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Conception

TTC or pregnancy on prednisolone or similar part 10

999 replies

roseandroli · 14/02/2013 10:17

We are now on part 10 of this thread! I hope you can all find this. This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 9: www.mumsnet.com/Talk/conception/a1552980-TTC-or-pregnancy-on-prednisolone-or-similar-part-9

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
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cartoontrickster · 14/02/2013 10:47

found you!

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Arianrhod · 14/02/2013 11:05

Marking my place.

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Lawlee · 14/02/2013 12:16

Thank you Rose I wasn't sure how to do that from my phone!

Cartoon thanks, don't know about you but I've got to have something to worry about lol. For example my current paranoia is that because they didn't see anything on the scan yesterday this will turn out to be ectopic, even though logically i know that at less than 4 weeks its probably just not possible to see anything yet! I think it's a natural reaction to what we've been through to worry.
Yes I have a clearblue digi in reserve for Tues next week when AF would normally be due, till then I'm going to keep using the Superdrug ones and see how I get on. I know it's obsessive but I did a second test this morning and line still there though faint, so yay not an evap!
I don't know if we would have seen each other because I see Mr S under the NHS so my scan was at St Helier in the general gynae place and not with him personally. Was that where you were? I was there for a 2:15 appnt but they were running quite late. If we were there together I was the one looking like a zombie lol (literally not a wink of sleep in the last 2 days!) and had a red jumper on carrying a white coat. X

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cartoontrickster · 14/02/2013 12:27

oh right no then. I see him at New life in Epsom. always wonder though when I'm there if anyone else from this thread is there too. was it difficult to get on the NHS?
my dh says I'm not happy unless I have something to worry about!

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GreenOlives · 14/02/2013 12:46

Place marking!

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Lawlee · 14/02/2013 12:47

Not too bad but I think I was just lucky in where I lived. I have only actually seen him once myself, I think on the NHS you get referred to his clinic as a whole an then see whoever is free when you need the appointment rather than just to him personally. Fine by me as long as the treatment is the same! I don't think intralipids are usually included in the NHS treatment though so looking into whether its worth me going private for those, but my main contact at the clinic I away till Tues so will have to wait till then to find out.
Lol maybe we should all have secret hand signals or something to identify ourselves when we r there! X

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cartoontrickster · 14/02/2013 13:07

haha lawlee brilliant we so should! your so lucky. this is costing a fortune! totally worth it so far though obvs but wow its expensive.
mollie sorry I forgot to say that I'm really pleased your doing ok and that your feeling fairly positive about things. onwards and upwards!Smile

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Lawlee · 14/02/2013 13:16

I know and believe me I am grateful every day. I would and will pay for whatever is needed to make this work though even if I have to scrape together pennies from the back of the sofa to do it, I don't expect it's going to be a cheap ride all the way regardless! I did hear before that some of the ladies on here managed to get their drs to convert their prescription to NHS ones, so might that be worth looking into for you to save a bit on the cost side? Xx

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mollieboo · 14/02/2013 13:18

Thursday 14 February 2013
30 November 2012

The babies are arriving!
Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4
coleyoz - V High NKC. DC#2, BFP cycle2, 41+1 - Baby born??!
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin. Baby boy James born 29/08/12, 6lb and 6oz at 36+5
PQ77 - DC#2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) Jonty (Jonathan) Edward arrived by c section 10/09/12 4lb 15 / 2.23 kg 33+1 wks
Mercator - DC#2 V High NKC, (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) DD arrived by ELCS 14/09/12 7lb 2oz
Hopefulfor2nd - High NKC - TTC#2. ? baby here name?
Dunnit - V High NKC - , IVIG, Cyclogest and Clexane. baby here name?
HelterSkelter (IVF and immune therapy) - baby name here?

3rd Trimester
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 39wks
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 38+5
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 37+5
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 37 wks
Jemimapuddleduk (33). 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 34+5 wks
HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 33+1,
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 29+4
Cate - DD followed by 6 mc, VHNKC 40mg pred, intralipids, 28+4w

2nd Trimester
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosome, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov. 27+3

1st Trimester
cartoonface
roseandroli

1st Trimester Awaiting Scans
lawlee

TTC ? ASSISTANCE - TTC 2nd or more
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Arianrhod - TTC#2 DD then 6 mcs 5-9 wks (3 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxy) ? super ov
Brownstag - High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov and DHEA
LJ71 - two older DCs, 7 mcs, 3 on treatment. SO, pred, hydroxy

TTC ? UNASSISTED - TTC 2ND or more
Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Mollieboo - 1 DS (lost my little angel at 5 months old), 7 mcs (2 on treatment), high NKC - pred, hydroxy, intralipids, aspirin, clexane, cyclogest
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks, one loss @ 22 weeks. V High NKC. (Pred & Hydroxychloroquine)

TTC ? ASSISTANCE - TTC 1st
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 ? last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC
Coopde -TTC 3 years - thyroid issues, High NKC, ivf #1 Bfp m/c 5 weeks, ivf #2 Bfn. Seeing Dr G for more tests before trying frozen embryo. Meanwhile still 'unexplained' infertility.

TTC ? UNASSISTED - TTC 1st
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks
SWLondonnanny - 8 early losses hydroxy, thyroid issues, family history of autoimmune disorders
ConeyIslandBaby - 5 mc around 6 weeks, normal NKC but on Pred, progesterone and intralipids on bfp

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mollieboo · 14/02/2013 13:23

Hi girls, I've just updated the list, it was last updated on 30 November, just realised I mistakenly left 30 November on top of list. Anyway I have no idea if its accurate now so can you all please let me know of any amendments and I'll amend whatever's needed. cartoon, rose and lawlee can you please let me know your history, treatment and weeks and days pregnant for me to add? Or feel free to do it yourselves of course but just thought it might be easier for me to amend lots in one go. Sorry if my maths is all over the place.

Just hope I get to the top one day, doesn't feel like it at the moment. Am starting to worry that there's something seriously wrong with me as I've had 2 mcs since seeing Mr Shehata.

lawlee that's great news about your bfp. Superdrug tests are lots more sensitive than ics imo so don't worry that they're not showing up as bfp yet.

Hope everyone else ok too x

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cartoontrickster · 14/02/2013 13:26

lawlee that's good to know. although my local Tesco seems to price it fairly reasonably cheaper than boots anyway. and there's been a couple of times when I've only needed pred and its only cost around £3. I pharmacists can charge what they like for private prescriptions.
what I want to know is why preg multi vits are so pricey. I know there usually 3 for 2 but still!
thanks for the list mollie!

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cartoontrickster · 14/02/2013 13:28

x post mollie has Mr s said where you go from here?
umm I'm 9wks today with my first.
after 2 mmcs (not on treatment) conceived on first cycle with Mr s.
thanks I can't do it from my phone.

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BellyD · 14/02/2013 13:49

Thanks for starting the new thread and updating the list Mollie - I am sadly up to mc no. 6 now (including 2 under Mr S, like you.)

Free the 10th thread - amazing, but such an unbelievably brilliant source of support, advice and knowledge, although I obvs wish that none of us had any need for it whatsoever.

Lawlee sounding good about the bfp and if AF not due until Tues then it is still early days. Keeping everything crossed for you.

Ari thanks for advice about checking on FF website for gcsf info - will take a look. Does HTH stand for happy to help?! Really appreciate your wealth of knowledge, as always. Dr Ndukwe was so refreshing in that unfortunately he has experienced a miscarriage himself. Such a relief to speak to a Dr who actually knows what it is like. Makes you feel so much more human and less like a scientific experiment, or jigsaw with a missing piece. Having to wait until May for ivf, which feels like an eternity away but will give me time to get my body/mind in shape. Will keep you all updated on gcsf... which is apparently something normally given to cancer patients after chemo to boost their white blood cells.

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roseandroli · 14/02/2013 14:26

mollie thank you so much for updating the list!

Here are my stats: roseandroli (37) TTC #1 High NKC, 2 mcs, 11+4

cartoon I am so happy to hear that your scan went well. What a relief. When I saw Mr. Shehata on Monday, he said, "you're not losing this baby, not on my watch" which was such a lovely thing for him to say, but I'm still riddled with anxiety, and can't quite believe there may be a baby at the end of this story.

So I totally understand what you and lawlee mean about having something to worry about. I have my 12 week nuchal scan on Monday, and have no idea what to expect. Been reading all sorts of stuff online about chromosomal abnormalities. Also, because I was away for so long, I still haven't even had my booking in appointment with the gp or midwife, so the scan is the first "official" thing I'm doing.

I just wanted to also say hello to accidental. I read your post and I'm sorry I don't know anything about Hydroxy treatment, so I can't help. I wonder if you could speak with Louise about it, she may be able to tell you about others who have tried the treatment without pred?

OP posts:
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cartoontrickster · 14/02/2013 14:52

rose I find him quite reassuring but I know what you mean it is hard. I'm off to sort out booking in with the NHS later. that feels a bit more real.
mollie forgot too add I'm on the treatment for very high nk cells.

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Clabbage · 14/02/2013 14:59

Hi all.
Mollie..I'm so sorry that your most recent pregnancy didn't work out.

abney I am thrilled to hear this is working out for you after so many losses, likewise, kittens. Massive congrats to all newly pregnant ladies.

Well I got a bfp and immediately went to ground (very much my way). Had a scan at 6, 2. Measured 5w 5 days, no embryo. Went back on Monday (7 w 1 by adjusted date) and had an embryo with hb but tiny (6, 2). The sonographer said she was 'concerned'..that's never good eh? Anyway, this seems to be what happens every time now, sac appears, hb momentarily, always measuring behind and I miscarry at about 9 weeks (by lmp). I think this will be the fifth time out of what I suspect will now be 8 mc's.
So I am rescanned next wed. I know all is not lost but with that history, I have to be realistic. I desperately don't want to mc naturally. My partner is away next week and I just want to have some control over the circumstances. Isn't it ridiculous what our goals become!
Wondering how Duggs, Choccy, Scooterchaser and other absent friends are?

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TheAccidentalExhibitionist · 14/02/2013 15:44

Thanks roseandroli I'm going to email Louise now and hopefully get some reassurance. I would prefer to be on the Prednisolone. When I get pregnant it will be my 8th pregnancy, with one child so I'm keen to throw everything at it.

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mollieboo · 14/02/2013 15:48

accidental sorry that you're going through so much uncertainty about your treatment plan. It is all such a worry, I hope you get some advice so that you can go into a pregnancy with some confidence and reassurance.

clabbage I really feel for you, I'm so sorry that you're going through all of this. I just went through weeks of uncertainty and horrible scans and can totally relate to how tough and stressful it is. Yes it is bizarre what our goals become, choosing how we miscarry so that we have some control, I feel like I live in a parallel universe to my friends and colleagues. All is not lost as you say, all you can do is wait which is so difficult when you're worried. I really hope it works out for you this time. Are you on the steroids treatment plan for high nk cells if you don't mind me asking?

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mollieboo · 14/02/2013 15:53

Thursday 14 February 2013

The babies are arriving!
Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4
coleyoz - V High NKC. DC#2, BFP cycle2, 41+1 - Baby born??!
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin. Baby boy James born 29/08/12, 6lb and 6oz at 36+5
PQ77 - DC#2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) Jonty (Jonathan) Edward arrived by c section 10/09/12 4lb 15 / 2.23 kg 33+1 wks
Mercator - DC#2 V High NKC, (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) DD arrived by ELCS 14/09/12 7lb 2oz
Hopefulfor2nd - High NKC - TTC#2 ? baby here name?
Dunnit - V High NKC - , IVIG, Cyclogest and Clexane. baby here name?
HelterSkelter - IVF and immune therapy - baby name here?

3rd Trimester
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 39w
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP, 38+5w
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 37+5w
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 37 wks
Jemimapuddleduk - (33) 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 34+5 wks
HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 33+1,
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 29+4
Cate - DD followed by 6 mc, VHNKC 40mg pred, intralipids, 28+4w

2nd Trimester
Abney - (44), TTC#2, SO 2, 6 MC No pred (2 chromosome, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov. 27+3

1st Trimester
cartoonface - 2 mmcs, v high NKC, 9w
roseandroli - (37) TTC #1 High NKC, 2 mcs, 11+4w

1st Trimester Awaiting Scans
lawlee

TTC ? ASSISTANCE - TTC 2nd or more
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Arianrhod - TTC#2 DD then 6 mcs 5-9 wks (3 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxy) ? super ov
Brownstag - High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov and DHEA
LJ71 - two older DCs, 7 mcs, 3 on treatment. SO, pred, hydroxy

TTC ? UNASSISTED - TTC 2ND or more
Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Mollieboo - 1 DS (lost my little angel at 5 months old), 7 mcs (2 on treatment), high NKC - pred, hydroxy, intralipids, aspirin, clexane, cyclogest
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks, one loss @ 22 weeks. V High NKC. (Pred & Hydroxychloroquine)

TTC ? ASSISTANCE - TTC 1st
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 ? last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC
Coopde -TTC 3 years - thyroid issues, High NKC, ivf #1 Bfp m/c 5 weeks, ivf #2 Bfn. Seeing Dr G for more tests before trying frozen embryo. Meanwhile still 'unexplained' infertility.

TTC ? UNASSISTED - TTC 1st
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks
SWLondonnanny - 8 early losses hydroxy, thyroid issues, family history of autoimmune disorders
ConeyIslandBaby - 5 mc around 6 weeks, normal NKC but on Pred, progesterone and intralipids on bfp

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TheAccidentalExhibitionist · 14/02/2013 15:57

Anyone got an email address for Louise, I haven't spoken to her before and only have the email for making appointments.
TIA

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mollieboo · 14/02/2013 15:58

This reply has been deleted

Message withdrawn at poster's request.

TheAccidentalExhibitionist · 14/02/2013 16:01

Thanks Mollieboo

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Lawlee · 14/02/2013 17:28

Hi all, wow Mollie that's quite a list, thanks for doing that! Here's me:
Lawlee (32) TTC #1 very high nk cells, high activation 1 mmc at 8/9 wks (erpc at 11) & 2 early mc all since Jun 2012 now on cycle 1 on prednisolone, (very faint) bfp today

BellyD so sorry to hear what you've been through but glad you seem to have a great consultant and that he is looking after you. Fingers crossed for the treatment, and the IVF, hope the time goes quick and May is here before you know it!

Rose will be thinking of you on Monday, hope it goes really well. Dr Google never helps does it! After they said I had a bit of adenomyosis yesterday I've been looking it up and google seems to be suggesting the recommended treatment in severe cases is hysterectomy! Ha thanks google! I know it's hard but I guess we can only try not to read too much into what we find on google. Hope you are doing ok.

Clabbage I'm so sorry to hear what you are going through, it's so hard and just not fair, the wait is horrid. I totally get the feeling of wanting to wrest some control back, I felt that way with my mmc. I hope so much you get some good news and it works out, we will all be here thinking of you

Cartoon hope you are still feeling on a high from your scan! Yes preg vits are ridiculously pricey aren't they, am tempted by amazon sometimes but scared to buy online like that.

Accidental hope Louise is able to help you! Fingers crossed for you they can give you some advice

Big waves and sorry if I missed anyone out, hard to keep up on the phone sometimes!

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TheAccidentalExhibitionist · 14/02/2013 18:21

mollieboo can you add me?
TheAccidentalExhibitionist (39) TTC #2, 5MC diagnosed High NKC, Hydroxy, Intralipids and hopefully Pred.
Thanks

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mollieboo · 14/02/2013 19:19

Thursday 14 February 2013

The babies are arriving!
Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4
coleyoz - V High NKC. DC#2, BFP cycle2, 41+1 - Baby born??!
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin. Baby boy James born 29/08/12, 6lb and 6oz at 36+5
PQ77 - DC#2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) Jonty (Jonathan) Edward arrived by c section 10/09/12 4lb 15 / 2.23 kg 33+1 wks
Mercator - DC#2 V High NKC, (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) DD arrived by ELCS 14/09/12 7lb 2oz
Hopefulfor2nd - High NKC - TTC#2 ? baby here name?
Dunnit - V High NKC - , IVIG, Cyclogest and Clexane. baby here name?
HelterSkelter - IVF and immune therapy - baby name here?

3rd Trimester
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 39w
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP, 38+5w
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 37+5w
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 37 wks
Jemimapuddleduk - (33) 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 34+5 wks
HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 33+1,
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 29+4
Cate - DD followed by 6 mc, VHNKC 40mg pred, intralipids, 28+4w

2nd Trimester
Abney - (44), TTC#2, SO 2, 6 MC No pred (2 chromosome, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov. 27+3

1st Trimester
cartoonface - 2 mmcs, v high NKC, 9w
roseandroli - (37) TTC #1 High NKC, 2 mcs, 11+4w

1st Trimester Awaiting Scans
Lawlee (32) TTC #1 V high NK cells, high activation 1 mmc at 8/9 wks (erpc at 11) & 2 early mc all since Jun 2012 now on cycle 1 on prednisolone, (very faint) bfp today

TTC ? ASSISTANCE - TTC 2nd or more
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Arianrhod - TTC#2 DD then 6 mcs 5-9 wks (3 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxy) ? super ov
Brownstag - High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov and DHEA
LJ71 - two older DCs, 7 mcs, 3 on treatment. SO, pred, hydroxy

TTC ? UNASSISTED - TTC 2ND or more
Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Mollieboo (36) - 1 DS (lost my little angel at 5 months old), 7 mcs (2 on treatment), high NKC - pred, hydroxy, intralipids, aspirin, clexane, cyclogest
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks, one loss @ 22 weeks. V High NKC. (Pred & Hydroxychloroquine)
TheAccidentalExhibitionist (39) TTC #2, 5MC diagnosed High NKC, Hydroxy, Intralipids and hopefully Pred

TTC ? ASSISTANCE - TTC 1st
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 ? last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC
Coopde -TTC 3 years - thyroid issues, High NKC, ivf #1 Bfp m/c 5 weeks, ivf #2 Bfn. Seeing Dr G for more tests before trying frozen embryo. Meanwhile still 'unexplained' infertility.

TTC ? UNASSISTED - TTC 1st
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks
SWLondonnanny - 8 early losses hydroxy, thyroid issues, family history of autoimmune disorders
ConeyIslandBaby - 5 mc around 6 weeks, normal NKC but on Pred, progesterone and intralipids on bfp

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