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Life-limiting illness

Please may I have a quick whinge.

12 replies

LostInWales · 10/11/2013 15:32

Apologies if this is the wrong topic, I do not have an illness that is going to affect the span of my life too badly (fingers crossed) but I do have one which affects every minute of every day in an adverse fashion. I have had arthritis in my spine for the last 20 years, it is painful and I take tramadol now twice a day which takes the edge off but never stops it. In the last 18 months I have had agonising pain in my SI joints which radiates down both legs, appalling shoulders and hands and wrists and feet and ankles and everywhere else! A bone scan showed active arthritis in every single joint in my body big and small, so now I take evil, foul Slufasalazine which 'may' in 6 months start to clear this up but right now it makes me feel sick and so, so tired. I don't have a life, I have an existence, I am no decent mother or wife or friend. I am just so tired and ill feeling all the goddamn time. And the stupid arthritis has broken both my ears now as well so I am deaf and I'm not even 40 yet. I want to stamp my feet and scream 'it's not fair'!

Ooooh, that feels better. I needed to write it all down and throw it away. I hope you will indulge me this rant but I feel I can't say anything in RL anymore, I must just sound like such a whinger. The envy I have for people who just skip around doing that they like knows no bounds!

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chibi · 10/11/2013 15:38

Thanks

it is shit, isn't it? anyone who wants to quibble about you venting here will get a kick in the bum from me.

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PloddingDaily · 10/11/2013 15:41

That sounds awful. Unmunsnetty (((hugs))) from me...hope you feel at least a little better now for letting off steam. Thanks

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LostInWales · 10/11/2013 15:52

I do and a bit embarrassed Blush but I needed to go arrrgghhhh and my 6 year old isn't particularly sympathetic!

And I hate my hearing aids too, so there!

Thank you for reading, it has really helped to put it down actually. Flowers

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out2lunch · 10/11/2013 15:55

he he kick and stomp away


being ill is rubbish

have a hug x

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Weegiemum · 10/11/2013 15:56

My illness is different, but I know that utter frustration of being aware of it all the time. I do hope your medication starts to work. Mumsnet is great to rant on - there's something therapeutic about screaming out into the aether!

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LostInWales · 10/11/2013 16:00

It's rubbish being ill isn't it Weegie. Do you want to stamp your feet and have a little shout too? It feels great, promise Wink.

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ChippingInLovesAutumn · 10/11/2013 16:05

I don't normally post in this topic, but I saw your thread in Active Convos and as I 'knew' your name I thought I'd see if you were 'OK' - ie coping/had replies (which sounds daft given where you have posted I know).

I have a much less debilitating 'illness' and an almost constant 'tiredness' which gets me down, and like you, I envy those who don't... so given yours is a lot worse than mine, I think a bit of foot stomping and piss-off'd-ness is more than allowed.

I wish there was more that could be done for anyone and everyone who is posting in this topic - life is, sometimes, shit :(
x

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PukingCat · 10/11/2013 16:15

Chuckling sympathy your way op Thanks

and yes of course you can have a winge Smile

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LostInWales · 10/11/2013 16:16

Tiredness is horrible Chipping, plus most people don't get that it is more than feeling a bit snoozy after lunch, I know some days I just have to lie down because I can't stay upright a moment longer. My dogs love it, any excuse for a snooze Grin. Hope you will get better from it anyway.

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ChippingInLovesAutumn · 10/11/2013 16:22

A rant where people understand is good for you :)

Given that you, and the others who have reason to post in this topic, have it far worse than me, I'm not complaining. I just wanted to let you know that in some small way I understand and frankly, what you put up with puts me to shame.

When I see little kids bouncing & jumping about I want to bottle their energy and spread it around those who need it :)

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LostInWales · 10/11/2013 17:22

If we could do that we would be millionaires Grin

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ChippingInLovesAutumn · 11/11/2013 10:12

Well, rich & full of energy sounds bloody good to me Grin

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