Hi. I have 13 month old ID twin girls born at 33 weeks due to IUGR and discordant growth weighing 4lb 7 and 2lb 11. At our last reveiw with the Health Visitor she raised concerns that they were behind in their development and not meeting their gross motor milestones. Ironically twin 2, the smaller one is now doing great. She is sitting unaided and can confidently stand and cruise holding on to furniture. Twin 1 has just learnt to sit unaided at 11 months corrected and can crawl slowly. If you try to get her to stand she just folds. Was seen hoping that she was just a late developer or would need a bit of physio to get her going. Was seen at childrens multi disclipanary clinic were the Dr said that she had low muscle tone in her trunk and she would need to go to Physio. Dr then called me back after discussing with another Dr and said that they were sending her for an MRI scan to check to see if she had a bleed on her brain! Surely this can't be good? Dr wouldn't commit herself and said that she could just be a late developer or that there may be some other reason to her being delayed. She spent two weeks in Neo natal and was tested for everything and they all came back clear. Also when she was born they thought that she had Downs Syndrome but a blood test ruled this out. Surely they would have picked it up by now if something was wrong? Also they are going to recall my hospital notes to check for TTTS. We are now stuck in limbo waiting for an MRI scan and physio which could take weeks if not months. Just wondering if anyone else had been in this situation and what the outcome was. Googled so much that I now think that she could have CP but praying that I am wrong.
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