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38th tamoxifen - waiting for summer in the bus shelter

(988 Posts)
Gigondas Sat 15-Jun-13 12:01:16

New thread.

multifocal is where the cancer is in different places within the breast...

now shift yourselves new thread !

kitkat1967 Thu 04-Jul-13 10:53:21

star that is!! envy

kitkat1967 Thu 04-Jul-13 10:52:35

what is multifocal?

but surgeon will still be pleased if it shrinks as it helps with 'the margins' even for mx I believe. Perhaps you will be his start patient!!

just checking in -been to garage to get noisy rattle sorted on little car- all ok,but it needs a new cam belt -grr
Can''t catch up just now but wanted to wish everyone well today, those having treatment or just feeling wibbly.

BetsyBoop Thu 04-Jul-13 10:49:49

It's definitely mx whatever, as it's multifocal - too much risk of recurrence otherwise (still seriously thinking about a double mx)

kitkat1967 Thu 04-Jul-13 10:46:20

wow Betsy that sounds really promising.
Are you def having a mx though? I thought that was the plan for you? or will the plans change if the lump really shrinks?

BetsyBoop Thu 04-Jul-13 10:33:35

thanks kitkat tis definitely softer (it is almost back to how it felt when I decided there was definitely something going on and went to GP) and not hurting at all now either, fingers crossed they are good signs. (seeing onc next Tues)

kitkat1967 Thu 04-Jul-13 10:23:08

thanks for the warning Ruby - I'll be starting on series 1 so should be safe for a while. Mind you I sat through my first chemo watching Stepmum so my viewing choices aren't always sensible (didn't know what it was about and it was the only film I had loaded)!!

kitkat1967 Thu 04-Jul-13 10:20:20

Betsy - i saw onc on Tuesday and he did an examination to see if there was any change in my lump. We both agreed there wasn't and he said he hadn't expected anything this soon but remember he does not expect mine to be particulary responsive. So I think it is possible you could have a change - my onc is looking for it to feel softer if that is any help. On the other hand it has completely stopped hurting which he said was positive.

And I have a question for you other ladies - how long does the chemo work for each cycle? Does it carry on having an effect for all 3 weeks or is it basically done after a week or 2 and you just wait for the next lot?

malteserzz Thu 04-Jul-13 10:02:14

Ruby and Betsy thanks for the chemo update glad you both don't feel too bad
Betsy I don't know but it sounds like a good sign if you feel it's shrinking already smile

BetsyBoop Thu 04-Jul-13 09:37:07

malt - you need to ring and nag, you've been waiting ages now

gigs hope today's appt goes well and once you don't have to keep travelling backwards and forwards that your back starts to feel better. How much longer do you have to have the pump?

picture - I've still got my hair for now (first chemo last week) but I've bought a sleep cap from annabandana in anticipation - tis very comfy

As I had Emend the side effect I got from that was drowsiness sleeping like a log ness which counteracted the steriods quite nicely grin

Ok question time - do you think it's possible that I could feel myself that my lump has shrunk? It's a pointy sausage sort of shape (due to the fact there are actually three lumps merging together) - the length is still the same, but I'm sure the diameter has shrunk quite a bit - that's a good thing right? (I know they said they would scan me part way through to check the response, but I wasn't expecting to actually feel it myself)

Morning all, day 2 of chemo report for malt mildly nauseous before I took my tablets so taking them made me gag but now it's calming down, apart fom that all alright, I slept through the night until 5.30 gringrin

kitkat I'm wildly jealous, have been considering the Grey's boxset as have seen some series but not all, was catching up on Lovefilm Instant then they dropped it sad just a warning if you weren't aware, there's quite a big cancer story in one of later series, don't want to do spoilers but felt I should mention it! And fingers crossed for insurance payout without any hassle smile

gigs grr at having to travel so far, can they not send someone out? sad

malt definitely phone smile there's no point wrong unnecessarily, it could've to Los in the post or something! Enjoy your lunch out

Waving to everyone!

kitkat1967 Thu 04-Jul-13 09:13:36

Malt def phone as you have been waiting ages. We had our Ops around the same time and I will be having second chemo next week so they need to get their act together for you.

Gigs glad your rads are finished - will they do your dressing at home?

malteserzz Thu 04-Jul-13 09:10:49

Gigs and Kitkat hope your appointments go ok today gigs hope sitting in the car is not too painful
If I don't get a letter in the post today I will definitely ring
Out for lunch with a friend today anyway and looking forward to racing tomorrow

Gigondas Thu 04-Jul-13 08:56:15

Yay for insurance kitkat. Was laset rads yesterday but got dressing change on pump today . Could do without that as want to rest my back without two hours in a car which is about what it usually takes to travel there and back.

Malt dont be shy- just ring as you have been waiting ages.

kitkat1967 Thu 04-Jul-13 08:51:08

wo ho - insurance says Yes grin. They will write to consultant to confirm details but they said it should be fine (from my basic description).

Gig - is it your last but one rads today?

Anyone else got any apppointments today? I get to have my picc line cleaned - oh the excitement!!

malteserzz Thu 04-Jul-13 08:43:12

Gigs not on steroids yet just anticipating problems in advance !
Getting fed up of waiting now, was dx 1st may, lumpectomy was 4th June and now it's 4th July and I'm still waiting to see the onc about chemo. Had a holiday booked on 17th July which we cancelled I'm thinking now we could still have gonehmm
I will phone if I get no letter today just seems so much effort finding the number and going through everything
Sorry for my moan hope everyone else is ok or okish

Gigondas Thu 04-Jul-13 07:46:43

Not insurance - apprentice blush. Can you tell I was awake last night?

kitkat1967 Thu 04-Jul-13 07:26:34

Malt - I had to go to India for work (was fab!!) at the end of last year and watched the Downton Abbey box set then - it was fab - hard to believe I had somehow missed it all on TV.
DH has the West Wing box set which we have never watched so that'll be next on my list.

Also my steroids were given in a drip when I had my chemo - so no additional tablets to take at home but the effects still lasted about 5 days (onc confirmed that this was what had caused the 3am wakeups).

I can ring re insurance after 9am so will report back. Based on my googling last night it looks like DCIS has been given partial cover by lots of companies - and in fact they require you to have mx to even qualify for that.

Gigondas Thu 04-Jul-13 07:16:58

I would definitely have another go on insurance amber based in what Copt says.

Copt yes insurance was a bit of a let down -boys were rubbish but next week is my favourite week smile.

Gigondas Thu 04-Jul-13 07:14:51

Morning all- my critical illness did pay out as my condition is not curable.

Greys anatomy is great- I need to get back into it. Also it doesn't upset me as any reference to cancer is done in such an American tv way it's laughable(plus focus is more on relationships than medicine).

Malt- when do you take steroids? I took em in morning which minimised up all night effect.

Very croaky sore throat here so may have to resort to communication by writing.

Hope smee doing ok and all those on/just off chemo plus anyone else in need of tlc.

malteserzz Thu 04-Jul-13 06:14:15

On steroids I will never sleep ! Still struggling now hmm
I have the downton abbey box set to watch so think I'd just watch that
I've not seen greys anatomy either

amberlight Thu 04-Jul-13 02:33:55

I wonder if the brokers were correct...might ring insurer

Copthallresident Thu 04-Jul-13 00:14:36

Interesting (sorry I am turning geeky on this but I smell a rat ) A quick google shows that insurers clearly have a problem. "Last year, cancer was the most common reason for critical illness claims from our customers and over a third of these were for breast cancer, triggering pay-outs amounting to around £12m." So they have started to introduce partial cover policies where they pay out according to the severity of the treatment......

Copthallresident Wed 03-Jul-13 23:30:44

So the wording of the policy specified only terminal Cancer? I doubt it. Maybe they have tightened up because there are so many cases like ours but I wonder what the parity is with, say, prostate Cancer? So now I wouldn't have to be fighting my employer in court after being screwed over but would have to fight the insurance company hmm

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