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Children's health

Oh god hold my hand.

283 replies

OpheliasWeepingWillow · 12/12/2012 16:04

Am in Asia and about to sleep but neurologist says dd who is in hospital (10 months) has delayed brain development. This is in conjunction with failure to thrive and a flatlining curve. They are looking at metabolic and genetic disorders and I am beside myself. Couldn't find Special Needs on my stupid phone.

Spinal tap tomorrow I think.

So scared. She is my world.

OP posts:
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QODRestYeMerryGentlemen · 12/12/2012 16:05

((((Holding your hand))))

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hellhasnofurylikeahungrywoman · 12/12/2012 16:06

Holding your hand tightly.

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JKSLtd · 12/12/2012 16:06

And me.

I have ds2 with delayed development now nearly 5 and doing very well at an sn sch. Hope that tests lead to some answers for you.

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MammyKaz · 12/12/2012 16:07

Giving your hand a big squeeze Ophelia.

It must be really worrying. The waiting to see what's wrong is often the hardest part. I hope you get some answers fast. Sending lots of wellness vibes to both DD & you.

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Lougle · 12/12/2012 16:09

//www.mumsnet.com/talk/Special_needs - hand holding wherever you post.

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Lougle · 12/12/2012 16:10

www.mumsnet.com/Talk/special_needs that link again, sorry.

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minmooch · 12/12/2012 16:13

Holding your hand here too. I hope that you get some answers soon. I hope also that you have some RL support too.

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LizaTarbucksAuntie · 12/12/2012 16:15
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BeaWheesht · 12/12/2012 16:24

Thinking of you

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cappucinogirl4 · 12/12/2012 16:26

Hand holding here in West Yorkshire.Hope you get some answers soon.

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bishboschone · 12/12/2012 16:28

We are going through a similar thing .. It's very scary .. We can hold hands together.. - holds out hand --

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VisualiseAHorse · 12/12/2012 16:30

Hand holding from us in Scotland xx

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bishboschone · 12/12/2012 16:32

That wasn't supposed to be crossed through sorry Blush

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Isindebusagain · 12/12/2012 16:33

This reply has been deleted

Message withdrawn at poster's request.

dikkertjedap · 12/12/2012 19:41

Holding your hand.

Wishing you lots of strength after all what you have already been going through.

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verytellytubby · 12/12/2012 20:55

Hugs.

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dm1mum · 12/12/2012 20:55

Thinking of you. I hope you have some RL support there and that you find out more soon.

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Pantofino · 12/12/2012 20:57

Holding your hand too. Hope you soon find out what you are dealing with and can put some positive action into place.

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Minichristmas · 12/12/2012 20:59

Lots of people thinking of you. Praying it goes well. Hug

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wewereherefirst · 12/12/2012 21:01

Hand holding, sending lots of strength

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JustFabulous · 12/12/2012 21:05

I am such a wuss. Teary at all you lovely women offering support.

OP, I hope things aren't as bad as you fear and that your DD is okay.

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marriedandwreathedinholly · 12/12/2012 21:08

With love and prayers. At 7 months ds wasn't thriving and had had four hospital admissions for respiratory probs. He had all the symptoms of cystic fibrosis and although the sodium test was -ve he was referred to the Royal Brompton for further tests.

He is almost 18 and 6'2" so sometimes these things are not as bad as one thinks or as the doctors say.

Fingers and toes crossed OP. Good luck. Come back and back so we can carry on holding your hand. xxxxxx

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Squiglettsmummy2bx · 12/12/2012 21:09

Hugs x

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kasbah72 · 12/12/2012 21:17

More hand holding from here.

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AlienRefucksLooksLikeSnow · 12/12/2012 21:20

Hand holds and hugs all round love, you will soon have some answers and you can work from there, you will feel so much better when you know what's going on. Sending positive thoughts to you and your DD x

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