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Hyperemesis Support

(978 Posts)
LucindaE Mon 01-Apr-13 18:03:32

We need a new thread.

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
https://sites.google.com/site/pregnancysicknesssos/
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable for sufferers, with information about medications, coping strategies, hospital admissions, useful links, advice for family members, and much more.

I would like to thank MOH MOP Ovaltine bluebirdsunshine (I think she's changed her nickname) Fluffy, Horsey Kalidasa, Nannyl and Everyone who has given such invaluable support and advice on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.

LucindaE Fri 21-Jun-13 17:58:03

Ok, Everyone, we have a new home as this one runs out at 1,000 posts.
www.mumsnet.com/Talk/pregnancy/1785385-Hyperemesis-Support Somebody just said on my blog that I provide no end of entertainment with my links that don't work blush Looks anxious, hoping this one will work.
Lucinda
xx

LucindaE Fri 21-Jun-13 17:47:44

Sally I can see why you want to aviod that -that's a horribly long wait - it's awful the length of time people on here have to wait for an admission, and the Public Puking in a room full of uncontrolled kids isn't something you will be eager to repeat. The staff should have made the father's take them to the other room...I'm just going over to set up a new thread and link. Watch the link fail, I'm notorious for that!
Lucinda
xx

Sally8655 Fri 21-Jun-13 15:09:42

Hi lucinda, I really want to avoid going in if I can. It was so uncomfortable, in a waiting room for 8 hours with an IV, having to be sick in front of a room full of people and visitors being brought in every few minutes. TVs blaring and kids running around me screaming (no offence at all to people with kids, i will have my own soon, just not ideal while im being sick and dads could have taken the to the playroom next door. it was just chaotic, If I was in a private room fine, but having bloods, tests, consultations and treatment in a waiting room is pretty uncomfortable and an experience I would like to avoid at all costs. The staff were nice though.

The midwife told me earlier, just so long as I'm getting some fluids rather than none, I'd be ok and didn't have to go in.

LucindaE Fri 21-Jun-13 14:51:21

Sally Mother hen very anxious - are you going to A andE if the puking dosn't ease when you take the pills,,not sure of your plan? Don't let it get too bad, or you can get confused.
Waves Oh no, that's awful, poor you. It has only been two of us in several years' of women on this thread who had the fun of it coming back, and you're due to miss out on a bit of bad luck.
Got to get a new thread started for us this pm or we'll run out of space...
Hugs to all.
Lucinda
xx

Sally8655 Fri 21-Jun-13 13:42:52

Ps, I feel for you guys too. Hope you start to feel better and it doesn't last much longer, wavesandsmiles- I didn't know it could stay with you after baby was born. Learning something new every day. I hope it doesn't for you and you get instant relief xx

Sally8655 Fri 21-Jun-13 13:38:30

Hi
Yep, taxi fare sorted. Had a call from the midwife to say the GP was very reluctant in prescribing the ondansetron as in all his medical years, he has never heard of prescribing this for HG. He said its only used for cancer patients and doesn't think its safe. oh and i take it at my own risk! He has only prescribed enough to get me through the weekend and then wants a chat about it Monday. This then made me think again (is it really safe) so I rang the maternity team at the hospital and the assured me it was fine and they use it frequently but they would like me to go back in for IV fluids again Monday if it doesn't help. They advised me to get my GP to call them if needed. They are so nice there :-) My GP is obviously just a tight git. He wouldn't send me for a routine check once at the hospital as he didn't think I needed it and it was costly, although several other docs said I needed it. now just waiting to get my prescription and try my hopefully wonder drug! Xx

Sally, yes it sounds like you need hydration. Can you go to a and e or something? And make a complaint about the MW when you feel up to it.

Crappest day here, stbxh caused me a lot of grief first thing, so I missed my early hospital appt, they called back and said I could come up anytime, so I tried again late morning but was sick all over myself in the car so had to go home wash change clean car etc and try get some more food and drink down before finally making it up here. Thank goodness there are only a few weeks left for me, hoping and praying the HG actually stops when the baby is born and doesn't carry on as it has with a couple of others.

From here I am off to my consultant for the growth scan, will update this evening

TiredFeet Fri 21-Jun-13 13:23:45

sally can you make sure there is some cash in the house so you can get a taxi to hospital if you need to. I can see at the point you need to go you definitely won't be well enough to drive!

Sally8655 Fri 21-Jun-13 11:33:25

Hi
So I just went to see midwife, she told me that my ketones were 3+ and wrote this in my notes. My blood pressure was high again (it has been every visit). She informed me that my pregnancy is high risk! I asked her about the ondansetron, she said she would talk to a doctor and call me later today. I hope they give them to me as I'm literally stuck in bed sick and dizzy all day. The only time I'm up us to see a doctor or go to the hospital. I asked her if the small amount of water I was able to consume was dangerous, to which she said no. I was weighed and now I've lost a stone exactly in about 2 weeks. That surely is not good. I asked why I'm so dizzy and she told me its probably low blood sugar. surely all the above should mean I'm supposed to be receiving some sort of hydration treatment again? I'm worried I'm going to get worse and it'll be a weekend so my gp won't be open and I am to ill to drive myself to hospital while my hubby is away. I feel so miserable and stressed :-(

LucindaE Fri 21-Jun-13 11:01:08

RNJ That's the message I wanted to give and couldn't read my scribble - poor you, it must have been humiliating - I never know how teachers especially cope with this!
Sally If you can only hold in a few drops of water - obvious comment from me - do watch out for those ketones. My inevitable question - have you got in kesostix?
Back soon (glances about anxiously, leaves, clucking).
Lucinda
xx

SlinkyB Fri 21-Jun-13 10:10:48

Right, that's it, I'm going to set my alarm for 6.30am every day from now on, so I can take my tablet. Can't believe how awful I felt yesterday just from taking it late. Thanks for the advice/experience hyper.

sally I think the tablets are meant to start working pretty much straight away? sad Also, my GP mentioned Ondansetron, and rang through to our local hospital (I'm in the South West) and they confirmed they only administer it in hospital. Fingers crossed it's different where you are and you can get your hands on some. Hope you have a better day today (sounds like it couldn't get any worse for you, you poor soul).

Lucinda thanks for the kind words. You're absolutely right that I shouldn't put any pressure on myself, other than to just get by day by day. I guess that's all any of us can do.

I'm off on holiday any minute. Not sure if I'll get internet access where we're going, so I'll say "bye bye" for a week now just in case! My sister text to say maybe the fresh sea air will help? hmm At least I'll get a change of scene/different toilet to stick my head down wink

Sally8655 Thu 20-Jun-13 22:11:14

Well so far procloperazine not working but it's probably too early to tell, although the doc did day I would feel relief almost immediately! It's been a few hours now and can't stand the thought of having anything to eat. Had a few sips of water and nearly brought that up too.
Hopefully the ondansetron will help relieve some of the horrendous diarrhoea I've been experiencing so havnt really given the possible constipation a thought yet. Ill take anything other than 24/7 sickness and dizziness. Nothing could be worse. I just hope I'm able to get them prescribed now. I probably shouldn't get my hopes up!

Hyperhelpmum Thu 20-Jun-13 21:59:09

Yes I agree that timing of pills crucial. I used to set my alarm to go off at half six so I could take cyclizine and hopefully eat at 7-7.15 ish when kids woke. Then started to feel horrific by 9.30-10 do ondansetron then more cyclizine at 1 etc. it was a foul, desperate, hideous existence of desperately trying to keep something in whilst feeling like death/ zombified from cyclizine. Now I just try and rest and take a tablet if desperate but can't stand the zombie effect. Poor early birds in those first weeks. I was the illest I have ever been and couldn't even shower but it has passed and I'm just settling down with my brand new sleep geenii pregnancy pillow feeling a bit better! So comfy and so glad I treated myself and my tiny bump! Night all.

SlinkyB Thu 20-Jun-13 20:31:22

Hi Sally, I started off with Metoclopramide which gave me diarrhoea, then Cyclizine which knocked me out, then finally got my hands on some Proclorperazine, which my friend had raved about. Unfortunately, I didn't find it helped at all, esp with my poor appetite. So have settled on Cyclizine as I can usually eat and drink on that, in between naps. I think the tiredness is down to 1st trimester rather than pills. I hope they work for you.

I'm 9wks today, but was in hospital getting IV fluids exactly two weeks ago, so I do think you're currently at the 'peak' I'm afraid.

Loved your description of how you felt in the early days hyper! Bang on.

I've been bed bound again today. Felt hideous. Finally just thrown up and it was such a relief. Had very little appetite today, have had to force food and drink down. Am thinking it might be because I took my first tablet late this am? I've been taking them at 6/12/6, but didn't wake up til 8am so took it then?

LucindaE Thu 20-Jun-13 20:27:40

Sally Welcome, you have been through it already, IV so early- glad you are going to try and get Ondansetron, sorry, but do have a locked up bowels contingency plan as that is a side effect, those suppositories are good, I believe...
Loub Lovely about scan, that should cheer you up. I hope your Hyperemesis goes at the twenty week mark...
mrsmgaw Nice to hear form you, but so sorry you are still suffering. That is a big weight loss in a few weeks.
Slinky Don't be hard on yourself, don't expect anything of yourself but getting through it, and for sure This Too Will Pass, though it seems it never will.
wavesThanks for that lovely supportive post for Slinky. I found I did have energy back at fourteen weeks, and was much better.
Flo and Everyone I so agree about the nausea being hideous and soul destroying. I hope it eases for you and everyone asap...
RNJ So sorry, I scribbled a message for you and can't read my awful handwriting. It's coming to something when I can't read it myself...
Hyper Good luck for scan, and that should cheer you, too.
Hugs to all. Apologies to anyone rudely overlooked.
Lucinda
xx

Hyperhelpmum Thu 20-Jun-13 19:07:23

Hi sally I found nothing worked apart from ondansetron which can be hard to get hold of, consultant prescribed it in hospital for me. I was diagnosed at 5 weeks and was at my worst weeks 6-9. Even ondansetron was not fail proof but allowed me to keep some fluids in. Still feeling sick daily but it's no where near as intense or debilitating as in the early days. More like a hangover sick than an 'I'm poisoned and will die soon, please, let me die' sickness (how I felt at start!).

Sally8655 Thu 20-Jun-13 17:41:09

Thanks for your replies, I've taken a procloperazine and hoping it will help. Had no relief from either promothezine, cyclizine or metoclopramide. Going to see my midwife tomorrow, will ask about the ondansetron as a few say it was the it one that helped.
The procloperazine has dissolved and hoping it will stop me from puking this evening! I don't know what's worse though, the constant nausea or act of physically being sick :-(

Tallyra Thu 20-Jun-13 17:38:13

Hi Sally, that sounds like I was, it tends to hit at 6 or 7. Don't be afraid of trying different meds - everyone is different. for some it's meto, some cyclizine and dome only ondansetron touches it. Keep going. grin You are doing fine.

Louh12 Thu 20-Jun-13 16:36:05

Hi guys sorry to read some of you have been suffering. i have had a couple of bed days where i have felt drained. But have managed to eat dry pitta bread which is nice lol. Aww Scans are soo exciting i have my 20wk scan in 2weeks and cant wait to see what we have been blessed with. Sally i personally have only tried cyclizine and metoclopramide myself and daily take metoclopramide but resort to cyclizine when im feeling really bad. I was also diagnosed at about 7+5 weeks when admitted to hospital

RNJ3007 Thu 20-Jun-13 16:27:41

Hi Sally, I tried it. Didn't work well for me but took the edge off. I had cyclizine, metaclopramide, prochlorperazine and a couple of others before ondansetron finally gave me some relief and my weight loss slowed.

Hope you find something that works soon, HG is bloody rubbish. I'm 30w tomorrow and so sick of being sick and nauseous and exhausted.

Today's 'exciting' vomit situation had to be the mid-lecture on the 'futur simple' into the thankfully empty recycling bin. Poor Y9!!

Hugs for you hyper, I feel your pain.

How are you waves?

Sally8655 Thu 20-Jun-13 16:07:10

Hi
I'm new to this and think my question got lostearlier, I'm only 7.3 days pregnant but already been diagnosed with hg. I've had to have IV fluids once and tried several types of medication. Would really like to know if procloperazine has worked for anybody. I'm really nauseas and dizzy 24/7 with no relief from anything. Don't feel better after throwing up either.

fl0b0t Thu 20-Jun-13 16:00:25

Just phenargen but it seems to be working. The other bonus is that it's an antihistamine and I'm super hayfevery

Managed to get out and bought some very plain fishcakes which went down well.

Hyperhelpmum Thu 20-Jun-13 15:32:12

Hi all, hope you manage to enjoy your holiday slinky. How are you feeling waves? Know what you mean about people disappearing as they feel better. It's just u and me from the April thread now! I agree nausea just as bad if not worse than puking. I get hardly any committing now but nausea is daily again. Also a cracking headache today that pain killers won't touch. Thinking I've had a huge hormone surge this week as had spots, return of sickness and now this head. Got my scan next week and can't wait to find out who is inside!!!! One small ray of sunshine on a horizon of gloom so far!

SlinkyB Thu 20-Jun-13 13:12:44

mrsm congratulations on the 12 week scan, can't wait for mine.

fl0 hope you get your repeat prescription soon - what meds are you on?

SlinkyB Thu 20-Jun-13 13:10:22

Thanks ladies, you're a great help and support. I feel like no one understands me. Dh is at home today frantically doing all the chores and getting ready for us to go on holiday tomorrow, but he's in a right grump with me as I've just been lying on the sofa dozing. Feel very dizzy and light headed today, as well as feeling likeII'm going to be sick. Feels like the Cyclizine isn't working...

Off for a week's holiday tomorrow. Luckily it's 'just' a 2.5hr drive and not flying, but I'm dreading the journey. Really can't get excited about it, when before I was really looking forward to it. Feel guilty that I don't have any energy or enthusiasm for anything, let alone dh or toddler ds.

This too shall pass, this too shall pass...

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