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Life-limiting illness

dh diagnosed with terminal brain tumour , he is 44

46 replies

lu9months · 22/05/2014 19:20

and I have 3 kids. that's it really. no idea how to do this

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AnimalsAreMyFriends · 22/05/2014 19:22

Oh sweetheart, what devastating news.

I'm hoping someone will come along and be able to say something useful.

People here will listen if you want to rant or cry or just talk things through.

V unmumsnetty hug for you x

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MinginInTheRain · 22/05/2014 19:56

Oh my goodness. That is truly shocking. I hope somebody wise and kind comes along. Until then I can hold your hand.

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Fatmanbuttsam · 22/05/2014 20:05

Oh gosh, I don't know what to say but didn't want to pass by. I am so very sorry for you and your family

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vitaminC · 22/05/2014 20:06

Oh, you poor things Sad
You will get through it but I can imagine what a shock this must be. Plenty of hand-holding here Thanks

How much information have you been given? What type of tumour is it? What stage?

You may like to know that I have a childhood friend who was diagnosed with a brain tumour in her late 30s and given 6-12 months to live. That was over 5 years ago and she's still here, living life to the full and raising loads of money for charity!

Doctors' estimations are based on averages and there are always exceptions, so don't give up hope!

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tribpot · 22/05/2014 20:14

How utterly dreadful, lu9months. You may want to look at Macmillan Cancer Care and Brain Tumour UK.

Sending you all good thoughts and wishes.

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DeputyPecksBentBeak · 22/05/2014 20:14

You don't have to know how to deal with this right now, or have all the answers. I'm so sorry Thanks

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trice · 22/05/2014 20:15

What devastating news. Hope you and your family get the support you need.

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SleepyBum · 22/05/2014 20:23

Oh god, life is so unfair Sad. Not really sure what to say but I am thinking of you all and please be gentle with yourself. Another hand to hold here x

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Stuffofawesome · 22/05/2014 20:25

So sorry you have to face this. I realise you will be in shock at the moment but will say this so you can take it in (or leave it) whenever you feel ready. If you have a local hospice I would advise you to get referred sooner so that you can get all kinds of support for dh And the rest of the family. they can help you with all kinds of things including art therapy, complementary therapy, symptom control, nursing care, liaising with health care professionals and schools. It is scary but the care they can give is so much better and more holistic than hospital. Take care.

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WolfMoon · 23/05/2014 00:27

I am so sorry that you have to face this. It's crap, totally crap, and if you feel you need to rant, come back here and rant at anytime, there will always be someone to listen to you and hand hold.

If there is any kind of help and support on offer from the hospital, take it. Is there a brain tumour specialist nurse service available at the hospital? If so, get in touch with them early on, they are utterly invaluable and the reality is that they can give so much more in the way of practical support day-to-day than the medical staff. What is your support network like? Do you have family and friends who are around to help when things get particularly tough? You don't have to know what to do, and please let people do a little bit of looking after YOU if it's offered.

Many patients with young children who receive this kind of news often like to put together memories for the future - things like memory boxes, or video recordings of the parent, and photographs chosen by their parent. Is that something that you would like to do? It's not for everyone, but it can be a small comfort to other. I will keep you, your DH and your DC in my thoughts.

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daisyMummy123 · 24/05/2014 15:34

I am going through the same thing. My husband is 42 and he also has been diagnosed last week with Brain Tumor. They think it is aggressive but are going to do surgery. Our world has been turned upside down. I have 2 kids one 4 and one 5.

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lu9months · 25/05/2014 08:43

dear daisymummy123, I am so sorry. where abouts are you? my kids are 12, 9 and 4. my husband had his surgery and is making a good recovery. we are waiting for radiotherapy and chemotherapy now. it is so hard, and I know what you are going through . sending love .

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QOD · 25/05/2014 08:47

So so sorry, so unfair

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daisyMummy123 · 25/05/2014 14:56

Thanks people very kind. lu9months I will private message you .

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Rachie1986 · 25/05/2014 15:06

Thinking of you xx

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IwishIwasmoreorganised · 31/05/2014 21:05

Lu9months and daisyMummy123, I'm sorry to hear your shocking news.

Try to be honest with everyone about what they can do to help - true friends will look after dc, cook, clean, be taxi driver whatever to help you through this.

Thinking of you both.

Xx

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Musicaltheatremum · 01/06/2014 16:15

I lost my husband to a brain tumour 2 years ago. It was grade 2 when diagnosed but as most of them do it turned very aggressive. Horrible illness. I feel for both of you Daisy and Lu9monthe

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onlyjoking9329 · 01/06/2014 16:32

I'm sorry that you've had this news, you must all be in shock.
Do they know what sort of tumour, or is the surgery needed to find out what sort it is?
My DH had a brain tumour, he was ill for over two years before he died.
If I can be of any help do post me a message, daisymum the same applies to you. It's a hard journey let us walk beside you.

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daisyMummy123 · 01/06/2014 20:18

Thanks for kind messages and sorry to hear of
Other people who have gone through the same thing. How did you all cope and how did you help your kids ? Any advice gratefully received x

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SocialMediaAddict · 02/06/2014 18:52

So sorry. Look after yourself.

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lu9months · 02/06/2014 19:23

thank you all. as daisymummy says, any thoughts from those who have had to go through this on anything you found that helped, would be very appreciated. my worry is how to support my husband through his illness and my children through and beyond the bereavement and help them with their grief when my own life is falling apart. I suppose there is no choice, we just have to do it. I cant really believe it is happening.

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Meh84 · 03/06/2014 20:02

I'm so sorry, I truly have no words.

Keep strong x

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motherinferior · 03/06/2014 20:03

I'm so sorry. Another friend of mine is going through this at the moment. I wish there was more I could say - but I too have no words.

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SauvignonBlanche · 03/06/2014 20:06

I'm very sorry to hear that, what shocking news. Flowers

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Voter101 · 03/06/2014 20:07

I am so sorry to hear about your husband. What a cruel hand to be dealt. I'm sure there are lots of people here who can support you through this and there are some wonderful organisations but of course this is your unique journey and it will unfold differently to others.

Take care of yourself and so sorry again for the terrible news.

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