My dh is currently undiagnosed but we are currently waiting on ct scan results. The rheumatologist is looking at Ankylosing Spondylitis!
Dh had been having pain, numbness/tingling in hands and feet, neck and shoulder pain on and off for a year now. He ended up in a&e a while ago and they did all sorts of tests which did not come up with anything.
The neurologist has still not completely ruled out ms either.
This is just Such a hard time. We have two young children and I am finding that I am doing increasingly more and more and holding it all together. I am knackered to be honest with it all and the worry.
I am now almost panicking and feeling trapped at the thought of dh getting worse and for the rest of our lives.
I feel like I sound really selfish but, at this stage, I cannot express How I really feel to dh.
He seems so withdrawn too and feel that he may be depressed too.
I just wanted to vent really and would love to hear if anyone has had similar experiences and How you cope with two little ones too.
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Life-limiting illness
how do I cope?
13 replies
charlmills · 01/04/2014 10:32
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