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Miscarriage/pregnancy loss

5th miscarriage and despairing...

11 replies

honey8 · 07/01/2009 15:22

I've just found out that I've miscarried again for the 5th time over 2 years. I don't know where to turn now as all the tests have come back normal. I have one daughter who is 3 so I know I can do it but don't understand why it keeps failing. I feel all cried out and alone as I don't feel that friends and family understand if they haven't been through it. I've been told I can now be referred to Prof. Regans clinic in London. Has anyone been there having had so many miscarriages and is it worth it? Do you have to go there lots?- I live 2 hours away from London and I've just turned 37 so I feel time is running out.

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VJay · 07/01/2009 17:13

Oh honey I am so so sorry. I don't know anything about the clinic sorry, hopefully someone will be along soon that does. I have read Prof. Regans book after my 2nd mc and found it very informative. Take care of yourself and my thoughts are with you xxxxx

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ladylush · 07/01/2009 17:30

V sorry to hear of your m/cs. I am 37 this month too and have had 4 m/c. Was told m/c much more common in women over 30.

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scamperT · 08/01/2009 23:57

Honey I am very sorry. You must be absolutely exhausted. I have had 2 mcs and don't know anyone who has been to Prof Regan's clinic, but the book has been recommended by lots of people. Maybe you could ring the clinic to ask how it all works, ie how may times you go? Sorry not to have more helpful info but I just wanted to post to say how sorry I am for your losses, and also to see if anyone else has experience of Prof Regans clinic, or other clinics, that they could share.

I hope you are being taken care of, sending you (((hugs)))

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blinks · 09/01/2009 00:02

sorry to hear this honey8- hope you can find a resolution.

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shazzaren · 09/01/2009 07:39

Hi, have you thought about seeing Mr Shehata and being tested for NKC?
Am 39, 4 mc in 15 mths, 1 DS so also know I can do it, had all tests, everything normal until I changed consultant to Mr S who is treating me for NKC, advising I take aspirin, metformin for my PCOS and progesterone upon a BFP next time.
Sorry about your losses, you must be in pieces, give yourself some healing time. x

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Northernlurker · 09/01/2009 07:50

At least go for the first consultation - Prof Regan has an excellent reputation and if you don't go I suspect part of you may always wonder if it might have made a difference. So sorry to hear what you've been through already.

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sue10 · 09/01/2009 08:55

so very sorry for you Honey, seeing Prof Regan might be a useful to have all level 1 tests carried out, as others have said she does have a good reputation. When i started my ttc journey a few years ago now i didn't know much to be honest and wished i had known about various clinics/consultants who might beable to help. Obviously only you can decide who and where to go but i just thought i'd pass on knowledge i have gained from girls on here and from other boards.

Prof Reg will test for level 1 (Chicago tests) but not level 2 which deals with indepth immune issues such as nkcells, th1 and th2 etc..

CARE at Nottingham with George Ndukwe,
ARGC in London,
Dr Gorgy in London,
all do the level 2 tests and use treatments such as ivig,humira,intralipids, steroids.

Takecare, give youself time and i am truly sorry.
XXX.

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MissLittle · 09/01/2009 18:01

Hi Honey. So so sorry to hear about your babies. Please don't despair. I have a gorgeous 5 year old boy who wouldn't be here if it weren't for the Recurrent Miscarriage Clinic.I read Prof Regan's book after my 2nd miscarriage and after my 3rd, i asked to be referred - it seemed to be the bset place to go. By then, we knew my partner had a chromosome translocation (worse case scenario)and suspected i had a blood problem. The clinic were fantastic - the tests were thorough and they always listened patiently to my many questions and worries. I felt that i was finally being properly 'looked after' by experts who knew more than me (i felt i had become a mini-expert on m/c, knowing more than my GP. I I live 2 hours from London too, and i can't deny that the weekly trips up weren't stressful and tiring - but so worth it! I had weekly scans until i got to 13 weeks, and saw a doctor and had blood tests for my APS every two weeks.I do think the reassurance i got from the clinic, together with the aspirin and clexane therapy, is what enabled my little miracle to be here. Please don't give up - whenever i look at my boy, i know it was all worth it. I had some counselling along the way - it helped me to put my grief in little 'boxes' in my mind. I still go there, when a memory is triggered, lift the lid and cry for my babies - they'll always be a part of me and in my heart. But i have to pull myself together and get on with living too. I have recently had another m/c with a new partner, which was very upsetting, and as i'm 38, i'm considering getting in contact with the clinic aagain. Don't give up, but give yourself and your partner time to heal before you jump on the 'rollercoaster' again. Sorry to ramble - new to Mumsnet! Good luck!
xxxxx

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honey8 · 10/01/2009 19:05

Thanks for all your messages. I have written to my consultant to ask to be referred to a London clinic and also spoken to LWH to get onto the nk cells trial. Feeling stronger about everything now and looking to find a way through this. Mind you had a moment today when in a cafe next to a woman cradling a 3 weeks old - just wanted it to be me!

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wu75 · 22/01/2009 20:56

hi there,

so sorry to hear about your loses. have you ever heard of 'foresight'? we had 2 mc and took their hair analysis test (look under the menu) they discovered why we were mc in 2 weeks of contacting them, after countless tears and loads of pain. we are now following a healthy regime set out by them and getting ourselves to optimum health before trying again. i cannot recommend these people enough, especially if you want a completely natural solution.

www.foresight-preconception.org.uk/

best wishes x

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Daynee · 23/01/2009 18:13

I'm a little worried I must admit, after reading many of these stories. I still have faith after 3 mc's (no children) that this happen very soon for me - or am I just kidding myself? I feel like it HAS to be something. I'll have test results in like 3 weeks and I'm like totally expecting to hear something because it just doesn't make any sense. I'm healthy, 31 y/o, uterus is fine...etc.
I'm wondering for those of you that never found anything wrong - what do the docs say - just bad luck, or bad eggs? Is it possible just to have like icky eggs or something? I'm just lost here

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