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This is page 1 of 6 (This thread has 55 messages.) First | Previous | Next | Last Go to page

2 Beautiful Angels born alive at 20 weeks - Both died just over an hour later

(55 Posts)
Our Story ( it's kind of a novel sorry )- Hopefully our experience will help other people to know they are not alone.

My Husband and I had been trying for a baby for the last 6 years after 3 years we found out that my tubes were completely closed and had only a 1 in a million chance of conceiving naturally, so we decided to try ivf. We were so excited to learn on christmas day that we were pregnant after our third implant. I started to bleed at 7 and a half weeks and we were devistated to think that we were losing our baby. I went to the hospital and was given an ultrasound they found that we had 2 sacs 1 had a heartbeat and 1 didn't. We were sad that one of our eggs didnt make it but were happy that one still did.but I was still very anxious.The doctors told me that the bleeding was most likely the sac that did not have a heart beat and i would have to pass it. Later that night I lost a huge clot so I went back to the hospital the next day to make sure that it was the one that did not have a heartbeat and you can imagine my surprise when they were doing the scan and the doctors and nurses were looking intently at the screen saying are you seeing this. I hadn't been game enough to look at the screen in case it was bad news as the last time I had been pregnant I got to 11 weeks and found out that it had died at 9 weeks. When I looked at the screen I seen there was suddenly 2 heartbeats it was absolutley amazing. I had never been so happy in my life. It was still early so I didn't want to get too carried away but you just can't help it. then we had another scare at 15 weeks when i went for a nt scan and the doctors said that t2 had too much fluid behind his neck and i need an amnio test because he had a 1 in 2 and 1 in 4 chance of having 3 serious syndromes. we had the test and after 2 weeks of waiting we found out that we had dodged all 3 bullits the baby was fine and we found out that he was a boy. At 19 weeks we found out that our T1 was a girl it was just perfect. on the 03.04.09 I started losing a brown discharge and had mild cramping and worried i went to the hospital I was told it was nothing to worry about, it's old blood. this continued to happen and I kept going back to the hospital worried I just felt something was wrong they did scans and told me I had a short cervix of 2.3cms and i asked if i should be worried as i knew twins never went full term and i had my daughter when I was 16 and she came 5 weeks early. they told me they would monitor it. i asked if I should give up work and have bed rest and was told " we will see where you are in 4 weeks" i told them I work in a management position and i am constantly on my feet, and i read that the brown discharge before 22 weeks can be a sign of late miscarriage and was told that i could stay at work i was fine and told not to read my books anymore. 1.30am on the 15th of April i had mild cramping and couldn't tell if it was pressure pain or actual pain so i called the hospital. they told me to come in I called my husband home from work and we went to the hospital. I had a nurse feel my stomach and after a short while she told me that I had had 2 contractions in 10 mins i told her i can't be having contractions as I was only 20 weeks to the day. the registrar did an internal and said that my cervix was open and made a hand gesture of approximatley a tennis ball. she told me not to worry they could do a stitch but she had to see her supervisor. when her supervisor came down she did not even recheck she just said from what she had been told my cervix was closed i asked her to recheck and she said that she didn't need to! they did a quick scan and the babies were fine playing as they do they gave me a shot of buscopan and morphine and told me I would be in for a couple of days to monitor me. I was moved to a ward. Another doctor came to see me at 7.30am and told me that I needed a patch to stop the labour. My husband and i continuely asked for the patch several times and still had not recieved it when they sent me for another ultrasound at 11.30am again both babies were fine they were playing and kicking each other and trying to hold hands through the membrane. the radiographer said that they were fine and still high in the pelvis so i started to breath again but i wanted the patch that they had spoke of as the doctor said it takes a while to work. when i went back upstairs i asked for it again and they finally brought it to me at 1.30pm i sent my husband home because I thought every thing was going to be alright now and he had been up for 50 hours. I was moved to a private room I am not sure why i was trying to rest and all of a sudden with no warning my waters broke at 2.30pm. I called for the nurse and it took them over 5 minutes to come in and told me they only came in because I was crying. I was taken down to delivery. My husband turned up at about 3pm and our beautiful Phoebe was born at 3.16pm she weighed only 280grams and she was 24.5cms long I thought she had been born dead as they didn't move her then our beautiful Dylan came at 3.17pm and landed straight on Phoebe's head and they left him there too. My mother turned up not long after they were born approximately 5-10minutes and the babies were still between my legs uncovered. I was hysterical and told my mother that we had lost them. She went up to look at the twins and then she noticed they were breathing and their hearts were beating. she informed the nurse and she said " well I'll get a blanket then" we asked them to help the babies and the staff informed us that it was legislation that babies under 24 weeks can not be assisted. they told us to spend time with our babies and say goodbye. Our Phoebe lived for just over an hour and Our Dylan lived for an hour and 15 minutes. although they were only here a short time they will be loved always.
Add message | Report | Contact poster By Sun 01-Nov-09 01:39:57
becky unsure what to say but wanted to post.
Add message | Report | Contact poster By Sun 01-Nov-09 01:31:58
Hi flappy, yeah i met with the hospital and they admitted things were handled badly, they also produced a report that said that phoebe (twin 1) had an infection in the membrane which they are saying caused me to go into labour, so there is nothing i can do about that. But there was a midwife there who is head of the midwives in the western area and she was appalled by what had been said and she is going to speak to the people involved, and get back to me with an outcome. all in all i suppose it went ok there are things they should have done better but at the end of the day nothing anyone says is going to bring my angels back but hopefully now that we had the meeting and they know a few things it may stop it from happening to someone else. All i can say to the pregnant mothers out there is. You know your own body and if something doesn't feel right pursue it until they listen to you, thank you everyone for your care and concern it is nice to know there are people out there who do listen smile
Becky, just wondering how you got on?
Add message | Report | Contact poster By Thu 15-Oct-09 10:56:42
hey flappy i have to meet with the hospital and have concilliation on the 21st will let you know how it goes. We have sat down and written all our questions and had to forward them on to the health complaints commission. I am in Sydney i am not sure where you are but that is who we make the complaint to. We had to submit our queries in to them so they can forward it on to the hospital so the hospital has no excuse if they don;t have the answer
Add message | Report | Contact poster By Wed 14-Oct-09 22:36:59
So so sorry for your loss Becky. I hope you are finding the strength to get through this sad
Add message | Report | Contact poster By Wed 14-Oct-09 22:25:56
Becky - my thoughts are with you, Phoebe and Dylan. xx sad
I think what might help as well, if there was a midwife here who could offer her opinion.

You, in my own personal opinion, have been treated so badly and your concerns were completely ignored.

And they way they treated you after you delivered Phoebe and Dylan was awful,

I was always taught to take a patient's concerns seriously as they were the one who knew their own body better than anyone.

When you are able to have a meeting with the staff from the hospital, if you haven't done it already, I would strongly urge you to write down all the questions/concerns that you have.
It is very easy to feel intimidated in theses situations.

btw, Flappy is fine smile
Add message | Report | Contact poster By Wed 14-Oct-09 12:09:17
Hi everyone thank you again for your support and thank you to FlappyTheBat thank you for the information. I do understand that they would have had alot of problems and i understand why they don't resus babies but they didn't explain any of that pre delivery and then give no support after. My main complaint to them and the reason that i am fighting them is the precare before hand. i had been losing a discharge that had turned a beige colour and had slight cramping which i knew was not normal. I went to the hospital several times over 2 weeks previously. They would just do a scan of the twins see that they were fine and tell me to stop worrying it was just old blood. I informed them that i had been reading what to expect when you are expecting and in the book it said between 18 -22 weeks it can be a sign of a late miscarriage. As i had had many problems before and they were ivf and they discovered that i have a short cervix i didn't want to take any chances and because i manage a large bottle shop and am constantly on my feet i asked if i should take my leave early and have bed rest or something, they told me i was imagining things and should stop reading my book. If they would have paid attention earlier my angels may not have come as early as they did. But i do want to thank you for your post i appreciate everything you have said. BTW do you have a first name FlappyTheBat seems so cold. smile
Add message | Report | Contact poster By Wed 14-Oct-09 11:07:47
So very sorry to read this heartbreaking news sad So sorry for the loss of Phoebe & Dylan x x and angry at the lack of care you received, totally unforgivable.
Flappy - good info, hope it helps you Becky.

What an awful situation for mums (& dads) of babies born breathing pre 23 weeks.
This is page 1 of 6 (This thread has 55 messages.) First | Previous | Next | Last Go to page
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