Have any mum's got crohns disease ?

[Louise1970]

I know this site is for children, but was woundering if any mothers have crohns disease..

[Nbg]

I don't but my cousin does. He was diagnosed early this year.

[jessicaandbumpsmummy]

my mum had chrons.... and sadly died from it last year.

[makealist]

My dad also had it for many years.
He died 6 years ago, but not from crohns

[Louise1970]

Sorry, Cod ? IRRC ? Blimey jessica, how? Can yu you talk about it. Did not think it was that fatel if treated. I keep hearing men have got it but not many women.. Just wanted to ask some questions about there children..

[Janh]

Nooo, not cod - Countess Dracula (at least I don't think cod has???)

Louise:

IRRC = if I recall correctly
cod = poster currently known as pouchofdouglas but has been codswallop/coddy

[CountessDracula]

yes I have

[CountessDracula]

other threads here and here

I think Cod's cleaner had it!

[Louise1970]

Thanks for enclosing the threads countess. Really interesting reading. I didn't think that anyone would have put a thread out about it. Mine is a long storery two. Symptoms since 1989, hundreds of blood test endoscopies, coloscopies, hiv tests etc. Diagnosed in September 1996. Rushed into hospital 2nd Jan 2007 wighing 6 stone. Almost died. Anyway, I have 2 children under 20 months, i weaned my first sone really badly as i didn't want him to have any foods that may react incase it has been paeed to him. I am just really worried again about weaning my second dd 5 months. Can you give me any angles on how you did it. What foods do you have to avoid. Mine are (fruit, spicey food, hard to digest veg, high fibre, cows milk). What did you do and how. Thanks

[GirlySquare]

Hi Louise, I don't have Crohns however I do have UC. I've found this brilliant Crohns/UC group well worth a visit very supportive with loads of information run by a lady who has Crohns. BTW do you have a Radar Key ? It offers access to 6,500 locked public toilets around the UK.

[Louise1970]

thanks girlysquare, no i did not know about the key. Can i still have one if i am not registered disabled. I was told by my gp years ago, that crohns wasn't classified.

[GirlySquare]

I've got one, my mum has too and neither of us are officially disabled - though we have both rugby tackled people when desperate for the loo! If you can't sign a declaration they charge VAT on the key. Hope that's okay x

[Louise1970]

Great thanks, i have applied. I will read the website soon. Thanks again. Does anyone have any suggestions on weaning. As i would like to try a different approach this time. DS1 does have sensitities etc. But want to be careful with dd2...

[CountessDracula]

Louise1970 I wouldn't think that there are any specific weaning issues as Crohn's isn't an allergy. I just went down the normal route.

[jessicaandbumpsmummy]

Sorry guys.... I kinda disappeared because it is so upsetting. It will be a year on the 7th August, and it was exactly 2 weeks after Jessica (my mum's first grandchild) was born.

We didnt realise it was the Chrons until the post mortem.... she basically collapsed and stopped breathing at home, and once in hospital, although they could get her heart going again, there was no other signs of life, so we made the decision to turn the machines off.

The post mortem revealed (not that i know too much detail because i was and still am in no fit state to find out the gory detaisl) that basically her insides had burst and was poisoning her. That coupled with the fact mum had Asthma there was no hope. Mum had Chrons for many many years and it was treated, and all was well other than the occasional flare up (every 6 months or so) and the day before she died, she was the proudest Grandma showing off Jessica to all her work mates.

Sorry to have gone on, im off now for a big blub and a bar of choccy me thinks.

[Louise1970]

Jessica, I am so sorry for what has happened to your mum and the sadness for everyone who new her. I am sorry i did not read your initial thread properly and that it only happened last year. I would not have asked for more details, if i had had my head screwed on a bit more. It really has been an eye opener for me to know that this can happen. I realise now that my original question is just so very silly and non important. It is just that i had such a trying time with my first ds1 as he seems/ed to have sensitivities too so much food. It is obviously quite rare. I will get professional help. But thank you all..

[jessicaandbumpsmummy]

Lou, dont be sorry.

FWIW, i am very sensetive to nuts and dried fruit such as raisins etc. If I eat these i get severe stomach cramps and upset tummy, and its the same things that used to set my mum off. I know I should get tested etc, but Im too scared.

I would certainly speak to your doc, especially with a young baby.

[Louise1970]

Jessica. If i can give you any advice. it would be to go and get tested as quickly as possible. I battled with consultants/doctors not believing me, i then would not go to the doctors. Until things got really really bad. It took them 7 years to find out what was wrong with me.It is really bad as i can hardly eat anything as it got worst over time. Now they bend over backwards for me. My doctor did say i had a good case to go to court. But i was too ill in those days. I wish i had now, as my life has had to change so drastically and can not work in so many jobs etc. Make sure you get heard. Don't be scared. Its best to find things out sooner. It could just be IBS, though or even something else less worrying... Good luck

[Windermere]

Does anyone think there is a genetic link? I notice that a couple of you have said that your mother also has crohns. Both my sister and her daughter have crohns, my sister was diagnosed at 28 and my niece at 17. I am really worried about my niece at the moment she is now 27 and is in and out of the hospital constantly and she has two daughters to care for. The treatment that she received at one hospital was disgusting they have now told her that they do not not have the budget to treat her because they have spent too much money on her, so she is being treated at another hospital 30 miles away. It seems to be a constant battle as soon as she gets over one thing another thing flares up.

[cacaboo]

I believe that there can be a genetic predisposition to Crohns/UC. I have UC and remember reading there is something like a 1 in 20 chance of my children having it.

[CountessDracula]

Yes my great aunt had it years ago. Was on drugs for the rest of her life but was never terribly ill. I blame her

[Louise1970]

Windermere. I was trying to get my gp to refer me to St Marks hospital in Harrow, outside London. It is a specialist hospital for gastro problems. I live in a really crappy gp problem area so she would not refer me. Don't worry i know my rights. When my two kids are a bit more independant i may chase it again. (ds1 20months &dd2 5 months) I hope it is not too far for you to travel. It would be about 50 miles for me, but worth it if they are the best. It is suppose to be the best in the country. Look on google. Hope that helps