Hi, I'm new to this and have a long winded story which I'll try to keep short. Posting on here as I just don't know what else to do :(
So here goes.....
In July 2012 I suddenly had some aching on my left side. Like ovulation pain and it went on for three weeks then went. It then appeared on my right side but didn't go. It slowly radiated into the top of my thigh and around the back go my thigh. It would come and go but was generally worse in the two weeks before my period. I also found wearing tampons painful, like an increase in pressure. I used like going to the gym but found exercise made the pain worse. I became very anxious and struggled to have complete BM sometimes having to go several times a day which was not like me at all.
I went to the GP, several times. Was told 'trapped wind' IBS, groin strain etc eventually I got my bloods done, including markers for ovulation and bowel cancer. All clear. Then I had an ultrasound. Everything fine. So my GP suggested physio. I refused as I felt it was gynae problem and paid to see a consultant privately. Saw gynae. He said there was nothing wrong with me and agreed with my GP that I should have physio for a groin strain. At this stage the pain was localised to my right side and although unpleasant wasn't to bad. So I saw physio for two weeks. She gave me some exercises to do which I did carefully as instructed. My pain then went through the roof :( pain all the way to my knee, back and front of my thigh, so bad that I could barely walk and I ended up at the GP out of hours services with a profound limp and was given tramadol and over the counter pain killers no longer worked. Physio then referred me to orthropecic consultant ( all of this was private treatment on insurance) who ordered MRI scan. This showed a dialated Fallopian tube on my left, full of cysts plus ovarian cyst on my right side. So I was referred to another gynae. She gave me another ultrasound scan and then did a laparoscopy, hysteroscopy, prolapse repair ( rectocele), removed my left Fallopian tube (she tried to save it but said the cysts were like a 'bunch of grapes' nice!)and also drained the cyst on the right side. All were biopsied and came back as clear, just simple cysts.
That was all eight weeks ago. Trouble is I'm still in pain. It's not as bad as it was, had a few days when I've been pain free :) finally thought I'd cracked it only to find that the pain returns. I have kept a pain diary and have also, foolishly, tried to do some of the exercises that the physio gave me (what a fool I feel) - she said I should do these exercises as my core was weak .... Anyway the pain is now in both legs, thigh to knee, cramping in the back of my right leg. Also some pelvic pain. But it seems quite random, nothing appears to trigger it. Trouble is I can't just sit on my bum, I've got two young DCs so I've very on the go although I'm trying to take it easy. I've seen the gynae and she said it was just healing pain and it would settle. She's now discharged me telling me nothing is seriously wrong and not to worry. Since seen my GP who basically said the same thing and gave me some painkillers.
I'm so down I just don't know what to do. Not eating/sleeping. Very anxious all the time, feel like I am going mad!! Maybe it's all in my head??? GP refused to give me anxiety tablets/antidepressants. Now started having night sweats. Obviously I've googled and I'm scared to death. Got a wonderful DH but no other close family. I'm a carer for my seriously disabled dad and my beloved mum died a few years ago. Just don't know what to do....... Would just like to get my old life back :(
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Anyone please????
5 replies
Peppapigisnotmyname · 20/01/2013 15:38
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