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Life-limiting illness

Anyone's arthritis playing up with the season change?

33 replies

mandmsmummy · 24/09/2013 17:02

Hi all
I have spondyloarthritis (an inflammatory arthritis) and am really struggling at the mo. I haven't been too well so could be getting over that too but I am knackered. My right foot puffs up with it and I haven't had that since the winter and suddenly it's back. I literally want to sleep for a week. :-(
Any advice/moral support/etc?

X

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mandmsmummy · 24/09/2013 19:45

Bump? Can't just be me surely?? X

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mandmsmummy · 24/09/2013 21:19

Anyone? X

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gengis · 24/09/2013 21:35

Mine too! Awful today, I could barely walk.

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mandmsmummy · 24/09/2013 21:38

What type have you got Genghis?

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gengis · 24/09/2013 22:00

Rheumatoid, I take etanercept ant mtx but they aren't working recently, my knees are huge!

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mandmsmummy · 24/09/2013 22:10

I have spodyloarthritis only seen the consultant once so far! Chest and back is aching so worried its in there now. Terrified as I don't know much about it x

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mandmsmummy · 24/09/2013 22:27

Spondyloarthritis even! X

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Nocturne123 · 25/09/2013 20:31

It sucks :( . I have psoriatic arthritis which has been going through a particularly bad flare at the moment coupled with migraines !! Mine disappeared pretty much completely during pregnancy though which was a great pain free 9 months !

When I get down about I just have to make myself think it could be a lot worse ! Other times I just feel sorry for myself and eat chocolate :)

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MarcelineTheVampireQueen · 25/09/2013 20:34

Im in bits today. Its the change in humidity and pressure that does it. Hands particularly bad today. I feel your pain OP, hope you feel better.

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mandmsmummy · 25/09/2013 20:44

Thanks nocturne and marcel ins, it's great to hear from lots of people.
I'm struggling too, I can honestly say I feel forty years older. No one seems to understand either. My hubby is fab but friends who are sympathetic don't really get it when I struggle to muster the energy. The fatigue that comes with it is incredible.
I hope you all get some relief soon x

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Nocturne123 · 26/09/2013 20:15

I know what you mean , nobody bar my parents and my husband understand how I feel ! I think it's just easier to act like you're fine ( to some extent) infront of friends . My husband gets the brunt of it all and I hve to remind myself sometimes that it's not just me dealing with it but him as well !

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mandmsmummy · 26/09/2013 20:24

Absolutely agree nocturne! My hubby gets put through it too x

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Nocturne123 · 26/09/2013 20:29

But sure that's what they're there for :)

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mandmsmummy · 26/09/2013 20:35

True, I don't have my parents anymore sadly so my poor hubby gets the brunt of it x

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Nocturne123 · 26/09/2013 20:37

Sorry to hear that :( what is your form of arthritis like ?

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OhYouBadBadKitten · 26/09/2013 20:38

My psoriatic arthritis is just beginning to flare. It's not bad to how it gets, but why does it come every autumn? I just don't understand.

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mandmsmummy · 26/09/2013 20:46

Spondyloarthritis, imflammatory not nice x

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FavoriteThings · 26/09/2013 21:01

Do you think heat plays a part?

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FavoriteThings · 26/09/2013 21:03

My migraines all but disappeared in the really hot weather. And other parts of my body improve when I put heat on them, or on some parts, which help with other parts.

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mandmsmummy · 26/09/2013 21:14

Yes I'd agree with that favourite, during our long summer I hardly ached and if I did it improve quickly. I tend to use a what patch or water bottle too for comfort. At the moment I hurt all day :-( still a mystery whether the upper body pain is arthritis or pneumonia. Gps don't know just keep plonking me on anti bs x

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FavoriteThings · 26/09/2013 22:09

Sad I have cervicalspondylosis. Arthritis in the neck.Is the spondy bit arthritis? But I am not trouble with mit much directly. But not long ago, a doctor put two and two together for me and said I was getting frequent migraines because of my neck.
And I know there is a posture problem too. I have to keep correcting my posture to help with it all.
I dont suffer too much btw, except with the stupid migraines. I have lots of heat. Radiators on, extra heaters on if I need them, sometimes hot water bottle. And have recently discovered deep heat which seems to work. [all this heat is discomforting to my poor husband].

Is a what patch a wheat bag or something else.

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FavoriteThings · 26/09/2013 22:10

That Sad bit was for you, not for me!

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mandmsmummy · 26/09/2013 22:58

Yes spondyloarthritis is imflammatory arthritis.
I meant heat patch not watch patch! :-) x

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FavoriteThings · 26/09/2013 23:08

Grin
Are they reusable, heat patches? I hesitated to buy them as I couldnt see from the box whether they are reusable. Silly me didnt think to ask the pharmisist.

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mandmsmummy · 27/09/2013 07:27

No they aren't but they're good value for money and last twelve hours x

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