If so what age were they diagnosed?
My mother and grandmother had marfans. Myself, my db and ds have several marfans characteristics but not enough to be considered marfanoid. My 7mo ds has pigeon chest , 96th percentile for height, 30th for weight and I really want to have him properly checked out. I''ve taken him to the gp 3 times and each time he's made out I'm being melodramatic, whilst also saying he doesn't really know much about marfans but he says it's normally diagnosed in adulthood. This is the case but surely there are tests that can be done if there is family history?
My dm died from SADS which is marfans related. I'm a first time mum and I know I'm being a worrier but I just don't know how to keep pushing for a diagnosis.
Any advice?
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Children's health
anyone out there have a dc with marfans?
10 replies
ceramicunicorn · 04/02/2013 20:27
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