HI, I am a bit confused about the difference between hypermobility and eds. I have just found out that my children are hyper flexible and am wondering if we actually have eds.
My 2 year old has been prescribed insoles due to flat feet and the orthotics noticed that his knees are extremely flexible, so I checked his other joints and they all are, he also has developmental delays.My seven year old is even more bendy and can't ride a bike or trike, has trouble with cutlery, buttons Tec and has problems with proprioception. I have bendy joints everywhere and can move joints in my hands in and out of joints.
We all have very stretchy skin, especially at the neck, hands, feet and under our upper arm and forearm, my children also have stretchy skin on stomach and back, and kind of dimply skin on the stomach although they are slim.
I have blood spots a bit like petichia all over my arms and thighs and also varicose veins and spider veins. I have scars on my knees. My youngest is prone to petechia when he bangs into something. I bruise easily and the bruises take a while to heal.
I can see we have a lot of symptoms but could it be eds, I have never dislocated any joint and only have pain in my ankle, knee and toes, I don't have widespread debilitating pain. My sister has lots of pain in her back, shoulder and ankles with no known cause. My aunties both had early onset arthritis which started in their twenties and my dad had joint pain also.
If it could be ehlers danlos is it important to get diagnosed and if so how do I go about that, can I ask my children's peadiatricians to refer us somewhere or will I need to go to our GP?
Thankyou for reading if you got this far :)
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Hypermobilty or Ehlers Danlos syndrome.
18 replies
stretchyandbendy · 16/10/2013 23:48
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