Does anyone have any experience of this?
Drs are baffled with ds who is 12 dropping his SATS while asleep and although we await the results of a blood test for phox2b which would probably confirm that he has CCHS. We understand it is quite rare in older children would be good to hear of other peoples experiences
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Children's health
Congenital Central Hypoventilation Syndrome
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whoops · 18/08/2014 17:13
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