intentional.

I like the "red flag or red herring?" idea too.

[Davros]

Ooops, got this started and haven't really contributed much
Promise to give it some more thought and come up with some links etc after half term...

[JJmumsnet]

Just bumping this up. Could anyone who would like to help email us at /link{mailto:[email protected]/[email protected]}?

The Saturday night after half term probably isn't the time to bump, so I'll do again early next week.

[JJmumsnet]

argh! That'll teach me.

Email us at [email protected] .

[tamum]

[JJmumsnet]

Hi, tamum!

Just reading Davros' (Davros's?) original message again and please do email us links to any threads that are particularly helpful in answering a question and send the question along, iyswim. Or if you had a question and it was answered by a search that came up with a particular thread, please email that in, as well.

[JJmumsnet]

Hi! Just bumping this up again. If you're interested in helping out with the faq, please email us .

[Fio2]

disclaimer ought to be...

Davrois is a mad velcro cow

[JJmumsnet]

Shoot - meant to say to coppertop - brian? Oops! Probably should fix that. ;)

[Davros]

Who the hell is Davrois? I'm sure SHE is a mad velcro cow whereas I, on the other hand, am a charming and helpful lambikins....
I have been giving this some thought and Coppertop already made some good suggestions. The problem is finding time to do a good job of listing websites etc, I'll give it a go but I won't be able to trawl out useful threads and sort out links to those.... The main one of those I'm thinking of is Choc's DLA one, oh and maybe some of the toilet training children with SN...??

[Davros]

Thought I would post this here first as there are lots of gaps. Can anyone fill any in or has anyone got more ideas? I cannot find the on-line CHAT test, despite trying archive (it only comes up with about 5 threads, none of which have it) and going Alpha on SN has collapsed again and only goes up to "C"!!!! So here is my work so far, based on Coppertop's first draft:

SO FAR NOTHING ON DS, CP, SPECIFIC DISABILITIES/CONDITIONS OTHER THAN AUTISM

IPSEA (Independent Panel for Special Education Advice) ? www.ipsea.org.uk
Organisation giving free advice and advocacy on issues related to SEN

National Autistic Society ? www.nas.org.uk
Includes information on accessing their Helpline and Education Advocacy Service

CHAT test ?

Autism SD/PDD tests

PEACH ? www.peach.org.uk
UK charity supporting families running ABA programs (Applied Behavioural Analysis)

TreeHouse/PACE - www.treehouse.org.uk
UK charity specializing in campaigning and lobbying for better/more autism education provision

AiA

JABs

Disability Living Allowance, help with completing forms ? www.bhas.org.uk

Carers? Allowance

Tax Credits

Free Nappies

Mothers From Hell

The Family Fund ? www.familyfund.org.uk
Following means testing, provides funding for families with children with disabilities to purchase items and services, e.g. washing machine, driving lessons, holiday, garden clearance etc

BIBIC (British Institute for Brain Injured Children) - www.bibic.org.uk
Based in Brigwater, Somerset, offers inter-disciplinary assessment, producing tailored programmes to improve the quality of life for the child and family. Parents are then taught how to take an active role in their child's development by implementing these programmes at home.

The Dyscovery Centre - www.dyscovery.co.uk
Based in Cardiff, provides a specialist and high quality service with an inter-disciplinary team helping individuals with living and learning difficulties.

Website for locating Speech Therapists

Communication Matters - www.communicationmatters.org.uk
Organisation concerned with augmentative and alternative communication (AAC) needs of people with complex communication needs, from lo-tech such as PECs to hi-tech such as voice output communication devices

PECs ? www.pecs.org.uk
Official organisation for the Picture Exchange Communication System

Makaton ? www.makaton.org.uk

Signalong ? www.signalong.org.uk

Dyslexia Institute at www.dyslexia-inst.org.uk/

Websites offering free worksheets, flash cards and other resources:
Do2learn - www.dotolearn.com
ABCteach - www.abcteach.com
Funschool - games.funschool.com/games.php?section=g1
Kidsfonts - www.kidsfonts.com
Worksheet factory - www.schoolhousetech.com
Myparentime?s Printable Checklists - www.printablechecklists.com
Nouns&Sounds - faculty.washington.edu/chudler/works.html
Speechteach (Speech therapy based resources) - www.speechteach.co.uk
Responsiveface (to help children with SN, esp ASD, learn to recognise facial expressions and the related emotions - mrl.nyu.edu/%7Eperlin/facedemo

[SueW]

These CHAT links any use?

Autism Soc of America

Public Aitsim Awareness