I know theres a thread for JHMS & EDS somewhere, but I cant find it, so hoping some of you other parents of JHMS DCs spot this here :)
My DD who is now 10, was diagnosed relatively recently after years of problems, things have definitely become worse & more obvious for her in more recent years, hence why I think we finally got the diagnosis, prior to that, with both DH & I being "bendy" we never actually realised it could cause health problems, though I now realise its very likely the true cause of my Fibromyalgia & M.E. diagnosis too & I have an up coming hospital referral for diagnosis myself on the advice of our GP.
So in short, I'm well used to dealing with the symptoms that I now know can come with JHMS, but what I'm floundering with is School & whats best for DD - I should add her school have been very supportive, but we are still in that limbo stage or waiting for the OH appointment & every time I ask GP or school nurse for advice they just refer back to OH - which is a 6 month waiting list for an appointment, let alone actually seeing them.
This last few months, DD has had almost back to back cold & flu viruses, she just seems to shake one off, has a couple of days of feeling well & then off we go again - she's missed a lot of school as a result & is home again this week - which resulted in my getting a text from the School before 10 this morning telling me DD hadn't turned up for School & I needed to update as to why - puzzled & not best pleased as I have rang in everyday & was up most of the night with DD coughing, sneezing, retching, very sore throat & generally feeling awful, me too for that matter - so we were desperate for a lie in :(
I'm waffling my question is, how do you cope with School attendance & JHMS DC -
have you noticed they are more prone to picking up viruses & take longer to shake it off.
or is the JHMS flare up, very similar to flu, as it is with FM ?? - I ask as DDs specialist did say when diagnosing her that FM & JHMS are closely linked & I know that if I over do it myself, I get flu symptoms, but pushing through it & staying busy will mean I don't get better, but worse - which is what I am worrying is really going on with DD & why she keeps getting flu symptoms & that sending her to school as I'm encouraged to do unless vomiting, diarreah, high temp etc, is the real reason she keeps getting so ill - I would get more ill myself if I push through it, so have learnt the fastest way to get better is to rest & nothing else - is this how it works with JHMS too ??
I should add she loves school & hates staying home, not least because her being absent often means her going back to problems with the class Queen Bee - QB likes to wind others up against DD in her absence, saying DD lies about her illness, special treatment etc etc - but when DD is at school the others don't listen - IYNWIM - so DD much prefers not to be off sick at all, but she is so ill sending her in isn't an option - when I have sent her in ill, she ends up getting sent home any way
How do you all cope with this aspect of JHMS in your DCs
TIA :)
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Children's health
Joint Hypermobility Syndrome & School Attendance & Immunity Issues - Some Advice Needed From JHMS Parent Please...
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rockinhippy · 06/02/2013 15:22
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