Am mummy to dd aged 8. Was born healthy, reached normal mile stones untill age 5/6. She started to wobble a little more than the other children, which got gradually worse.
Last may we were given the news that she has a degenerative neuro condition.
n she's no long able to walk, talk, eat properly at at times breath properly. Also affects all coordination & has a tremmor.
She has fits & can't see or hear very well. Also effected her memory & general understanding.
Having one of those days where id really like to burry my head in the sand. She's such a happy little thing & I know that should make it ok. And most of the time it does. Just having a wobble today. Wish it would all go away :-(
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Children's health
lifes not fair - hand holding required
32 replies
chocolatecakeystuff · 06/02/2013 22:52
OP posts:
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