PCOS and ttc!

(191 Posts)
KylieP Sun 13-May-12 21:02:40

Someone just suggested setting up a PCOS and ttc thread - I'm on the June ttc thread but would love to hear from other PCOS'ers too!

imaginationzero Sat 22-Jun-13 16:20:39

KR33, I have had Ovid since I was 16 (now 30). I mc at 12 weeks Dec 2011 and have been ttc since. Found out on Wed I am pg 5wks +1 now.

After ttc went to gp and was referred to community gyne. Pug on Clomid for 4 months and conceived in the 4th month.

Haven't got ms or many symptoms but I hope (?) they will come as I didn't have any last time and that might have been why I mc?

Good luck!

KR33 Thu 16-May-13 11:48:32

Hi all,

I'd like to join this thread too please.

A quick summary - ttc 1st baby. 33y.o,
GP recently told me he is almost certain i have PCOS due to a long history of irregular cycles (stopped completely for 9 months when I was 20 though no cause was found and they did re-start), acne and mild hirsutism, ibs symptoms a MMC at 12weeks in November and very long cycles since the mc (last cycle was 63days long), though I am not overweight and actually conceived very quickly with the pregnancy I lost.
He has basically said i need to go away and keep ttc for a further 6 months now as he needs more evidence of my long cycles to refer me to a fertility clinic as I did'nt have AF s for a while before i came off contraception to ttc (was using the implant latterly).
I did have blood tests on the last cycle, which indicate I did ovulate that time - though based on my cycle length, GP said he doesn't think I am ovulating every cycle(?)

Given my previous mmc and very long cycles, i am a little concerned that, even if i do manage to conceive again, nothing has changed to prevent it happening again and that my egg quality may be poor... (I am trying to eat more healthily and exercise more but am not overweight and already don't consume caffeine, alcohol, excess sugar., carbs fat etc etc and exercise for an average of 1 hr a day).

I have also suffered from migraines with aura since I was 11 (my AF didn't start until i was 15), though clotting issues were ruled out in a blood test after my mmc (I had bruising and pain behind my knee, that was dismissed by the midwife, around the time i later found out things went wrong with my pregnancy). I know though that clotting issues are quite hard to diagnose?

I also have a specific question - i have a lot of lower back pain, some pink cm, ea faint +ve on opk strips and worsening acne around day 15 of my cycle usually, but haven't ovulated until at least day 29 since my mc (egg white-like cm and very dark lh, plus AF arriving 14 days later seem to prove i am ovulating at the later date).
Has anyone else experienced this and Is is possible the first LH rise / pink cm is indicative of a failed ovulation - ie my body is trying and failing to ovulate around day 15, then achieving ovulation a few weeks later - explaining the very long cycle?
Ican only find examples of failed ovulation being followed by actual ovulation within a couple of days of each other - due to as cold for example.

Thanks in advance, sorry for the long ramble and good luck everybody :-)

K

Knitella Tue 12-Feb-13 18:28:09

Hi Schnikki

If I was you I'd go to my GP and explain that you have been trying and need some guidance on the next steps. Hopefully trying for 6 months will be enough for an immediate fertility referral in your circumstances.

Fingers crossed that things go well for you!

Schnikki Mon 11-Feb-13 19:31:03

Hi

I'm 26 and was diagnosed with PCOS when I was 15. I don't have periods at all naturally and have to take Utovlan every 3 - 6 months to have a bleed.

I recently got married and now want to start ttc but don't really know where to start (have been having unprotected sex for 6 months). Do I need to book an appointment with my GP to get things started or can I book an apt with a hospital directly? If a referral is needed, is it possible to say how long this takes on average (appreciate there may be no such thing!) How important is it to have a GP who knows about PCOS? Any tips/guidance for someone starting out and what to expect would be greatly appreciated.

Apologies for the novice questions but I'm not really sure where to start and feel a bit overwhelmed.

Thanks x

creativecatalyst Wed 10-Oct-12 10:29:53

I found a new charity/support site for PCOS if anyone is interested they sound nice - good name too! No web site but they have a facebook page https://www.facebook.com/PcosInspirationFoundation

I have been on mumsnet before after i m/c ttc baby number 2. My docs keep fobbing me off about my weight being the cause etc now i have been diagnosed with PCOS. I know i am lucky as i have ds who is now 3 but i feel lost with this scared thats it for me baby wise. doc said he is starting me on meds as soon as my bloods come back next week. He said i had different options??

imaginationzero Wed 18-Jul-12 18:07:19

Thanks for the messages of support Steph, Attila and Jazzy.

My aunt announced she was pg last weekend, she is in her 40's, and has many health issues and had pretty much given up trying. I am so pleased for her, not jealous at all, but I still cried. If I hadn't mg, then baby would have been due last week sad

I kind of feel I don't really know what to do next, similar to you Jazzy but my cycles are really long.

I did go back to the doctor and ask to be re-referred to gyne, but haven't heard anything yet. Then that will all take time I guess. I have started taking Agnus Castus, as well as the Pregnacare conception, but nothing yet.

Are there any 'mood' signs of ovulation like tiredness or moodiness or anything, or is it just the tricky stuff like temperature and discharge? Sorry, I've been pretty lazy about this whole process so far.

JazzyTTC Fri 13-Jul-12 16:17:59

Really sorry about your mc imaginationzero.

I am on CD 2. TTC cycle 4 starts. I have been diagnosed with PCOS in March (at my home country) just before I could fly down to UK to stay with DH for the first time and had been advised to avoid protection and try for a baby right away.

My periods are regular 28-30 days, I am not over-weight and I follow a pretty healthy diet, almost completely vegetarian except once or twice in a week with few chicken pieces, thats abt it all.

I am very sure that DH and I BDed on d right days and I kind of think I ovulated on CD 14/15 with the egg white CM discharge and a lil ovulation pain types. I dont use OPKs, chart temps. DH against it to avoid getting me stressed.

Not really sure how I shud go abt it. Please advise. sad

StephN31 Thu 12-Jul-12 21:31:10

Apologies for rant earlier, realise how insensitive it was not to acknowledge those who have been able to conceive against all the odds of pcos and then mc. I simply can't begin to imagine what you've been through Imagination. Good on you for seeking support, I hope you won't give up and that things work out the way you want them to x

Imagination

Was very sorry to read about your miscarriage.

You may want to give the Miscarriage Association a call; they may well be able to help you here.

A word re temp charting. Temp charting can be very problematic for PCOS patients as well to use; you could end up with a chart akin to the Rocky Mountains. Gynaes tend not to take any real notice of temp charts anyway because they can be so unreliable.

StephN31 Thu 12-Jul-12 12:55:58

Finding this whole business really tough at the moment, especially reading what other people are going through. I was so sure I ov two weeks ago, due to test on Sat. This would be an exciting time if I could rely on my ovaries! Bloomin PCOS! I don't dare, not sure if I want to see yet another neg result. I'm anticipating that I'll be offered Clomid during our next app at the clinic laster this month. I've read that there's a 50-60% chance of conception after 6 months. We've been trying for 14 months now. Also read that a healthy couple with no physical issues have around 25% chance of conception. This all just doesn't make sense. I work in a hospital and see people everywhere with babies and children! How on earth have we evolved with those stats!!! I keep trying to switch off and just let it happen. Problem is this is something I've wanted for as long as I can remember, why can't these clinics put us out of our misery with all this monitoring, timing and testing?! There must be an easier way, surely! If only IVF was cheap.
Ok, rant over.. blush

CaveMum Sun 08-Jul-12 19:44:01

Yes, they call it Basal Body Temperature (BBT) as you should take it first thing in the morning before you get out of bed.

Charting your temperature throughout your cycle will help you to see when you ovulate. It can only tell you after ov has occurred - your temperature rises by up to 0.5 of a degree after ovulation, but you need 3 days of consistently higher than usual temps to confirm ov has taken place. It can't tell you if you are about to ovulate, but by charting over a period of a few months you may start to see patterns emerging that can help you to predict ov in the future.

You need a specific type of thermometer, sensitive to 0.1 of a degree (most are only 0.2 so not good enough for charting), like this.

imaginationzero Sun 08-Jul-12 19:23:36

Flooded thank you for your suggestion. I say didn't tell anyone - I meant outside of close family and friends. I was waiting for the 12 weeks to be 'safe' before telling anyone, which I did, then mg.

I did take metformin about 5 years ago for 6 months or so for a weight control thing. It made me really ill, and totally put me off food so I stopped taking it. I'm not overweight (and never really have been), I do a lot of exercise and eay reasonably well.

CaveMum you say temperature is a better measure - does tha tmean body temperature, or something specific?

Thanks for your words of advice smile

Flooded Sun 08-Jul-12 17:47:52

Hello imagibe sorry to hear of your mc. Is there anyone in real life you can talk to? I don't really understand the not talking about mc with friends. The only people i would tell in pregnancy are the ones who's support I would want if anything go wrong. Its nit too late to talk to a friend or relative that you were pregnant, especially this week.

I've started doing the opk just to see if I amovulating. I am only taking it as a positive if get wack and positive. Have 6-7 week cycle at the mo. Been taking metformin 1500mg for 4 weeks and still having 7 week cycles and have lost no weight. How long did it take others to loose weight/get shorter cycles or should I countmyself lucky they're no longer 12weeks?

CaveMum Sun 08-Jul-12 11:05:43

imagination so sorry to hear of your mc. This TTC lark is extremely painful at times.

I would just pre-warn those of you using OPKs that they are not recommended for women with PCOS. One of the (many) possible symptoms of PCOS is a raised LH level, which will give you false positives on an OPK. I'll hold my hands up and admit that I did use them for a while, but fact is over the 4 cycles I used them they were only right once.

Observing your cervical mucus, cervix position and charting your temperatures is far more reliable.

imaginationzero Sun 08-Jul-12 09:47:29

Hello

I'm really new here, looking for some help and advice after a mc on 25 December 2011.

I've known I've had pcos since I was 16 (now 29) and when my husband and I decided we wanted to start a family, I was aware that there might be difficulties. I was referred to gyne at the local hospital and had a few appointments, including MRI to check health of 'equipment', and a weird x-ray thing to check for blockages both of which came back clear. Found I was pregnant in Nov '11 completely to our surprise and we were both overjoyed. I had been and continued to live a healthy lifestyle, doing loads of exercise and eating healthily. Not cutting out anything in particular though, except alcohol after I found I was pg.

Sadly had a mc on Christmas Day at 12 weeks. On the bright side, at least the hospital was quiet and I got seen and operated on quickly.

Sine then, regular cycles have started again (3 times) lasting 6 weeks. I have bought a ovulation kit, so hoping that this month will be the month. I have read your posts and will try agnus castus, and am taking Pregnacare Conception www.hollandandbarrett.com/pages/product_detail.asp?pid=1555&prodid=1657&bid=127 which seemed to work last time.

My baby would have been due last week, so crying a lot when I think about it. My husband tells me just not to think about, which I appreciate, but it doesn't really help.

So difficult, as I didnt tell anyone really that I was pg, so can't really talk about it. Nice to get it all out in the open on here, and any advice really appreciated.

Thank you for listening (reading).

Widgetstars Sun 01-Jul-12 20:30:25

PS congrats to LittleMiss!

Widgetstars Sun 01-Jul-12 20:29:03

Hi Everyone,

Hope it's ok to join? I'm a real newbie to PCOS and a whole host of other medical issues that have popped up since I have been ttc (for 18 months) and I was hoping to ask you all if anyone else has all of the same conditions/issues?

I had never really had regular periods and it hadn't really bothered me. I wasn't ever able to take the pill as I would get terrible migraines.

I went to my GP to ask for a fertility screening as I have fibroids and ovarian cysts in my family (mother and sister) and I had also started to get very painful periods, which were much heavier. We also have diabetes in my mum's family (EVERYONE has type II) so I am checked for this and have been told I have insulin resistance so try to follow a low GI diet. (I am 33 BTW)

I went for an internal ultrasound and blood tests. When I got the results back I was a bit shocked but it all started to add up! My GP diagnosed an under active thyroid, raised prolactin and PCOS!

Luckily she was a Metformin fan and started me on this immediately and soon after I have started on Levothyroxine. I have seen the Endocrinologist and he has confirmed the hypothyroidism and the PCOS and I have recently had an MRI to check for a prolactinoma (tumour on the pituitary gland) which could be causing the raised pro-lactin.

I am just waiting the results of the MRI and also to see the fertility specialist at the hospital. I realise from reading threads here and other forums that I am VERY lucky to have been started on treatment and also to have been seen so quickly at the hospital. (Although I have to admit that I did spend a few days calling for a cancellation appt)

Now that all this has come out the symptoms are now adding up! I just never connected any of them to PCOS or Hypothyroidism!

At the moment I know that I do ovulate sometimes but my cycles are still jumping from 20-33 days (despite the Metformin for 5 months) and I have been using the Ov kits (although I have just learnt here that they don't always work for PCOS'ers!)

The reason I wanted to join the thread is to see if anyone else has experience of all three of these conditions and has any advice or experience of what comes next in the fertility journey?

It's all come as a real shock and both myself and my DH I think were expecting to start TTC and for it to go smoothly! (As I expect everyone does!)

Thanks in advance!

xx

1sttimeBlondie Sat 30-Jun-12 18:04:08

Hi all
Was hoping I could join this four, :-) been TTC for 12 months now and just been to the GP with suspected PCOS made worse by the fact that I have no thyroid ( been removed due to tumour). Haven't had a period for over 90 days but have the "brown stuff" for 3 weeks now. Just wish it would go away so we could t least try - very annoying! Also just wanted to mention I am very lucky to work with Colette Harris so hopefully she can give me loads of tips!

daisyrosie Tue 26-Jun-12 23:06:54

Thanks Steph for your reply. I've not used opk's yet but it can't hurt to keep trying. From what I've read though sometimes with pcos they show positive without you actually ovulating due to high levels of LH but that may not be the case for everyone. If you have been getting pains too hopefully that's a good sign. Fingers crossed for you smile

StephN31 Tue 26-Jun-12 19:03:20

Hi daisyrosie,
We went to the GP together in May after 12 months TTC. Blood tests were taken as part of the referral process to the clinic, and we go the results over the phone within 5 days. Mine confirmed that I had PCOS, they were then sent to the fertility clinic. However, I was given a scan about 6 years ago via my GP after I hadn't had a period for 6 months, this was when I was first diagnosed (can't remember if I provided bloods, but may be worth asking your GP anyway). Hope that helps! smile

I have a query of my own, which I hope someone can shed some light on.. those who have read some of my messages may recall that things have appeared to start falling into place recently. Successful HSG last week and I've had pretty bad abdo pain in my right side on and off since yesterday although no ewcm. We DTD last wed and last night, and was beginning to think that this may be OV week!...and we may have hit the right time finally. OV test result was BFN today (only just got the strips in the post after ordering last week). Is it worth keeping my chin up for a BFP in two weeks, or am I just kidding myself?

daisyrosie Tue 26-Jun-12 17:42:31

Hi everyone!

I hope you don't mind me joining in. I'm 28 and have been TTC for a few months now after being on the pill for 13 years and was diagnosed with PCOS about 6 years ago. Thought I would join here as it seems a friendly place and good to know that there are others in the same situation who have gone on to have children, great to hear and helps to keep positive!

Congrats on your BFP Little Miss and good luck to everyone else TTC! smile

I was wondering - can you ask your GP to refer you for blood tests for hormone levels before being referred to a specialist? When I was diagnosed I had to have a few blood tests as they didn't show anything the first time round and when they did show something I was just told I was borderline (whatever that means) and to come back when I want a baby. Has anyone else had a similar thing happen with regards to the tests?

Thanks xx

StephN31 Mon 25-Jun-12 15:05:16

Is it worth investing in ovulation testing kits? I've ordered some online, hoping it'll happen this week, but was we all know it's anyone's guess with pcos. Guess I've just answered my own question but, can anyone tell me their experience of their accuracy? {Thanks}

becboo75 Fri 22-Jun-12 11:47:59

how old are you @smile87
or does the 87 give it away! , im 36 but now ive started trying seem sim alot older than most and didnt even realise it!

stephN31 - thanks for the reply xxx

FreeSea Thu 21-Jun-12 23:45:16

Congrats littlemiss!
Had a positive opk and ewcm on day 28 which is a first for me, but unable to dtd. So could be a good couple of months before comes round again :-(

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