Partial molar and molar pregnancy support thread - all welcome!

(497 Posts)
MrsJohnDeere Wed 28-Nov-12 11:06:13

I thought I would start this thread as a place where anyone who is going this or has gone through this in the past could share experiences, vent about life, etc.

After a MMC at 12 weeks and an ERPC a few weeks ago I've just found out the cause was a partial mole. I've been referred to Charing Cross and am waiting to hear back from them to start the monitoring etc.

I know the chances of cancer developing are about 1/100 but I'm still struggling with the 'OMG I'm going to die' feeling at the moment, plus the grief and stress of the miscarriage itself.

I haven't told anyone in RL, other than dh, even friends who know about the miscarriage. I'm worried abut how they'll react and that I'll end up blubbing.

Rosie112 Mon 21-Jul-14 22:27:08

rascalrae I'm so glad that you're feeling more positive this week! I think that is the biggest battle. If you're looking for inspiration pick up a copy of Carry on Warrior too. That one helped me remember that I can be strong even through the hard things. I hope that you were ok this weekend, it is not easy being surrounded by women who are where you want to be when your own future is so uncertain. FX for low results at your next test!!

pip Wow! Thank you for coming here to share your brave story with the women on this forum. Hearing stories like yours and knowing that you made it through and are even willing to help us out is so amazing. Thanks so much for joining this support thread. I hope that you and your husband are doing well and that this year flies by for you. I know when you're staring down a set amount of time to wait that it seems like it will be forever.

Sophia First, I'm sending you a big hug. I have been where you are and it was devastating. I am so so sorry for your loss. One of the crap-tastic things about having a molar pregnancy is that you still have the hormone in you body and it takes a while for everything to balance back out. I know that you are anxious right now about all of the possible outcomes, I was certainly feeling quite scared. But, whatever happens, you will be just fine. And it's good that you had a partial because all of the statistics are much lower with that diagnosis. Have you been able to find any information about all of this? As for the blood tests, I went every week but it sounds like a lot of the ladies go every two weeks. it might be worth asking why yours are monthly. Maybe your numbers are already so low that they don't think you need them more often? I hope thats the case. Please know that this is a great place to find support. I don't think I would be able to get through this without all of the kind ladies here sharing their stories and making me feel less scared and alone. 'nother big hug smile

Sophiabella2010 Sat 19-Jul-14 02:52:20

I just had a miscarriage 3 weeks ago. Found out yesterday at my d&c follow up that it was actually a pmp from the pathology reports. I'm waiting now anxiously to see what my hcg levels are. I didn't get much bleeding after the d&c but now I have cramping and sore breasts. Not sure if its my period coming or just having a lot of hormones in my body from the pregnancy still. I'm really nervous and hope my levels will drop on their own. As I do not want to have chemo. My ob said they will check them once a month, but most people here seem to be getting them checked every 1 or 2 weeks. Is it odd for them to check every month? It's been so hard going through this. At first my ob told me we should wait 3 months to ttc but now since it shows it was a pmp she wants me to wait 6 months. I'm so depressed and can't seem to be positive at this moment. I have a 3 year old daughter and hate having her see me sad. But I need to stay positive for her and my hubby.

rascalrae Sat 19-Jul-14 01:42:35

Gosh pipt00k your experience sounds really scary. Great that you're now back to normal & you and your hubby are keeping positive and focused.

I have a question for all you ladies about bleeding. I bled for nearly 3 weeks after my ERPC, some very heavy, some more like spotting. It stopped for 2 weeks and I thought that was the end, but it started again today with some clots. My first urine sample showed a hCG of 1.45 which I was pleased about as its very low but I have to wait to see if it will go down. Is it 'normal' to have bleeding & clots start up again? I imagine it is but I wanted to check with others. I'm still testing + on hpt so I know it's not a period. Should I just get used to these random bleeds & stockpile some pads?!

pipt00k Fri 18-Jul-14 02:20:34

Just stumbled across this thread today while doing some googling, and thought I would add my story.

I had a complete molar pregnancy in November of last year, and it was discovered in an ultrasound at 12 weeks.
My HCG had skyrocketed to an astounding 1,800,000 (OBGYN said he had never seen one so high...) and I had been so incredibly sick with morning sickness that I lost 9kg (56kg to 47kg) in a month from not being able to keep anything down.
I had a D&C (what we call a ERPC here in Canada) that same day in the hospital because I was basically an emergency case. The numbers were so high and the mass of cysts so large I was considered a high risk case. Two months of weekly bloodwork followed and at first the HCG dropped really well, which was really encouraging. it dropped all the way to 2,000. Then it plateaued, and finally it started to climb.
I started chemo in January of this year, a combination therapy of methotrexate and dactinomycin simultaneously. It was admitted in two week cycles (in the hospital for three days every time), and thankfully I responded well. I had five treatments (methotrexate drip for four hours, plus a shot of dactinomycin on one day, and another shot of dactinomycin the second day).

A CT scan at the end of it all revealed that lesions in my lungs that were visible in the first CT scan before chemo had disappeared, and were likely an indicator that it had already spread to my lungs. I am very thankful for my medical team to responded quickly and aggressively in my treatment and I am now consistently at 0 for my HCG counts!

I finished my last treatment at the end of March and spent about two months recovering before going back to work.

Now hubby and I just have to wait a year until we can try again. It seems like forever but I know the time will go quickly and now I'm just focusing on building my health and energy again.

If anyone has any questions about my experience, please ask! I feel like I have experienced the whole journey of treatment and emotions and if I can help support anyone else I would love to.

rascalrae Thu 17-Jul-14 18:22:58

Thanks for the messages Rosie, Hels and Kitty. I'm feeling calmer and more ok with things this week. I've been reading the book The Happiness Project and focusing on positive things. Got a challenging weekend coming up though when I'll see a number of school friends who have children or are pregnant. Hope I can be brave.

Sounds like the advice at Charing Cross is quite different to Sheffield so really helpful to hear what you've all been told so I can ask more questions. For example, my letter from the unit said the probability of a further molar was 1/75 but I'm sure 1/100 is more accurate.

My first test result was quite low so providing it goes down, maybe it won't be as bad as I imagined.

How's everyone else doing?

Sending lots of good wishes x

Rosie112 Thu 17-Jul-14 16:35:45

Hi Ladies,

I'm just dropping in to see how everyone is. Sending love and support to everyone!

Big Hugs!

Kitty1000 Wed 09-Jul-14 22:32:18

I'm so sorry to hear everyone's news. I hope you all have good support around you.

Mrsp12345 - I would definitely ask for a scan if you haven't - you deserve complete reassurance beyond all doubt. I'm so sorry you got so far along without any warning anything was wrong. I also had no symptoms and everything was exactly as it was with my pregnancy with my daughter. I only found at at 7 weeks as we had an early scan for peace of mind, no other reason. It's awful. I hope you're okay. You're not alone!

Jenni - I have only ever heard 1/100 for a risk of another molar and when I was at Charing Cross I spoke to the geneticist for a long time who said that when it comes to a partial (which yours was suspected to be right?) the risk is actually lower than that. The risk of recurrence is more like 1/100 with a complete molar but for some reason they combine it into one. But she actually said the risk of another molar if you had a partial was actually more like the risk of the general population's anyway (which I think is anywhere from 1/600 to 1/800. I asked a few questions and pushed the Drs quite hard about what they know about the cause of the increased risk when youve had one molar and they said they dont know - all they have is the figures showing it happens more often. The reason I was asking a lot is because I had a partial and was thinking that if that was a case of two sperm and one egg (or perhaps even a double headed sperm, I think those can exist??) then surely the likelihood of it happening again is pretty rare and a freak thing rather than any predisposition to it happening? (unless the woman's body has a tendency not to recognise it's not viable and run with the pregnancy anyway). Whereas a complete might have more to do with the egg which could be what makes it more likely to happen again? Either way I still think 1/100 is fairly low, that's only 1% chance. I hope your husband comes round to trying again. It's really harsh how you were told as well. I hope you are treated better from now on.

Rascalrae - the wait time was the thing that got me the most too. But as Hels says it'll probably feel important to have waited a bit to process all the sadness and I'm sure it'll go quicker than you think. That said, if it was a partial the guidance from charing cross (one of the leading centres in the UK) is that you only have to wait 4 weeks after your first negative result. I originally thought I was going to have to wait much longer till it was confirmed mine was a partial. Are you in the UK and registered with one of the specialist centres? I hope your wait time can be reduced. I did a lot of research into this when I thought I had to wait longer and kind of decided I would only wait three months after negative as the risks of recurrence are so low then. It seems a lot of people dont wait and by the time you get pregnant if it doesnt happen straight away you could be through the follow up period anyway. I hope you get some better answers soon.

hels thinking of you - it must be so tough. I think you are so brave. I hope you are managing okay. I'm sure it won't be long until you can put your treatment behind you and move forward in a more positive direction. Always here if you need to vent.

xxxx

hels29 Tue 08-Jul-14 19:18:41

Jenni my understanding is that it's more like 1 in 100 chance of another, but again, better to get clarification. Likely your DH is just upset and that's his knee-jerk reaction? Hopefully he'll come round but also he should understand how much this means to you and that you don't get everything first time round. What are the statistics - 1 in 4 pregnancies end is some kind of miscarriage? - You can't just give up! ... I say half way through a course of chemotherapy ...

Mrs P - so sorry for you both. I'd simply ask to see the images of the ultrasound, it's totally fair you should have some sort of confirmation before you have the operation. I saw mine on the screen and although upsetting, at least you then know.

rascal yes, it's tough being told to wait but I suppose the way to look at it is that it's for your own health, so they can be certain you stand the best chance of a healthy pregnancy next time round. I'll have to wait a long time which is very irritating since neither of us are getting younger but I'm trying to focus on the fact that it'll give me plenty of time to get over the sadness of all this.

Rosie112 Mon 07-Jul-14 21:35:03

Hi Ladies,

I'm so sorry to see so many new names here as it means you are all going through a very sad and scary time. I have to say that this forum has helped immensely and so I hope our notes can all help you just as much.

Honey I am so so sorry to hear your story! I hope that you are getting the care you need at charing x. From what I've heard it is the best place to be if you have a molar pregnancy. I know that you must be scared and very alone going through these crazy emotions of losing a baby (even a surprise baby!) and finding out you have a molar pregnancy too. What I do know is that all of your ups and downs are normal. It is definitely ok to mourn your loss and please reach out for all of the support you need. Miscarriage has to be one of the most lonely things a woman can experience and a molar pregnancy is even lonelier. We are all here for you.

Amy I'm so sorry for your loss. I am so glad to hear that you reached negative HCG levels quickly though! That is a great sign and Kitty is right, I think you should talk to your doctor about your wait time since you hit negative so quickly. Sending you lots of hugs and hopes that you will soon be on the road to TTC again!!

Sunshine I hope that your 6 week check up went well!! I know the anxiety of waiting and the unknown can be really debilitating. Each week I think it will maybe be easier until I get some worry in my head that maybe I won't be ok at the next test. I'm sending a big hug your way and hope that all is well with you.

Jenni I'm concerned about how your doctor is handling this! It seems pretty insensitive that they didn't call you to follow up at all. Can you talk to your gynecologist about this and have a personal blood draw done? I hope you can get some information soon! And the chances or another molar pregnancy are only 1%. I'm not sure if this was your first but, I hope that given time and additional information your DH will reconsider TTC. I am so so sorry you are going through this, you have every right to feel like something has been stolen from you. I hope you get some clarification soon and are able to head in the right direction going down this bumpy road.

Mrs12345 I am so sorry for your loss. I understand the shock and confusion because I didn't have any symptoms either. I had a partial molar pregnancy so, we were able to see a heartbeat at 7w4d. I thought we were just fine! And then no heartbeat. I hope that you are getting the support you need and that you can find some comfort here. These ladies have seen it all it seems and we can definitely be here to hold your hand. Big hugs going your way!!

Rascal I'm so sorry for your loss. I know how shocking it is to receive the news that you have to wait to TTC after a miscarriage when all that you want to do is move on and be pregnant again! It is tough, I'm not going to lie. I count days and weeks and try to figure out when I'll be 'back on track' but, you will definitely get though this! Keep visiting us here and we will be here to listen to all the worries and fears and drag you from step to step with our hope and good thoughts for you. Hang in there lady, you are going to be just fine.

Hels How have you been? I hope your treatment is going well and your HCG levels are down. My levels are still going down and I got to skip a week because I was on vacation so fx that my next result is negative!

Kitty big hugs, I know you'll have some great news to share soon!!

oak pompey purple sending good thoughts your way and hoping you are doing well!

Here is a link that might help you ladies find some more in depth information:

www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=3&ved=0CDsQFjAC&url=http%3A%2F%2Fmymolarpregnancy.files.wordpress.com%2F2013%2F06%2Fthe-management-of-molar-pregnancy-for-patients.pdf&ei=2l1_U432KK7hsATd0ILoBg&usg=AFQjCNFRsZ-fTeh-EN_HCMjOLdv9OSK3LQ&sig2=px2WimHh675K4kyEeJmmSA&bvm=bv.67720277,d.cWc

rascalrae Mon 07-Jul-14 20:08:09

Hi ladies,
I've found out today that my recent miscarriage was due to a partial molar pregnancy, discovered when they tested the tissue removed during my ERPC. This was upsetting & unexpected news but the bit that has upset me most is that we would have to wait 6 months before trying again. I already feel so behind where I want to be & can't bear the thought of waiting so long. I don't have details of my HCG levels yet as I need to wait to hear from Weston Park. Is there any chance I might not have to wait 6 months? I know it could be so much worse but I feel such a hole in my life with the loss of this baby & I was hoping that focusing on TTC would distract me. Now I'm going to seriously need a new hobby! I've read a few posts on this thread but not quite ready to take it all in yet. I'm sure I'll be back to read in more detail once things feel more real.

Jenni2legs Sun 06-Jul-14 12:12:30

Thanks Hels, I will do that tomorrow.
The letter also said that my chances of a second molar pregnancy are now 1 in 75 and DH doesn't want to try again as those odds are too short for him, so feeling a bit like something has been stolen from me.

Mrsp12345 Sun 06-Jul-14 12:08:41

I everyone I've read a few messages and hoping someone can help / advise . We went for our scan this Friday I should have been 11 weeks pregnanct with our 6th child but was told it was a molar , I've never experienced this before and have no idea what type ( partial or complete ) , thing is I've had none of the symptoms that they said I should have had , I've not swelled up or got a big bump , no extreme nausea / sickness , no heavy bleeding or abdomen pain .. It's been just like my other normal pregnancies . She didn't show us the screen at the scan but they're booking me in this week for an urgent ERPC ... But I'm still not convinced , how can this be when it's presenting as a very normal pregnancy , I had my bloods done at 8 weeks and whilst I don't know the result of my hcg from that I know it can't have been extremely high or low as I've not heard from anyone . What do we do ? I'm so confused and heartbroken x

hels29 Thu 03-Jul-14 10:54:55

Hi Jenni, somebody really should have discussed and explained all this with you. You should call Western Park and say that this is the first you've heard of it and that you need a face to face consultation. You will need to know if it is complete or partial too.

I'm very sorry, it's a difficult thing to take in and deal with and can be a horrible shock. You will be fine, and although little comfort at the moment, at least they've diagnosed it now. Any questions, do ask.

Sending lots of love.

Jenni2legs Tue 01-Jul-14 20:42:52

Hi guys, well I waited and waited for a phone call - and today I found out I must have had a molar pregnancy as I received a letter requesting a urine sample 'following your molar pregnancy' from Western Park Hospital. I feel so sad about the news and devastated that nobody called to discuss anything with me.

I was told in my second scan that they 'thought it was molar' but it would be clearer in the surgery as they can usually tell if the tissue is molar by the formation. But nobody told me anything after, then I was told somebody would call me... and just to be left with this letter, which by the tone seems like I should know it was molar.. well it sucks.
\

hels29 Sun 29-Jun-14 12:01:03

honeybunny I was in Charing Cross a couple of weeks ago with a lovely girl who had a very similar experience to yours. What a terrible time you've been having! I definitely felt relieved when Charing X admitted me after two months of on/off bleeding and cramps. I hope you're feeling okay now and don't feel sick. Much better to be in your own room. Although I liked meeting the other women being on the oncology ward is not that lovely. Thinking of you and do let us know how it goes if you feel up to it.

sunshine - so nice to hear your story and particularly to hear that the first few cycles were the worst - I don't feel great at the moment but they've doubled by dose of follinic acid as I had some impressive mouth ulcers so hoping that'll make me less inclined to sleep 23 out of 24 hours.

kitty and Rosie thanks for your support! - how are your hcgs?

btw anyone had any advice about ibuprofen and methotrexate - i notice various websites say they can interfere with one another?

sunshineandflowers1 Sat 28-Jun-14 22:50:02

Honeybunny so sorry to read your story what an awful few weeks you have been through, the staff are great at charing cross though aren't they? Personally I found it a slight relief when I ended up there as I knew something wasn't right & local hospital/gp were fairly useless due to it being such a rare occurrence, I had started to wonder if I was going crazy so to be around people who knew exactly what I was talking about understood my fears & concerns was a comfort, I hope you respond well to the treatment & experience minimal side effects xx

Amy sorry to hear that you are also experiencing this but it's good that you have had a negative result and that your hcg appears to be down, it is so frustrating not being able to TTC, the only advice I can offer is to fill that time with positive things, this is certainly what I am trying to do xx

That's kitty & Rosie for your replies I am due to go for my 6 week check up next week so been feeling a little anxious about that but I am sure all will be fine & hopefully after it I will feel able to close this chapter and enjoy the next year before TTC again.

Have a good weekend all x

honeybunny49 Sat 28-Jun-14 16:18:07

Thank you for your support.
I'm in CHX now, got admitted yesterday as had 2 massive bleeds during night and again at Margate hospital as I went in there first yesterday. I got transferred t o CHX by ambulance with siren and flashing blue lights... woke me up to the fact I was ill!!!
started chemo last night. Ultrasound showed a big mass again in my womb had grown back in only 4 weeks. No wonder I was bleeding so much,
In here for a week, all the staff are friendly and really nice, I'm in a private room so that's loads better than being on a main ward. On 48 hours bed rest but hopefully if bleeding ok can move about more then. Nice to have own shower room and privacy.
So far no side effects except feel shattered. Been given mouthwash. eye drops and anti sickness tablets. hopefully i'll be lucky and escape anything too bad.
Anyway, I'd better go, feel another nap coming on! xxx

Kitty1000 Fri 27-Jun-14 17:31:50

*supposed to say and not DVD! Sorry

Kitty1000 Fri 27-Jun-14 17:31:25

honeybunny so sorry I didn't see your message when I posted my last one. What an awful traumatic experience for you. I'm so so sorry. I totally get how you feel you'd lost a baby even though you hadn't known for long & I'm so sorry you had the added stress of complete moms, bleeding & problems with your hcg levels. I know you'll be in safe hands with charing cross and there are lots of ladies on here who have bravely shared their experiences of treatment if it does go that way for you. It's certainly okay to cry DVD even now im mostly out of the woods and feel I got off quite lightly in the end I still have very down days where I really struggle with it all. I hope you've got some good support around you. We're always here. All the best xxx

Kitty1000 Thu 26-Jun-14 18:16:03

Hey sunshine glad you were able to come back and share your experience. It must be all-consuming. You're very brave. And sharing here is so helpful to others. Thank you for that. I hope you're doing ok. I'm glad speaking to others was so helpful. I find this thread an incredible source of support. We're such a small minority of women coping with this, we've got to stick together.

Amy I'm so sorry this happened to you too. What an awful shock. I had the same - was told I could try again and started to (in fact I think I may even have had a chemical pregnancy 4 weeks after my d&c) and then found out 7 weeks later I'd had a molar pregnancy. I was initially told mine was a complete too and my levels dropped much slower than yours. I only just got to negative recently and my d&c was the end of march. However if I did have a chemical pregnancy that could explain it. I think levels drop at very different rates in different people a it's great yours were so quick to get to negative. I'm assuming then that you got there within 8 weeks of your d&c date which means you only have to wait 6 months from the date of the d&c with a complete I think (that's charing cross's advice). So does that jean you only have 4 months or so to wait now? I know when I thought I'd have a 6 month wait there was no way I could wait 6 months so I never really intended to. A few of us did some research and it seems once you're at negative it's safe to wait only 3 months as chance of recurrence then is very low. It's a personal choice but I did feel the wait time was arbitrary. Also when I went into charing cross they said that they have so much research now that they're confident they can soon cut the wait time for a complete and they cut the wait time for a partial recently because of research. It's all just based on risk so if you feel confident and you've got negative naturally then it's probably ok. I also figured that by the time I actually got pregnant id be out of the follow up period anyway. I hope this helps a bit. I know how hard it is to be told you have to wait when all that could make you feel better after a miscarriage is being pregnant again. Do come back and update us on how you're getting on.

Hels thinking of you & hoping you're ok.

oak and pompey same to you both!

Rosie a drop is a drop in the right direction, however disappointing. I'm sorry. But hang in there. A small drop at this stage isn't unusual. You'll get there.

Hugs to all. We will get through this and we'll all have our good news soon (I'm particularly struggling at the moment for some reason and feeling very desperate to be pregnant again.)

Lots of love to you all xxx

Purplefrogshoes Wed 25-Jun-14 23:11:46

honeybunny I'm so very sorry, what an awful time you have had. Do try and rest as I found that really helped with the bleeding. Of course it's normal to be upset, I think I cried for months, for the first few weeks I was completely unable to function, just wanted to hide from the world. Hoping your hcg has dropped. Look after yourself xx

honeybunny49 Wed 25-Jun-14 12:05:09

Hello everyone, I've read all the messages on here looking for others experiences. I have had a rollercoaster 6 weeks and am barely getting my head around what's happening in my body.
I'm 47, 48 next week, so expected to be starting the menopause soon. I started bleeding on feb 27th and expected it to be a normal period, light and only lasting few days. I had been feeling sick for about 2 weeks before and period was 2 weeks late but didn't think for a moment I was pregnant, esp when bleeding started. It continued and continued and I stupidly ignored it for months until I finally went to the doctors on may 12th as I had started flooding. He referred me to see gynae on 2 week max emergency appointment and I got appointment for 23rd may and ultrasound for 21st may. at ultrasound nurse simply said something in womb that could be causing the bleeding. At gynae appointment he did internal and said mass approx. 16/18weeks size. I mentioned sickness that by then I had been having nearly every day but said not linked to see GP as separate issue. Said I would need hysteroscopy and MRI immediately, made me think I had cancer of the womb. On the following wed go call at work that I needed biopsy on the Friday again cancer ??
So went for hysteroscopy on 30th may. admitted at 7am had to do urine sample. At 7.30am nurse came back saying couldn't go ahead with it as I was pregnant!! Was massive shock. I kept saying surely I can't be with bleeding for 3 months etc and would have been picked up at ultrasound. Another pregnancy test done-positive, then blood test-positive. Had several nurses approach me to congratulate me. Saying to ring my partner to tell him exciting news and get him to collect me. I refused as not type of news to tell over phone! They said they would do an ultrasound to give me a due date. waited 4 hours on my own in hospital bed, actually excited, even at my age of having another baby. (I have 2 who are 19 and 22) Even though there were black doubts that it couldn't be alive I was hopefully stroking my tummy praying he/she was alive. When I finely went in for scan even the nurse in there had been told I was pregnant and was obviously mortified to have to tell me there was no heartbeat and no baby. I was in total shock and didn't really take in her talking about molar pregnancies etc. I returned to the ward and laid in bed trying to absorb what had happened that morning. I text my partner to come and get me. A registrar from EPU came to see me to explain more but didn't take it in. The nurses who had been congratulating me previously were coming back to say sorry. Partner arrived and I tried to explain to him. he was relieved not cancer but couldn't and still doesn't understand why I feel I've lost a baby when it was only cells and I didn't know I was pregnant and we didn't want a baby at our ages anyway!
I had to go home and return the next morning for an evacuation. Had it as first patient so I could be discharged by lunchtime, was still there at 7pm!! When I went into theatre the antithesis asked how did I not realise I was not pregnant?? I replied well my GP nor gynae did who are highly trained in medical matters didn't even when they knew my symptoms so why would a mere mortal like me!!?? Then surgeon came in and said he was very excited to be doing this procedure as never seen a molar pregnancy at 18 weeks as most miscarry before 6 weeks or are picked up in 12 week scan..... so pleased he was excited!!
I was signed off work for 2 weeks but emotions were all over the place and had another week off work as slightest thing would set me off and I have quite a stressful job dealing with the public and couldn't have coped with angry customers!
Last wed I got call from hospital saying complete molar and could I go in next day for blood test which I did.!19th june. Bleeding had gradually been tapering off and stopped same day.
Pack from CHX arrived at weekend to start blood/urine tests. very quick compared to what some of you have said on here.
Went back to work Monday. That night sitting in garden reading after a bath blood starting pouring out like a tap had been turned on. grabbed towel and shoved between legs to get to bathroom. in that time towel soaked. More poured down the loo, over floor etc. clots size of 50p pieces. when I'd cleaned myself and bathroom up I put in maternity pad (found them much better that normal types) and went downstairs. My poor partner was horrified at all the blood and insisted I rang CHX. Even though out of hours spoke to member of oncology team who wanted me to go into CHX immediately but I convinced them to let me go locally. I had to call an ambulance to take me. Stayed in overnight. My hcg was 10672. Retested next morning was 11494. They consulted with CHX who said to send me home as bleeding had stopped but to go back Thursday (tomorrow now) for another test if still high or gone up I would have to go to CHX to start chemo. been resting today but bleeding has started again and passed a massive clot. Will wait to see if I bleed more before I do anything but will pack a bag in case need to go into hospital again.
I had 2 very easy pregnancies and births and have never suffered with any PMT etc related to cycle so why now am I getting problems!!
Anyway better go and pack that bag just incase.
thank you to everyone on here for your stories. The best thing I have got from you is that its ok to cry and morn and its perfectly normal. xx

Rosie112 Tue 24-Jun-14 22:45:46

Hels, I'm so sorry you're going through that. Please know that we are all here for you! I hope you can adjust to the slower pace of life soon. Big hug to you lady.

Sunshine, I'm glad you felt able to come back to the forum and share your story and support. It's so helpful to hear from ladies who've been where we are and come out on the other side of this! And please do use this awful circumstance as the perfect excuse for expensive shoes ;)

Jennie, Hoping you were able to get some clarification! Hopefully you won't need us and the tests come back negative!

Kitty I dropped again slightly, but still a drop!

Hope you're doing well Oak and Pompey!!

Amylondon50 Tue 24-Jun-14 20:50:00

Hi ladies,

I've just found this thread which has been really useful.

I had what I thought was a missed miscarriage at the start of May followed by a erpc a few days later at 8.5 weeks. I was told at this time things were fine and that there was no reason to delay trying again. I did a pregnancy test post evacuation as a friend had been advised to do so. This came back negative 10 days after the procedure. I then had my period 10 days later.

I had a call 2 weeks ago to say that my histology had come back and that I'd had a complete molar pregnancy. Initially I was really freaked out reading online. I've since been in to talk with my local hospital and had blood taken and tested by charingx, which thankfully has come back normal. I'm now really struggling with the idea of having to wait 6 months and wondered what advise others had been given in this situation?

Thanks,
Amy

sunshineandflowers1 Mon 23-Jun-14 19:59:55

Hi ladies, I've not posted for a long time, unfortunately I ended up needing methotrexate and didn't really feel able to put things into words at the time. I am sorry that you also all find yourselves here but it really is such a great support network, I was also very fortunate in that I met a few other ladies in hospital who were going through the same thing, it really does help to speak to others who understand.

Hels I hope that the treatment isn't giving you too many side effects, I found the first few cycles to be the worst and then I suppose I got used to the idea of it and my body also adjusted, totally get what you said about a slower pace of life I'm currently doing the reverse and trying to step things up again and get back to 'normal', I hope that your levels are responding well to treatment and that you don't have to have too many cycles, thinking of you.

Rosie I love your comment about when life gives you lemons buy expensive shoes, very true & good advice!! Hope your numbers are dropping x

Jenni hope that you get some results soon, I ended up waiting a long time for mine and didn't have any blood tests in the meantime due to a delay getting registered at charing cross. Perhaps you can ask your gp to arrange some blood tests in the meantime for peace of mind if nothing else, I wish I had pushed and done this as it would have highlighted things and got the ball rolling much sooner.

Fingers crossed for you all xxx

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