TTC or pregnancy on prednisolone or similar part 10

(1000 Posts)
roseandroli Thu 14-Feb-13 10:17:57

We are now on part 10 of this thread! I hope you can all find this. This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 9: http://www.mumsnet.com/Talk/conception/a1552980-TTC-or-pregnancy-on-prednisolone-or-similar-part-9

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Clabbage Mon 18-Feb-13 21:16:42

Thank you all so much for kind words, support and advice. All so invaluable. I had a read re Greek testing on bc. Thank you for that. ari can you remind me how you went about getting tested and cost as I seem to remember you did it directly.
lawlee I truly hope that all is well.
mollie you are very much in my thoughts, I remember so clearly the overwhelming 'need' for a baby to pour all that stemmed flow of love you feel for your son. (sue too). I was so lucky to very quickly have my dd after Harry died, in truth all my mc's have made me realise just how lucky. I'm not sure how old you are but I hope you have time on your side to have that rainbow.
greenolives thank you for sharing a medical (and personal) viewpoint, it made me feel far less daft!
I'm not sure what my next move is..I guess a bit of healing and then take stock. I am incredibly lucky to have children and really wonder if it's just pure masochism to continue trying. I just cannot imagine giving up. Damn my bloody nature.

Clabbage Mon 18-Feb-13 22:20:23

Oh and massive congratulations to delta, wonderful news

Lawlee Mon 18-Feb-13 22:45:05

Hi all, Cartoon, Rose, Mollie, Belly and Clabbage and everyone thanks so much for thinking of me and for all your kind support especially with the really difficult times some of you are going through. Both of you are in my thoughts Mollie and Clabbage hope you feel a bit better after some time and healing and a chance to work through and find the path that suits each if you best. Mollie I am lucky in that I have a family member who adopted, so although I desperately want my own children, I do at the same have an example of how great that can be as an option and what a tight knit and loving family they are. Hoping it doesn't come to that for either of us though and fc for your take home baby very soon!

Well am hanging on in there. I had a bit of a panic this afternoon because I had actual cramping and the spotting went from (sorry if this is TMI) a little of brown to bright pink, and I really thought that was it. All seems to have eased off now though so got everything crossed that was it done and over with and I am focused on just getting through one day at a time. Don't think it's the cyclogest causing it because of the cramps, but I am trying the other way too (blush) so at least i can rule that out. Have a good evening ladies, tomorrow is another day! X

mollieboo Mon 18-Feb-13 22:53:18

lawlee yes I too hope all is well, spotting does make you worry so much but hopefully its nothing to worry about at all. Thank you for info as I joined the babycentre immunology forum too, head is now spinning after looking at that and looking on adoption websites.

clabbage thank you for understanding just how I feel. I hope you're bearing up ok. Its all such a nightmare isn't it. Good for you for not giving up. I can't help thinking that no matter what I say about stopping trying, as soon as I know I'm about to ovulate I won't be able to not try! I'm 36 so hopefully still time to get there, I guess its good that I get pregnant really quickly although that in itself makes me worry about the unfussy womb theory. I so hope that the treatment works for us both next time and you get your baby too after all of your heartbreaking losses.

greenolives thank you for posting the info and I hope you get your baby soon too. There is so much knowledge on here from all of you ladies.

mollieboo Mon 18-Feb-13 22:56:45

Sorry olives I got confused, it was duggs who posted the info about testing which Mr Shehata doesn't do. Its s busy thread at mo! X

duggs1976 Tue 19-Feb-13 05:42:11

Clabbage - after our last mc on dr s programme with 2 chrimosonalky tested IVF embryos that implanted then failed a week or so later we'd given up. But dr gorgy does the hidden infection testing & spermatozoa DNA fragmentation testing & prescribes treatmemt. If you go direct look up serum lotus clinic in Athens for infection screening and for DNA screening it is the doctors labatory in South Dakota USA.

Arianrhod Tue 19-Feb-13 15:27:58

clabbage The chlamydia test alone is 100 euros, if you add in the additional '7 in 1' infections testing it's an extra 170 euros. I chose to get tested for the lot, and I'm glad I did, even if it hasn't helped me get/stay pregnant. It's easy enough to get tested; you need one of those urine sample tubes (you can get one from most chemists I think; I had one left over from my GP from many, many times of getting tested for UTIs!) and some saline (I used saline drops from Boots). I think you just need a teaspoon of blood. I posted mine off via normal post (I think I sent it International Recorded, but you don't need to) and it got to Serum within about 5 days. When they've got the sample they email you for payment which you can do by bank transfer or Paypal - I used Paypal. Then they email you with the results and if you need it, a prescription for any medications necessary.

If you want to know, this is what they look for in the '7 in 1' tests:

<quote>
an 'ordinary' test for Chlamydia Trachomatis;
a test of total bacterial load, which measures the level of 'good bugs' (lactobacillae) – a reduced population tends to indicate an abnormal vaginal environment caused by another, more hostile, bacteria, such as E-coli, Proteus etc.;
Ureaplasmas;
2 species of Mycoplasmas – Mycoplasma Genitalium and Mycoplasma Hominis;
2 other Bacterial Vaginosis species – Gardnerella Vaginalis and Atopobium Vaginae).
</quote>

Hope that helps!

Arianrhod Tue 19-Feb-13 15:28:37

Oh, and OH got the sperm DNA and SA testing done via Mr S, so it was done at the Doctor's Lab.

mollieboo Tue 19-Feb-13 17:36:30

Hi everyone,

My reflexologist has recommended taking the following vitamins:

Lamberts Strongstart professional grade vitamins and minerals with omega 3 capsules
Co-enzyme Q10 100mg daily
Floradix - a herbal iron tablet that nurtures the blood

All sounds good but am a bit nervous of anything interfering with the steroids etc. Just wondering if anyone else has taken any or all of these? I think I'll get the Lamberts multi vits to take instead of Pregnacare and Floradix but not sure about the co-enzyme Q10.

Might check with the Miscarriage Clinic first that its ok to take them.

Thanks for any advice x

Clabbage Tue 19-Feb-13 20:25:32

Thank you duggs and ari. I really appreciate that.
mollie I've no idea on those vits but hope you get the answers.

lawlee how are you doing?

Arianrhod Tue 19-Feb-13 20:47:28

mollie Mr S told me to take Co-Q10 when I first saw him, an it has absolutely no reactions with steroids, so don't worry. I take LOTS of supplements, none of which has any effect on steroids. Don't worry smile

13Iggis Tue 19-Feb-13 20:50:23

Mollie just to echo what Ari has said - I took co-enzyme Q10, folic acid, pregnacare, spatone (like floradix, though only once pg), selenium, vit D, and god knows what else.

suemays Tue 19-Feb-13 21:21:10

Hi ladies, just thought I would add to the ivf with cgh discussion. We were told that even with paying extra for this if the pregnancy had not been natural we would still have had the development issues with scarlet as it wouldn't pick it up. This could be a reason why ivf didn't work for you duggs as it could just be bad luck twice for you with ivf in the respect that your body knew the eggs would have development probs. it doesn't necessarily mean that you do have other underlying issues. If only we could get a definite answer why we miscarry etc it would be easier to treat it. I know the bad luck thing sounds a bit far fetched but then look at my situation and also other ladies that have lost children and then had miscarriages.

mollieboo Tue 19-Feb-13 21:25:52

Thanks ari and iggi, will stock up on vits tomorrow smile x

duggs1976 Tue 19-Feb-13 21:48:02

Yes sue fair point. How are you doing? Also choccy and pebbles too?

Lawlee Tue 19-Feb-13 22:39:35

Hi all, Clabbage I'm ok ta, thought the spotting and cramping had stopped but it came back this afternoon, but am doing ok otherwise. Bit mental busy in the office so having to pull some longer hours which is really bad timing with the fatigue that usually kicks off in the first weeks for me, but at least it's keeping my from fretting 24 hours a day! How are you doing now? Hope you are feeling relatively ok? Mollie too? I'm glad the bc info was useful and interesting chat on here about ivf etc I am following it all but going to crash out in bed now as I am exhausted! More tomorrow I'm sure. Big waves and hugs to everyone, hope you are all doing ok x

ChoccyPud Wed 20-Feb-13 13:48:25

Just a quick hello from me... Nothing to report here at the moment except I had the hysteroscopy which was fine, no issues, and I now have some nice scoring in my uterine lining to help with implantation and release some good cytokines to try to balance out my bad ones.

Not much effort put in this month in terms of timing ttc nor ov sticks to time starting Pred (found I'd run out!) so if I got a BFP it would be a hell of a lucky strike. Tbh it's just been nice to feel human, allowed to swi/swoi and LIVE without stressing too much about when we do it. I'm taking the Pred though just in case - with my history I'd be silly not to.

I was put on to Floradix recently after bleeding for a month or so after my last mc. I'd felt exhausted the whole time and it really helped perk me up. No ill effects.

Waves to all who remember me and very belated welcomes and whispered congrats to the newly upduffed and those with new arrivals. Special hugs to Kittens going to ante natal class and being only a few weeks away from meeting your longed for little one, I'm all warm and fuzzy here!

If anyone is doing the list, please could you update me to say mc's April and November 2012. Thanks smile

Arianrhod Wed 20-Feb-13 14:20:14

Good to 'see' you choccy smile

mollieboo Wed 20-Feb-13 15:06:43

Hi choccy, I've just this minute bought a large pack of Floridix to help after my mc last week so its good to hear that it did you good. Hope you have some luck after your procedure and a bit of a rest.

Thanks lawlee am doing ok, v worried about future but will have another go soon, as you do!

Hi to everyone else too.

duggs1976 Wed 20-Feb-13 21:29:58

Hey choccy lovely to hear from you! Your are humira covered now aren't you?

ChoccyPud Thu 21-Feb-13 19:06:10

Duggs humira is supposed to stay in your system for 6-9 months so I've still got some time left on it. How's things with you?

CateN Thu 21-Feb-13 21:45:19

Just checking in as I see my name is still on the list. Am 31 weeks now with a little boy and everything seems fine. Wishing everybody on here the very best of luck and thank you to all who helped me during the first tough few months of this pregnancy

BellyD Thu 21-Feb-13 22:41:56

Hi Cate good to hear your pregnancy is progressing well.

Just lurking for news from Sarah. I think she was having her c-section today.

Havingkittens Sat 23-Feb-13 17:28:06

Not been on here for a while, it's been busy again!

Just posting quickly to answer rose - I have had excellent care from UCH. I am in a different area to you, in Islington, so not covered by the same midwife team but my midwife is lovely and really helpful. I have had a couple of extra appointments later in my pregnancy due to MC history, so that's reassuring too. In the last few weeks I've had a lot of back pain and now starting to get pelvic pain so my midwife referred me for physio and it only took 2 weeks to get an appointment. They seem pretty efficient. Although she also referred me for acupuncture to try and turn the baby, who is currently breech and I've just got my appointment through and it's not for a month which will be too late - but she may be able to chase it up and get something earlier. We'll see. I've been pretty impressed with them so far. Also, I've hardly spent any time at all in the waiting rooms. They are very prompt with their appointments. Not like the old days!

Hello to everyone else. Sorry, this is a bit of a fleeting visit!

Lawlee Sun 24-Feb-13 07:05:46

Morning all, yes 6:30 and I have been awake at least an hour, oh well smile Sorry I've been a bit AWOL this week, work has just been absorbing every hour of my time and then we have friends staying this weekend that has kept us busy! It's been a great way to get through the last few days though as I've had no time to worry. Got a date for my first early scan now, 13 March, which seems like a lifetime away, but hopefully the time will go quickly. I am trying not to obsess about all the things that can go wrong between now and then and just focus on feeling positive each day that I'm still pregnant. Easier said than done in the wee hours of the morning of course, especially as I don't seem to have my usual symptoms of sore boobs and nausea. On the plus side I did finally manage to get myself some omeprazole last week, which turns out they had just forgotten to prescribe me, and it has actually changed my life. I think it is amazing! I didn't realise how nagging the constant little digs of heartburn had become (had it ever since my first loss unfortunately) and how much it had affected me and my eating patterns until I was suddenly free of it! So glad I went back and asked, thankyou whoever it was that told me about it! KittensI think?
How are we all anyway? Kittens glad to hear you had good care from UCH, how was your antenatal class?
Hello Cate, always lovely to hear from someone further along that's doing well. At not 5 weeks myself yet its a long road so all the positive vibes and inspiritation I can get from seeing lovely ladies like yourself doing so well is great! How are you feeling these days, must be starting to get a bit excited?
Hi Choccy nice to meet u as it were, sounds great about the uterine scoring and the relaxed month, fingers crossed it does the trick! Sometimes being more relaxed for a bit is exactly what your body needs I think. For me this cycle that we got a positive we actually only swi three times in total(!) so you never know, but either way sometimes it's just nice anyway to not have to think about it all too hard isn't it.
Mollie and Clabbage Hope you are both doing ok and having nice weekends.
Big waves and hugs to everyone else, how are you all getting on? How are you doing Cartoon did the spotting ease off in the end? Xx

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