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Mirena Coil removal - mood crash

(95 Posts)
michelle2706 Tue 05-May-09 23:10:04

Hi,

Has anyone had problems once their coil has been removed?

I got mine out 8 days ago after it being in for 6mths. Was constantly tired, spotty, headachey, nervous, depressed anxious, no sex drive...etc.

2 days after removal i was spotting. 4 days after I got a feeling like i was going to faint and be sick and this continued for 2hrs. Husband took me to a&e as i hyperventilated (didn't know this at the time) and brought on pins and needles in my arms and legs.

I have been so down then my period started properly on the saturday, full swing on sunday, but my mood is like a roundabout stops and starts very quickly and my tummy feels weird. Am used to having pms and cramps with my period, but this feels weird and it's horrible.

When will i feel normal, how do I know when I ovulate and will that make me feel better?

Any thoughts would be great!

Michelle

Mitzy13 Wed 21-Aug-13 09:48:15

I had the Mirena fitted 3 months ago in an attempt to deal with the complete physical and emotional exhaustion I feel on the first day or two of my period. At first I experienced side-effects; a period of terrible anxiety (which I didn't help by late-night googling of the Mirena coil and finding horrific stories documenting years of terrible depression!); a week or so when my boobs were really sore; spotting. But they all passed and I was delighted to resolve the problems with my periods. No spots, no weight gain, no pains, no PMS - in fact my mood has been more balanced. Unfortunately, a side effect which didn't pass was the hair loss. In fact it has got worse, and, fearing baldness, two days ago I went back to my doctor and she removed the coil. Interestingly, she was unfamiliar with hair loss as a side effect (which is odd as it is mentioned again and again on this thread) and had to look it up.

So, now I have period pain, heavy bleeding and the familiar feeling of tiredness. Overall, the main conclusion I have come to about all this is that, for women, hormones and hormone fluctuations are the bane of our lives. It seems we can't win.

bunnibear Wed 04-Sep-13 10:48:26

I am 44 and had the MC fitted 14 months ago due to very painful periods and the pill no longer doing its job.

I have been back to my Dr 3 times to ask her to remove it and she has everytime refused and said i need to leave it longer. By month 11 it had settled down, after going through months of still bleeding (only lightly) but i never knew when it would happen and it was frequent. The pains werent as severe but were much more frequent. Breast pain was pretty rough though. I have also noticed more bloating than normal and strangely thickening of my hair as apposed to everyone else hair thinning.

The final straw for me is i recently noticed one breast is now quite a bit larger than the other. 2 weeks ago i found a lump. I have been for initial tests and they think it is not cancerous but are not sure what it is (i get biopsy results tomorrow), however the Dr said he could see the lump amd the breast enlargment just by looking at me, he also said there were lots of them in both breasts, both having lots of lumpiness and thickening. I believe this to be down to the hormones from the coil, so im going to the Drs today to get it removed ( im sure she will try to convinve me again not to).

I am dreading going back to periods and passing out from the pain evry 3 weeks but its better than a cancer scare. It does say in the leaflet that it can cuase these lumps and eventhough not cancerous they can become so.

I know some people who the MC has worked well for though, so it does appear to react different for different people and it could be that my breast lumps are coincidence, but i really think not!

bunnibear Wed 04-Sep-13 11:06:12

Forgot to add other possible side effects i have had , lower back pain and general nausea, more often in the morning (no im not pregnant)

Kathrynwest42 Sat 07-Sep-13 15:00:47

I have had the mirena for 12 years for treatment for severe endometriosis until it was removed yesterday morning. The pain and other problems I was suffering were getting out of hand and my quality of life has been badly affected for a long time. Now it's out and I've had no bleeding or major pain, a little niggle in my lower back but they did have problems removing it so I'm probably a bit battered and bruised. I'm starting the mini pill instead on Monday as I can't be without treatment. The MC worked brilliantly for about 7 years so would not discount it for others, but be aware of side effects that could flare up further down the line.

sylve2013 Mon 09-Sep-13 23:17:12

I had my mirena coil removed today after 3 years of feeling depressed. I dont know if it psychological but i felt better straight away. Despite cramping i feel emotionally better within hours. I feel lighter in mood and quite happy and if i have to put up with cramping for a few months i prefer it to feeling down. Since having it fitted it did what it was meant to do. lighten my periods but i didnt look forward to anything or get excited about things i normally would. It is only supposed to let a little hormone out into your womb but i think it affects brain chemistry. Three of my friends have had them out and feel better already. I lost my libido so what was the point!

MaggieJ5 Thu 12-Sep-13 15:30:32

I'm one of the very few who seem to have got on fabulously well with the Mirena Coil. I had it fitted as an alternative to hysterectomy on the advice of my gynaecologist and I'm so glad I did. After years of nightmarish periods where I couldn't leave the house for up to two weeks at a time, I was suddenly normal again. PMT disappeared, yay no more crazy woman! Only problem now is that it seems to have displaced and I will need to have it removed and fingers crossed they will put a new one in. Really concerned about experiencing low mood and bleeding when it's removed though.

bepaal10 Sun 15-Sep-13 08:20:14

Hi , I had the merina for 5 years and it was great for me. Not side effects at all. I had it removed last month and I feel my moods have change completely. I feel also I am putting on lots of weight. Hope things will be back to normal soon. Anybody with the same experience?

4kayoss Mon 23-Sep-13 11:46:48

Hi, after reading through this thread thought I had to post my story.
I had the mirena coil fitting dec 2009, I was a size 14, have upped my exercise and reduced my food intake since having it fitted (it was fitted to stop me falling pregnant so wanted to shift the excess baby weight) and still I've managed to go up to a size 22!!!! Yes you read that right - a 14 to 22! Several times I went to the doctors about my weight gain and always had the same response, THE MIRENA DOES NOT CAUSE WEIGHT GAIN! go on a diet, join a gym blah blah I did it all and the only time in the just shy of 4 years the coil was in that I managed to lose any weight was when I fell ill with swine flu. So I'm sorry lovely precessional doctors but for me, it does cause weight gain, I'm in no doubt about it! Anyway,
Mood swings - oh yes they are horrendous! I've been a right moo for years now, extremely depressed, anxious, moody, stressy, you name it I've been it. I no longer feel like me! My poor children have been stars putting up with me and well the husband - well erm... Yes he's barely around now cause I've been the wife from hell. I tried getting the coil removed many times and refused every time so we moved town, I went to a sexual health clinic old the nurse I wanted another baby and she removed it no questions asked. Relief!! Then this demon devise puts the final boot it, 2 days of exhilarating pain absolute agony! Then the bleeding begins - tmi (I'm sorry) but I'm having to 'sort myself out' every 20 minutes, it's so heavy! School runs are incredibly difficult (I really wish I stocked adult nappies) I have 'the flu' really bad chest infection from hell, nobody else even has the sniffles so my only guess is yet another side effect, huge blood clots etc etc called the clinic and told its 'normal' hmmm.... Normal being unable to walk down a flight of stairs and feeling like your waters have just gone?! Well thanks for telling me that before you removed it!
So to summarise,
PROS:
I barely bled for 4 years!
CONS:
I'm now bleeding 4 years worth of periods in one hit (think ill be needing a transfusion soon!)
No sex drive once fitted - cant have sex after removal due to above problem!
Mood swings
Weight gain
Abdominal and back pain

Not all women experience problems with this coil but if you're thinking of having one fitted please think about the REAL side effects rather than the ones they put on paper. Never ever again for me, I'm hoping to gradually lose the weight now it's out (the large chest is welcome to stay though) go back to being me, the happy me without the devils device inside me controlling every aspect of my
life

fluffball1 Thu 26-Sep-13 22:05:59

Hi I've registered today in order to add to this discussion. I'm nearly 48 and have had the Mirena Coil in for over 10 years! I'm overdue for removal or replacement of my second cycle. I had been pleased with my coil as it stopped my horrendous heavy periods, but I have also suffered with terrible weight gain and acne! I put on so much weight actually that I had weight loss surgery to help me lose it, extreme but necessary!

I am now a size 16 and feeling better with my weight but my acne is really getting me down, I never suffered with spots before the Coil except at time of the month. So my dilmma.. do I have the Coil removed and risk very heavy periods coming back, or have a final 5 year cycle which should take me through to menopause.. the thing is what if I'm already in menopause? I don't know as I don't get periods? I also have sex drive problems and it's something I didn't realise was linked to the MC!?

I am strongly erring on having it removed, but I really can't bare the thought of very heavy periods again. Also as I've had the coil for much longer than most of you, what will the side effects of removal be for me? I'm not long out of major weight loss surgery.. can't really cope with other problems! Any advice very much appreciated, thanks.

Michelemc Mon 04-Nov-13 16:23:22

Had coil for constant bleeding 8 years ago, had replacement after 5 years which fell out after 3 days. Had new one put in a few weeks later. Just had that removed to start ivf. Had spotting for a week after removal and now heavy painful period with pain like never before! Hopping not to bleed continuously like I did before I tried the coil! Watch this space!!

sylve2013 Fri 08-Nov-13 00:14:23

It has now been 2 months since i had my coil removed. My bloated stomach has reduced significantly and for 3 weeks of the month i feel alot happier. I have one bad week a month hormones wise which is worse than when i had the coil as i felt a bit down all month with the coil in. I bleed heavily for 2 days but it is worth it. I eat an iron rich diet for 2 weeks prior to menstruation and avoid alcohol as this exacerbates my moods during that time. I feel a lot more positive about everything. My concentration is better at work and i have regained a sense of humour. Obviously the contraception side of things and light bleeding were a good thing. The coil is suitable for alot of people. I am having a 6 months trial without but really think i am alot better off without it.

Juneyrhubarb Fri 15-Nov-13 19:01:57

I had the mirena for roughly 15 months

Got it removed on Wednesday as it wasn't working for me.

Was constantly bleeding (very lightly)
Constant irritations (felt like infections)
Felt depressed and anxious

Today is Friday and I almost went to A&E today the bleeding was worse than after giving birth!! I have worn a pad since the removal (just in case) and today I'm so lucky I was wearing a pad otherwise there would have been a puddle under my desk at work!! In addition I had a palm sized clot that resembled a placenta come out of me - scary stuff!!!!

I wasn't warned by the nurse who removed the coil so I began wondering whether this is normal period or possibly a wound caused by removing it!! Will see how I go over the weekend and if I'm still bleeding like this I will have to go back.

Be Warned!!!

MrsT1984 Tue 19-Nov-13 18:28:39

I've just had my Mirena Coil removed today after having it for 15 months. In that time I have gained weight, got depressed and anxious, and anti-social to the point where I can't face leaving the house. On top of that, bloating, constant spotting where I'm having to wear a pad every day just in case, low sex drive and sharp pains on my left side. Oh and crap hair and crap skin. So far I've been bleeding a bit with some discomfort, when the doc had a look she said my cervix was a bit inflammed and bloody, (lovely), but they always deny any of these things are anything to do with the coil! Not looking forward to this 'crash' that's been widely reported on here I have to say, especially with hubby working nights, mind you he is an A and E nurse so at least he'll be there if I get 15 months worth of bleeding in one go! Bloomin heck, trying not to panic muchly!

misslisalo Thu 06-Feb-14 12:31:02

I think I have just found my sanity again!! Thank you all. I have had the Morena coil in for 4 months and in that time I have had severe headaches, anxiety, depression, mood swings. Just on Sunday I had to have an ambulance phoned for me as I took a panic attack, couldn't breathe properly and got pins and needles in my arms and legs blurred vision and very confused, this lasted for over 3 hours and was told it was a utine infection after being on ECG for a while. I was then discharged from hospital with a course of anti biotics for a urine infection which I have been told from the doc today I did not have. My mum suggested it could be the side effects of the coil but the doctor quickly dismissed this. I have came home and googled it and got brought here, which all comments suggest the exact same as what I have been experiencing. I actually thought I was going mad until now. Just want to say thank you and have arranged for the coil to be removed tomorrow x

misslisalo Thu 13-Feb-14 14:37:47

Just a quick update here from my last post. I removed the coil myself and did not feel any pain at all. Since removing it, its been 6 days and I am now back to my happy bubbly, confident self. Doctors still insist it was not the coil that was causing all my problems, but after blood tests, ecg tests and swabs everything has come back clear. Such a coincidence since I have removed the coil that I have had none of the symptoms I described in my earlier post. Best thing I done was to take it out.

tazmania10 Sun 16-Feb-14 04:56:48

hi i'm going in to have my mc removed next week after 7 years ( yes 2 years over due) been worried sick about having it removed...does it hurt? but reading some of the comments it sounds like i have more things to worry about..and i'm not a worrier....but all said and done the mc coil is the best thing to happen to me i was having heavy periods for 15 days and it all stopped once i had the coil, i bled for 2 days and only lightly....when they remove the mc will they put another in straight away or do i have to wait.

Izzyjm Sun 16-Feb-14 20:07:31

I had my mirena removed on Tuesday after six months of feeling bloated, bad tempered, putting on half a stone in weight and for the first 4 months being really spotty. The removal took about 30 seconds and was like a smear test maybe a little bit more of a pinch but so worth it. No headaches, dizziness or cramps that some others have experienced just a normal period that started 3 days after the removal. My mood is better and I have rediscovered my knee caps that disappeared in the bloating which has also gone, just hoping the weight drops off too.

Laurenrocks Fri 28-Feb-14 22:04:40

Hi, I was just doing some reading and found this thread. I had my mirena removed on the 10th of Feb after having it in for 4 years. I have had a really bad period since. I've had a couple of days with no bleeding (not together) but it has been pretty much non stop. I'm on a new pill. Should I go back to the doctors? Or do you think it will pass?

Seasidemother2014 Sat 08-Mar-14 07:43:39

I thought I would post my experience as reading those of others has been helpful. I had MC fitted in mid December due to heavy periods. In the 9 weeks that I had it, I got very spotty, unexplained mood swings (which I never had), retaining weight despite running three times and week and watching diet, bloated stomach and sore breasts and I bled to some degree or another every day except for 5 days.

When I went for my gynae check up I told the gynae the symptoms and she tried to persuade me to keep on for a few more weeks to see if the bleeding sorted itself out but I said that due to all the other symptoms, this wasn't going to work for me. They are the same symptoms I got on the pill years ago (13 years ago). I agreed to have the MC as I understood it was a low dose hormone that would stay localised. That clearly wasn't the case for me.

The doctor took it out at that same appointment - didn't feel a thing and only took a minute.

That was 8 days ago since when I have been bleeding a lot and having what feels like a proper period. I am hoping that this will stop soon (please - 3 months bleeding is enough thank you) and I will start to feel the benefit of the exercise and healthy eating. It seems that for me, I will just have to put up with heavy periods. At least I knew when to expect them and could plan life around that.

From this thread there are clearly many people for whom the MC has been great but for me, the hormones that it pumps into you and the effect of them just doesn't work and outweighs any of the benefits (I hadn't found any yet!).

jaxx36 Mon 10-Mar-14 01:03:18

I thought the merina was a brilliant,for 8 years i had no periods or period pains but I had bad emotional Pmt each month for about 5 days but I never once thought the Merina was to blame just thought it was the norm.I also would get occassionl mysterious illnesses like extreme joint pain but again never once thought the coil was the cause. Then after 8 years I got 3 very slight periods in a row and after that I never seemed to be as emotional or angry again but I started to feel physically ill at times, swollen leg, heart palpitations, extreme fatigue, Shortness of breathe, sleep apnea of some kind but blood tests would be all clear and so on, so eventually I gave uP going the doctors and started to believe I was turning into a hypercondriact because it would always pass! Its very hard when not having periods and its something that's not happening every month to realize what's wrong.

February 2013 I decided for some strange reason to switch to the contraceptive implant Nexplanon(which releases the same one hormone like the marina, due to health risks I can't have combined)Again I had no periods..great!! But I started to get the common and natural stabbing pains mid cycle which I had never had ever before and for 2 weeks of every month I'd find my concentration was to be low, my legs would hurt etc, then in October I felt really Ill again as before severe palpitations, leg swelling, I went to the doctors, he basically told me I was just stressed, a few days later I had a period and felt marvelous after, that's when the penny finally dropped and each month since its been the same symptoms but without the period so I got the nexplanon removed nearly 3 weeks ago as after 11 years without a break I want to find out what my hormones are like and if the implants have helped or made it worse.
BUT what I didn't understand or expect was what I'd go through after removal, on the first night I slept for 12 hours without waking, I then went over the next few days with hot flushes, dizziness, stomach cramps,anger, doom, bloated stomach, feeling pregnant, visiting the toilet on average 15 times a day, even after I had a period I felt awful, stabbing pains in my back, the list goes on, a shaky feeling like a drug addict might feel trying to get clean! But I am happy to say that it seems to have all just gone, 2 days ago! I feel great, ok I won't know until my normal periods return if my pmt will be any better but what I can say is that right now I feel better than I have felt in years because if you think about it these implants/ius slowly release a hormone into our bodies and in some ways we become dependant so I guess what I experienced was some kind of withdrawal or crash!

jaxx36 Mon 10-Mar-14 01:34:07

Still have bloated thou...urgh!!

jaxx36 Mon 10-Mar-14 01:34:31

Still have bloated thou...urgh!!

blackorchid1959 Wed 12-Mar-14 12:44:44

hi just had mine removed after almost 8yrs . I recommend not leaving in so long lady's . should be removed after 5yrs as it really isn't doing much after that .the hormone is basically gone . had mine removed 1hr ago. I was unfortunate that it had bedded into my womb ! was a very painful experience. pls don't do what I did and leave in so long . resting now with painkillers .

madchocolatemum48 Sat 15-Mar-14 07:49:28

Think I may have removed the MC myself last night.
Had it in for heavy periods 4 years ago, after about a year my periods stopped, About 6 months ago I started bleeding again on a regular monthly basis, definitely not heavy but there.
I also started noticing an odour that was extremely unpleasant no matter how often I washed.
I had been bleeding for 3 weeks and yesterday I was so aware of something being not right so last night I had a feel about for the strings thinking it may have dislodged. Usually I can just feel the tip of a string but last night I could actually grip it.
So I pulled, very very slowly, thinking if it is still in then I should feel a twinge and I would stop. No twinge, didn't feel anything and out it came. Not bleeding, no cramps or pain YET
I actually feel elated that it's gone.
I have been reading up on the MC and yes the lack of a period is one of it's primary jobs and for that I was grateful
BUT
The more I have been researching up on all the additional emotional baggage that no one seems to be warned of is astounding.
I have had the depression, weight gain, zero sex drive, apathy, feeling of dread, the list is endless.
I will wait and see if I start feeling better in myself but I doubt if I will have the MC refitted.

madchocolatemum48 Sun 16-Mar-14 12:06:01

Update on me removing the MC on friday night.
The horrible stench has gone. grin
Within 24hrs of removing the coil my vagina doesn't smell as though something crawled in and died there anymore. blush
Still no bleeding or pain either.
Halle-fricken-luya.

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