Hi ladies
Just had an appointment with my DDs surgeon. She has VACTERL association. 2 months ago she had open heart surgery to correct her CHD and now we're on to the next operation :(
She was born with a severely anterior anus. Cut a long story short we've had 11 months of pure hell trying to help DD open her bowels without excruciating pain and her specialist has said she will need a stoma fitted and 'posterior Sagittarius anal rectoplasty' as soon as she can be put under GA again.
I have never heard of anything like this before DD was born and have no idea what the next few months/years will entail. Just wondered whether there was anyone out there whose child has VACTERL association or has been through this operation.
To tell you the truth I think I'm dreading this op more than I was for the OHS. Any advice would be much appreciated!
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Children's health
Anal rectoplasty for my 11month old DD
4 replies
yummum19 · 26/07/2013 16:57
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