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Miscarriage/pregnancy loss

Hospital experiences

18 replies

Sabs1981 · 03/11/2008 22:40

From reading these threads it seems as if people have a lot of mixed experiences in the A&E departments, EPAU's and hospitals in general. I was wondering whether people would be willing to share their views on their NHS (not quite name and shame) but maybe in the hope that it can possibly help other people in the future who may be unfortunate to go through miscarriages in the future. It may also be the case that I am particularly interested as I work in healthcare regulation.

Regarding my own experience, I was at the Homerton hospital in East London.
I have to say the A&E department and EPAU there were excellent and the staff were very sympathetic and explained things to me in a sensitive manner.
However when I first started bleeding, I didnt know what was going on with my body, and when we rang the hospital, somehow managed to get through to the Delivery suite, where the person who answered the phone was so rude and cold and left me in tears, by leaving me with advice that if I was miscarrying, it was going to happen anyway, and there was no point attending A&E at that time (it was 6.30pm) because there might not be anyone there who could operate the scan on me.
I also havent heard many good things about the post-natal wards at Homerton so if I am lucky to get pregnant, I would only be too happy to have my appointments there up until the point of delivery (!)

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louisesh · 03/11/2008 23:36

Hi SABS1981 again.I too work in healthcare for my sins!!! I m a specialist sister in sexual health in a hospital in west yorkshire.Sorry to hear about your poor experiences from nursing/admin staff.My experiences from the orginal sonographer to the EPAU staff to the ward staff were all absolutley fantastic.I don t know if it made any difference my profession however, sometinmes when staff know you re a nurse it can work against you.The staff i encountered all treated me the way i would treat my patients and for that i am grateful upon reading the varying account on these sites.

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rubles · 04/11/2008 10:46

Sabs1981, I have a fair amount of experience with the RLH in Whitechapel unfortunately. I have had 4 pregnancies that I have seen them for.
For me I have found it pretty good, but it has varied very much on who I was seen by, I have a favourite lady there and the rest can be hit and miss. It has improved though, as before there were only curtains around you when you were talking to a nurse after a miscarriage so no privacy at really, whereas they took me to a room this time.

However, I am not happy that after both my miscarriages they haven't offered me a picture of my baby. The first time I REALLY wanted to hold on to a picture that they were keeping on file, it was of the baby at 8 weeks and despite the fact they had three pictures they wouldn't let me have one and at that time it was very important to me. They didn't offer this time round either but I wasn't so bothered for some reason - I do think it should be offered to women.

The 'care' offered during/after my D&C was pretty poor though. When my dp asked for some tea and toast after the op, as I hadn't eaten for 21 hours at that point (the op was very delayed) he was told briskly by the nurse that she was in a staff meeting and I should have to wait - an hour later the tea and toast arrived. No apology.

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rubles · 04/11/2008 10:46

Oh, the postnatal care doesn't seem to be good in many places, btw, so Homerton is pretty normal on that score I think.

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cmotdibbler · 04/11/2008 10:53

I was at the Princess Royal, Haywards Heath for my 3 miscarriages, and had 'care' at the Royal Sussex, Brighton in my 4th pregnancy.

It was terrible, and the level of crapness had to be seen to be believed.

I made a formal complaint about it all - and they lost my complaint. Eventually I got a response which only emphasised how they just didn't get it. I would have persued it further, but was having a very stressfull (but successful) pregnancy and just didn't have the emotional bandwidth

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Habbibu · 04/11/2008 22:54

I've had extraordinarily good care at Ninewells in Dundee - not for m/c per se, but for loss of a baby at 21 weeks (anencephaly) and for a partial molar pregnancy. Everything on the m/c code of practice seemed to be par for the course there, and simple things like various exit doors from rooms mean that if you get bad news you don't have to walk back through the waiting room in the ultrasound dept, etc. I didn't know quite how good it was until I read of others' experiences.

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Sabs1981 · 06/11/2008 23:04

Thanks for sharing your experiences, I am sure it will be helpful for other to read about.
cmotdibbler can't believe they lost your complaint! But totally understand why you didnt persue it further.
rubles agree about your point about having a picture. Would be nice to have anything as a momento like that. I didnt even think to ask at the time...
Would be so great if all the hospitals could adopt list of recommendations set up by MN

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fruitbowl · 08/11/2008 21:44

Hi Sabs

Sorry to hear about your MC

Have you seen this?

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Sabs1981 · 11/11/2008 09:32

Thanks for the link fruitbowl. Yes I have seen the recommendations and think they all hit the nail on the head. Do you know what the next steps with these recommendations are (or is there a thread on here explaining this?)

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ChillyTilly · 12/11/2008 18:45

I was at the QEH in SE London. I had a missed miscarriage and was offered medical management. I was told to come in on either The Thursday (that day) or the Friday for the first tablet and then you come back on the weekend (2 days after your initial tablet). I came in on the Friday, waited for 4 hours with my young son, to be told that they only have a place for 2 people on each day and they were taken. So I had to book for the following week and wait.

I was so upset about not being told the limited number of places available, and having sat there with all these women having scans etc for so long. In the end it happened naturally the following week. I just wanted it to be over and done with as quickly as possible because after a good cry I didn't feel pregnant anymore and didn't want to feel pregnant.

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HairyToe · 12/11/2008 20:43

My mmc was discovered at RUH in Bath. I couldn't have asked for a nicer more supportive treatment-in fact I emailed them afterwards to thank them.

The sonographer who diagnosed the miscarriage was very sensitive and caring through what was obviously a shocking and upsetting experioence for me and Dh. She made me an appointment the next morning to see a consultant and was very apologetic that there was no-one available to talk to me that evening.

Next day we came back to the hospital and the receptionist had obviously been given my name because as soon as I introduced myself she jumped up and showed us through to a separate waiting room away from the pregnancy scan waiting area, asking me how I was and generally being very reassuring. The consultant I saw was also very patient and kind as she explained my options and booked me in 6 days later for an ERPC.

On the day of the ERPC I was agin led straight into a separate room where a nurse explained what was going to happen and kept coming back to me to check I was alright and listened as I talked through my worries and sobbed. When I went into the pre-op room the anaesthetist asked me about my children and said how sorry she was this had happened. Surprisingly the consultant also came and spoke to me to express his 'condolences' and reassure me that it didnt mean anything was wring with me and if I wanted to I'd more than likely go on to have a perfectly healthy pregnancy.

In short I was treated with respect at every stage and what really surprised me was how every member of staff I came across seemed genuinely caring and treated me as a person going through a terrible experience and not just 'another patient'.

From reading other people's experiences here on MN I realise how lucky I was.

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Sabs1981 · 15/11/2008 18:17

chillytilly sorry to hear about your experience.

hairytoe RUH at Bath sounds like a really good place. But sorry to hear about your mc

I think that not only does it depend on the particular hospital, but what ethos they have, the type of staff that work there and also who happens to be on shift at the time...its such a shame that there are so many inconsistencies...

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silvermum · 18/11/2008 21:38

i wish i'd had positive experiences to report in London. (SW13)
I think the issue is not just with hospital care, but at GP level. the gps i've seen for my two miscarriages have been unsympathetic and dismissive. for my latest one there was a communication breakdown with the hospital, meaning the so called priority appointment i was supposed to have to discuss the results of a scan which suggested all was not well did not happen until i did some serious chasing up. the specialist i saw at the hospital (kingston) was professional but short on people skills. at no point have i felt comforted, encouraged, reassured or really cared for by any of the health professionals i've encountered for my two miscarriages. I have a D+C (ERPC) on Friday and really really hope that the staff will be nicer than i've experienced so far.

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Jools1 · 19/11/2008 08:29

I probably did things a bit strangely - but first pregnancy and when all the bleeding started, I was terrified and not thinking straight:

Range the antenatal dept at my local hospital where they'd done my booking in (I had no contact details for my midwife and had only seen her once at booking in)

The receptionist was lovely - put a midwife on the phone who told me to go to Watford General A&E and ask for Gynae A&E. This was not my closest hospital, but the closest one with any sort of capability for dealing with pregnant women

DP phoned his mother - told her I was pregnant , explained she wasn't going to be a grandmother and asked for a lift as he doesn't drive. We got very lost but got there in the end.

In A&E, I was told to go get a pee sample and then wait to be called. Loos being painted. Only alternative was disabled loo with a queue. I q jumped, as was having to change pads every few minutes. Not popular - told off by nurses and patients, burst into tears in the waiting room Couldn't get a decent sample anyway as was bleeding too heavily.

Seen by triage within minutes - wheeled round to gynae and blood pressure / temperature taken in waiting room (at least this didn't contain any obviously pregnant people) Found a loo that was kitted out for those miscarrying, with lots of kit to clean up with, disposable knickers and pads - impressed but wish someone had told me about it earlier.

Finally seen - lovely doctor but she asked me what I wanted her to do My response - I don't know - I was bleeding and terrified and told to come here" She couldn't tell me much except they don't scan after midday ! Internal exam, confirmed what I knew.

She said they would test the sample I'd provided. Cue lots of confusion - she thought it was a tissue sample but it was bloody wee She said they would throw it away. I got quite upset - said I could have saved tissue if I'd been told it would be tested - no real response and I've since found out from MN that they wouldn't generally test for a first MC anyway. Sent home with emergency numbers and lots of questions they couldn't answer. No painkillers. Just told to rest and drink hot drinks as I'd lost some blood. Told her I was dizzy - this was brushed off. Asked about BP - told it was low but that was expected

got a call from the EPU midwife the next day - agreed we would wait a day for a scan as I was still bleeding heavily. Had to phone them that evening due to severe pain (turns out I was having contractions and probably passing the sack - this was after an internal exam indicated there was very little left to come

EPU was also the dating scan area - cue a walk past parenting classes and a waiting area full of happy pregnant ladies Treatment and info in EPU couldn't have been more dignified, sympathetic and helpful.

Phoned my surgery when I got home to let them know - as I wanted to ensure my notes were updated and I didn't get called for appointments or scans. Couldn't get an appt so told the receptionist the hospital had told me to call. GP who phoned me back was absolutely lovely.

I didn't get enough information from anyone really (thank goodness for MN) That is partially because I now realise there are no answers to some questions. However, I wasn't prepared with what to expect and am surprised I was sent home, given the extreme blood loss.

I really feel as if I'd been better simply staying at home to let it all happen, then phoning later just to get a confirmation scan and do all the paperwork. The A&E visit seemed unnecessary and unhelpful.

Phew - this is long, sorry !

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HeadFairy · 19/11/2008 08:53

I didn't have the greatest experience at St George's in Tooting, which is unusual because every mw and gp I've spoken to has raved about St G's. I was pretty sure I was miscarrying, I'd been bleeding for a week, and then got strong cramps and passed clots. That was a weekend, so as I knew nothing could be done I left it until monday and then went to the EPU. Very similar story to others, staff were lovely, very kind and sympathetic, but the usual problems were there. No privacy, sitting in a waiting room surrounded by pregnant women, the scanning room led directly out on to the waiting area, so if someone has had a mmc, they have to walk out of that room straight in to a room full of pregnant women. I saw several women sitting there sobbing their hearts out.

I was quite shocked at one scene I witnessed, a woman who I guessed had come in to a&e miscarrying was brought through to the epu on a trolley. She was left moaning and writhing on the trolley for a good 15 mins while the staff worked out what to do with her. She was naked from the waist down and only had a sheet over her, which kept slipping as she was obviously writhing in agony, her poor husband was desperately trying to keep some dignity for her. The problem seemed to be that they couldn't wheel the trolley to a private room as the doors were too narrow, so they had to wheel her through the waiting area to a disabled loo where they could fit the trolley and get her to hobble on to a wheelchair. I could hear her yells as she moved over. All of this was watched with great interest by the entire waiting room. Poor woman!

There was also poor communication between the different (but related) departments. When I went to get my bloods done to confirm hCG levels were falling adequately, the first thing the phlebotomist said after reading my blood request form was "oh, lovely, you pregnant then?" Cue a depressed "not any more" from me. Doesn't take much to put a note on a form.

About a week after the mc I got three letters with appointments for mw booking in appt, nuchal scan and bloods appts. Not terribly nice having to ring up a department to say I'd miscarried and wouldn't need those appointments. And that was after the mw who saw me in the EPU had promised to cancel those appointments. Again, so easy to avoid, but seems quite a common experience for many people.

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Amiable · 09/12/2008 11:26

Just wanted to add my positive experience regarding post-miscarriage care at Barnet hospital - be warned - TMI!

I was 12 weeks pregnant, I had a small bleed and passed two small clots last Thursday early evening and called NHS Direct. The woman I spoke to was very sympathetic, put me straight through to a nurse (instead of the usual having to wait for them to call back). The nurse was also very sympathetic and respectful and at the end of the call (having arranged for an emergency GP to call me) she said "take care of youself", in a very genuine way - that meant a lot to me. The GP was also very nice, confirmed a "threatened miscarriage", recommended I rest and speak to my own GP the next day, which was what I expected.

However, I woke at 5am on Friday with a lot of abdominal pain, and at around 6.40 felt a "gush" - I clearly had miscarried. I called 999 - I was losing a lot of blood and clots, and the ambulance was there within ten mins (I live in north London, and response times are generally very good). They hooked me up to an IV, and after checking I was stable took me to Barnet hospital. I was immedaitely put in a private exam room, where every doctor or nurse that came to see me expressed how sorry I was having to go through this - I was asked exactly what had happened - having read up a bit about what to expect/what to do, I showed them the bag of "stuff" I had collected, they immediately went from "we want to check if you have had a miscarriage" to "you've clearly had a miscarriage,". They were respectful, sympathetic and genreally superb. When they examined me (a male gynae doctor, with a female A&E nurse as chaperone) they decided to keep me in as I was still losing blood, and my cervix was wide open. It took them a while to find me a bed, as they specifically said they did not want to put me on the ward with new mums/babies - instead I was put on the geriatric ward. As I left A & E the nurse who had been with me gave me a big hug, said how sorry she was and told me to take care.

The gynae doctor who came to see me on the ward was again very sympathetic, I really felt like I was being treated like a human being who has gone through something very traumatic, and not just a medical case, which really helped.

I was kept in overnight for observation, and came out mid-afternoon on Saturday. I am now waiting for an ultrasound later this week, just to make sure everything is gone and there are no internal problems. I will be able to update you all when that happens.

I have no doubt that the exact way you are treated does depend on the staff - their own attitude, how busy they are etc, but I really felt that Barnet has a policy of treating women who have miscarriages in a very supportive and "human" way.

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WorzselMincepieYummage · 09/12/2008 14:26

I have had 3 miscarriages, two at eight weeks and one missed miscarriage at 13 weeks. I am also 24 week pregnant at the moment with a baby who's unlikely to survive.

My experience of hospitals has been genereally good. The 2 early miscarriages were at the John Radcliff in Oxford and i was treated as well as i could have possibly expected. The treatement of my Missed Miscarriage was a Russells Hall near Dudley and i was astounded by the respect and compassion that everyone involved showed us, it was asif they had been trained in saying and doing just the right thing. It made a truly horrid time a little more barable and both me and Df really appreciated it. I did have to wait 5 days for the ERPC procedure which i found hard and thought was far to long but its just one of thse things i guess, it didnt affect me in the long term as i am sure lack of respect for my emotional well being would have.

This time we're expecting a boy but due to extreme premature rupture of membranes at 22 weeks we have been told its unlikely his lungs will be developed enough to allow him to survive when he's born, there is hope but if i am honest very little, after a prem birth, 3 miscarriages and 2 1/2 years ttc i struggle to have hope. Anyway, My care this time has been good, My consultant has been straight talking and honest with us and thats exactly what we need but i do think if they had been more proactive in my care from early pregnancy then we wouldn't be in this situation atall.

Some of the stories i have read on here about the way women have been treated make me want to cry. All women who are going though such a hoffific time deserve to be treated with utmost resect and dignity.

So my hospital experience has been good but i can honestly say my experience of GP's regarding miscarriage or the grief surrounding it leaves a hell of a lot of be desired.

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catsmother · 09/12/2008 21:10

I have had 3 m/cs - in Dec 2001, Sept this year and Nov this year. I went to the Lister, Stevenage, each time as I was in pain, bleeding heavily and passing clots.

The 1st time I sat in A & E - distraught - for 4 hours. After an initial assessment by the nurse, I was asked to move from the main waiting area to a seat in front of the treatment cubicles ..... to this day I do not know why, as when I was finally seen hours later, I was moved up to the gynae ward, where I was kept in overnight due to very heavy bleeding. The thing was, sat in amongst the treatment area I could see all the goriness of what was happening to other people ..... this included a teenager 18 or 19 completely off his head and vomiting everywhere, who was being treated with the utmost compassion and tenderness by a nurse who never left his side (I guess in case he choked) .... but it was a bitter irony that I sat there in front of the noise and smell of something which was almost certainly self-inflicted, witnessing sympathy, while I felt helpless, uninformed and ignored as I was losing my baby. In hindsight this was completely inappropriate and of course I should have moved - what was the point of me sitting there, but you do what medics tell you to don't you and I wasn't thinking straight.

So .... on that occasion, once I got to gynae I was examined, and treated, with respect, but there seems to be a serious gap if you arrive at the wrong time when you are left to flounder in great distress for hours on end. There would have been, you'd imagine, somewhere I could wait in private, given what was happening.

2nd time I was examined but had to come back the following day for a scan even though I had arrived in the morning. It would seem that the EPU scanning has a very small daily window even though it is in the maternity unit and therefore not reliant upon using the machines in the radiology dept. I still don't understand why, when you're desperate to know one way or another, you could not be seen in the general radiology dept .... in some respects this would be preferable as in the maternity unit there are, not surprisingly, a large no. of pregnant women wandering about and even in the EPU, you wait with women who are obviously there for happier reasons (going by their demeanour and smiles). I don't accept that a trained radiologist can't confirm what women in my position need to know as soon as possible. I'm guessing that maybe they are so strict about being scanned in the EPU in case further medical treatment is required and you'd therefore be in the right place to arrange this ..... but jeez, a phone call would be all it'd take if that was the case surely ?

I was examined the 2nd time by a very brusque, (probably) recently qualified (she seemed very young) female doctor who took no time to explain what she was doing, and simply said "sorry, you seem to have miscarried", followed by "do you want a leaflet ?". She seemed embarrassed by it all.

Oh - and for some reason, the 2nd time, they insisted on putting one of those tap thingys (can't remember the proper name) into a vein "in case I needed any fluid later" ?!? ..... before I'd been seen by gynae, and which, when it was taken out after, bled very profusely (literally dripping) all over my top and coat, not to mention their floor. Like I hadn't seen enough blood.

In contrast, just 11 weeks later, my 3rd experience was very different and the "best" if such an adjective can be applied to such a dreadful occasion. I was taken up to Gynae almost immediately and examined minutes later. No stupid tap thing. My heart sank when I saw I was going to be seeing a male doctor but in fairness he was really sympathetic. He took a much fuller (than before) history before examining me, and explained exactly what he was going to do - speculum, swabs, cervix open or closed and so on. When I sobbed and sobbed during all this he told me I had nothing to apologise for (previous doctor ignored me) and when he'd finished said "I am very sorry but I'm afraid it does appear that you have had a miscarriage" and explained that he'd found not only clots but tissue as well. I asked if I could see which he was happy to do and I had actually passed the sac which I recognised from the time before. He then said that this would be taken to the lab to double check there was nothing "missing" - as well as the scan obviously - and he had already booked me a scan "just in case" before examining me so I was able to be seen the same day.

The other thing which happened - which was in complete contrast to before - was that he bought me forms asking for my permission for the "products of miscarriage" to be examined and which also stated that they would be "respectfully" cremated with a chaplain in attendance. This last bit I am rather sceptical about - it was a 7 week m/c, and nor I am the slightest bit religious - but - I really did appreciate the respect that was being shown to my situation and the recognition that this was not my appendix but a wanted baby. This same doctor didn't scurry off as quickly as possible either, but made a point of asking me if I had any further questions. In all, I couldn't fault him.

My post m/c experience with my GP has also been good. I know you are asking about hospitals, but I was pleasantly surprised at how sympathetic and supportive he was when I asked to be referred (I know there's often NO discernible reason but I want to rule everything out and feel I've done everything possible). I fully expected to be sent off with a flea in my ear given I am 44 and do have 2 children already.

IME, it does seem that your treatment is luck of the draw and depends on how busy the hospital is. The point is though, what needs to be recognised is that a miscarrying woman is a grieving woman and should be treated accordingly by being given privacy if at all possible (this is also for practical reasons if you are bleeding very heavily). Where do you draw the line regarding grief ? ..... I'm sure that people who'd just lost someone close to them, or who are in the process of doing so, wouldn't usually be expected to wait "in public" as it were, amongst other people laughing and joking etc.

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hobnob57 · 09/12/2008 22:18

I've just been treated for a missed miscarriage in Aberdeen and really couldn't fault them. I had a small bleed on Friday, so phoned the labour ward number on Saturday. I got put through to a different ward, which I think is probably the equivalent of the EPUs some people have mentioned. They booked me for a scan on the Monday morning.

The ward was calm, serene, and supportive (even carpeted, which seems to make a difference to the ambience). All rooms were single and there was no waiting around in a public area. I was given a room to wait for my scan, which was done in a room on the ward (I think it's only available on weekday mornings). The sonographer was very sensitive and apologetic when they couldn't find a heartbeat. Back in my room, a midwife apologised for my loss and took me gently through all of the options available to me. She gave me some time on my own and a cup of tea to have a cry, a think and decide what I wanted so I was able to call DH and my mum to explain the situation.

I was booked in the next day for an Erpoc. Everyone who came in to see me during the day was very caring and keen to explain everything that was happening. I was given a choice over whether the foetus was disposed of respectfully routinely or cremated, and of whether I'd like my community midwife to follow up with me.

It really was a very caring and sensitive experience and made the whole ordeal very manageable. No photos offered though.

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