PLEASE NOTE: This topic is for discussions about campaigns Mumsnet is running or may be planning to run. It's not the place for promoting other campaigns or petitions. If you do that here, we will either delete your thread or move it to a more appropriate place on our boards.

Better Miscarriage Care - could you help with the renaming of ERPC (takes 20 seconds!)?

(72 Posts)
KateMumsnet (MNHQ) Tue 03-Jul-12 12:54:30

Hello

You might remember that we've been working with the Miscarriage Association and the Association of Early Pregnancy Units to find an alternative term for ERPC (Evacuation of Retained Products of Conception), a term which so many of you found insensitive and upsetting. Good news - there's been unanimous support from doctors, midwives, nurses and sonographers for finding a new name to describe the procedure.

Earlier this year we pointed you towards a survey which asked what you'd like the alternative term to be. The favourite amongst those on offer was 'surgical treatment of miscarriage', but many also unilaterally suggested 'surgical management of miscarriage', which wasn't one of the stated options at that time.

This phrase would fit in well with the terms already in use for alternative treatments - "medical management" (with tablets) and "expectant management" (or the natural process).

So could we possibly ask you one more time to follow this link and let us know which term you prefer? We know it's been a rather <ahem> extended process, but it's a super-quick survey and it would be great to get this as right as we possibly can.

Thanks,

MNHQ

BecsA Mon 04-Mar-13 22:15:03

I found this thread as I had to have an ERPC last week and found the name one of the most upsetting things to deal with - I had lost a baby who was very much wanted, not the 'products of conception'. I'm appalled that this term is still is use despite it seeming from this and other articles online that it was to have been changed some time ago - is there any update? I'd like to think that those facing this in future would have that one less thing to face.

ash6605 Mon 09-Jul-12 11:26:23

Missed abortion was the term that upset me the most, my work sick note actually implied I'd had an abortion sad

wimbledonisfuckingdull Mon 09-Jul-12 06:12:38

Done. Like another poster, I had six. It didn't bother ME too much as I nursed on the ward and used the erm ERPC daily. DH otoh, was gutted by it.
I see his point.

Wolfiefan Sun 08-Jul-12 17:35:40

Done. Thanks mumsnet. Term upset me when I had to have one.

pixiestix Sun 08-Jul-12 11:59:45

Done. Thanks MN thanks

Laurarj84 Sat 07-Jul-12 20:37:07

Done. Thank you.

Mama1980 Sat 07-Jul-12 17:00:14

I answered the question then read the thread, have to say I am also appalled at the idea that a woman presenting with bleeding but no pain etc would not receive a scan. I bled heavily during my pregnancy had dozens of scans, they were the only thing that gave me hope. The bleeding at 8 weeks was so heavy the dr told me I had certainly mc only for a scan to show my ds jumping away.

soontobemumofthree Sat 07-Jul-12 16:56:26

Done

KateMumsnet (MNHQ) Sat 07-Jul-12 16:09:58

AmandinePoulain - yes, we'll make sure all the objections are passed on.
Maples - Hmm, that's a good point about the title of the thread not alerting MNers to the proposed changes. We'll have a chat here and think about re-stickying with a different title.

lastnerve Sat 07-Jul-12 09:50:10

Done

I had a threatened miscarriage and was left in the main waiting room for an hour ,sat on a towel bleeding out everywhere, I can remember I took my preg notes with me and everyone was staring. plus the fact this hospital had big glass bay windows so everyone outside could see. that was very undignified.

maples Fri 06-Jul-12 23:53:49

Sorry to keep saying the same thing MNHQ - I am just so shocked and upset sad

maples Fri 06-Jul-12 23:13:50

Good posts Armandine - there and here. It's just so shocking isn't it? sad

I think the other thread title was a bit misleading right from the start sadly sad

I think there would otherwise have been even more posts.

At first the thread title included the word 'improving' mc care, the word mc didn't even show up on the iPhone app because the title was too long and then it was unstickied. The title also refers to those 'at risk' of mc /ectopic which is also somewhat misleading as the guidance also deals with the treatment of confirmed mc and this emphasis on expectant management is the biggest change in the guidance.

MNHQ could we please please have a sticky survey asking people how they feel about the unilateral change to expectant management?

Then you could feed back even more votes against, I would think

Sorry to be nitpicky about the thread title as I think your mc campaign is amazing stuff generally. What you have achieved with the name change is amazing thanks

AmandinePoulain Fri 06-Jul-12 22:00:38

I did, I was one of the first on there but no one from MNHQ has posted there for ages, I was responding to kate's last post.

igggi Fri 06-Jul-12 21:36:38

AmandinePoulain it might be worth reposting your comments on the other thread, in case they are overlooked on the ERPC one.

AmandinePoulain Fri 06-Jul-12 16:34:02

Kate can I also reiterate how appalled I am by both the recommendation of expectant management and the change in policy so that women who present with spotting without pain will not be offered a scan? I've spotted in all of my pregnancies - 2 have had a positive outcome, one not - and think that women presenting with any amount of bleeding should be offered a scan, not a pregnancy test (I still tested positive for weeks after my mc, a test when I started spotting would have told me nothing). Will you be feeding that point back as well?

Incaminka Fri 06-Jul-12 15:23:21

Done.

ICutMyFootOnOccamsRazor Fri 06-Jul-12 15:15:56

Done.

weasar Fri 06-Jul-12 15:08:46

Done. Thanks for making me aware of this MN thanks

freakydeaky Fri 06-Jul-12 13:12:06

Done. Well done Mumsnet. Totally agree with all the other posters who have said that the current term is distressing.

ladyinthelibrary Thu 05-Jul-12 19:47:32

Done, as DD1 has just experienced an ectopic loss today. Thanks you MN xx

008 Thu 05-Jul-12 18:35:23

Done. Thanks Mumsnet.

The words matter. I had a miscarriage last year, here in Germany and although the advice and care that I received were PHENOMENAL, I later received a bill (totally appropriate and correct) but ... from the Pathology department.

I know it shouldn`t matter ... but just the word Pathology...

Anything we can do to make this awful time just a little more bearable has to be worth the time and effort.

HurlerOnTheDitch Thu 05-Jul-12 15:29:14

Done. Thanks Mumsnet.

hanahsaunt Thu 05-Jul-12 11:53:22

Done. Tbh ERPC as a term/acronym didn't bother me. The SHO consistently and persisitently referring to my previous spontaneous miscarriage as an abortion I found abhorrent. I did complain.

Taffeta Thu 05-Jul-12 11:40:29

Thanks for the link to the consultation thread.

The NICE recommendation for expectant management is appalling.

From the other thread:

"The recommendation re: 7-14 days waiting for expectant management are particularly cruel: how can you function for that long, particularly in a working environment, waiting for "nature to take it's course". Employers will be unhappy about increased levels of sickness, as women are signed off, with their lives on hold & unable to work."

CouthyMow Thu 05-Jul-12 10:24:57

Done. Missed/spontaneous abortion is a phrase that makes me angry too. You choose to have an abortion, you DON'T choose to have a miscarriage.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now