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M.E. CHRONIC FATIGUE SYNDROME PARENTS
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(165 Posts)
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ARE THER IN ANY PARENTS OUT THERE WITH M.E. OR FIBROMYALGIA.
I have a 21 month DS and have had M.E./CFS for about 7/8 years. Is there anyone still around on here?
Hi, this thread is tucked out of the way a bit I find.
Hope your pregnancies are going well..
Does anyone from recent times still log onto this?
Hey cool my man is way into all that witch craft stuff I'm just learning about it now but he has practised for years : )
Yes I have M.E and I'm pregnant, also I have a friend who is in her late 30's who has a 10 year old and a 2 year old who suffers with M.E
Oh my goodness, I'm so greatful I sound this.
I'm 17, and 8 weeks into my first pregnancy, and at about 70-80% of the AYME CFS scale. I've been ill for nearly a year and a half now, but I'm getting better, noticably so, now.
I'm TERRIFIED of being unable to cope as a parent when my baby is born. My boyfriends parents are quite set on me aborting because of my conditions (I also have Borderline Personality Disorder) but I'm determinded to keep the baby, and to be the best mother I can be.
It would really mean the world to me to be in touch with anyone with ME who is expecting, as my ME doctor is a paediatrics specialist, so hasn't experienced a pregnant patient before.
I think i can do this. I WANT to do this. I just don't want to be a bad mother, for whatever reason.
Also, has anyone else reallu suffered since they've been pregnant? My ME was improving, but since I fell pregnant, I'm back to needing to nap two or three times a day.
Oh and I'd just like to get this off my cheast. MORNING SICKNESS IS A BITCH.
Hope you're all well. x
Hi everyone,
Have only just joined MN, and was am ve3ry glad to find such a long running thread

I have had CFS for most of my adult life, cant remember when I didnt feel like this, then according to the doc, developed fibro after my dd was born 5 years ago. The specialist I am currently seing isnt sure i have fibro, as my ESR levels in my blood are abnormally high, but everything else is def fibro, - the neverending painful joints, the fog, the fatigue, the total feeling of inadequacy, and overall, as i am on longterm sick leave from work, the suspicious looks from a lot of ignorant mums at the school gate. Not sure if anyone else gets this. I drive to school on my good days as the walk is just too much even on my good days too, and this also doesnt earn me any brownie points

.... How do you all cope with this area?.......I am lucky to have a very supportive mum and dad, and a couple of patient friends, so i know i am luckier than a lot of people, but on a bad day, any optimism dissipears and i worry about how much this condition will affect my daughters upbringing, as i am a single mum.
Sorry if this message is a bit dour, but its been a bad day.......

Don't mean to hijack your thread but someone asked about provigil - I have Multiple Sclerosis and suffer from immense fatigue - I've been on provigil for about six months. It does work wonders for me but while it keeps you awake it is a 'fake' kind of energy - not jittery like caffeine but you do need to rest as well. While physically I can overdo it - you always pay - my MS symptoms resurface when I've done too much. As my toddler gets bigger and more active it means I can have a life. Side effects to begin with are weird (you'll be cleaning like flylady for a week) then it settles down. I only take half a dose and have a break every so often as it seems to stop working after a while. Very hard to get on the NHS and must be treated with caution as it feels quite hardcore. Do mail me if you have any questions...
Hi everyone, happy new year!
Found this thread recently and just popping in to say hi - I don't come on MN very often - I have fibro and have a 6 mth old and 2.5 yr old.
I had got better, but has come back with vengeance since dd2 was born!!
Am trying to hold on to the ' this too shall pass' school of thought...I did get better before..!
hi, i have fibromyalgia and CFS and i have a 16 month old son. He's such a good wee boy. He goes to bed at 10pm and then comes into bed with me at 7am when dh goes to work and then he sleeps till lunchtime. However i am in pain all the time and need tramadol every day and sometimes dihydrocodeine or morphine.
Anyway hope everyone had a great christmas and have a good new year today
