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thread for parents with diabetic children

(58 Posts)
busybee20 Fri 16-Nov-12 19:43:17

I thought i would start this thread as my little princess has just been diagnosed with type 1 diabetes. Our world has turned upside down overnight. Carb counting, finger pricking and injecting insulin has become our life now. I still cannot believe how literally overnight things have changed.

Tidypidy Tue 04-Dec-12 16:57:31

My son was diagnosed aged 13 months. He's had a pump from the start which 3 years on is part of who he is. The diagnosis us overwhelming but it quickly becomes second nature to test, count carbs and give a bolus or injection. Supposition family members is important as is contact with other families whose type 1 children are the same age as yours. Your specialist nurse should be able to put you in contact with other families. Try to stay positive as it's easy to get depressed by it all. One of the worst things people say to me is it's " such a shame he's diabetic". It's not what anyone would choose for their child but you just have to get on with it. My son is now at preschool and thriving. Diabetes will not hold him back.

busybee20 Tue 04-Dec-12 22:48:27

Tidy - so sorry that your son developed diabetes at such a young age, i too have a toddler and can imagine how hard it must have been for you. It's wonderful to read that your son aand all the other children that are mentioned here, are doing well in their education etc. Gives me hope as DD was doing so well at school and I don't want anything to hold her back. Yes you are right I need to find some local parents, MN is great but I think its important for DD to meet others likeherself. She's already asked "mummy why am I the only child in my school with Diabetes?"

omghelpmeplease Tue 04-Dec-12 23:08:51

i have a 18 year old diagnosed at 15 months and a 15 year old diagnosed at 11
love to talk more
i will be back
sleep beckoning
i need support
please someone pm me regards teenage non compliance

omghelpmeplease Tue 04-Dec-12 23:09:31

11 meaning age 11 years btw

omghelpmeplease Tue 04-Dec-12 23:15:43

http://www.diabetes.co.uk/diabetes-forum/
this is a good forum by the way

DiamondDoris Wed 05-Dec-12 12:30:50

My DD is 9 and type 1 diabetic - she developed it when she was 4 after developing severe ketoacidosis which the doctors kept misdiagnosing! She's doing very well on multiple injections: novo rapid and levemir. Currently a TA is doing her lunchtime injection. Like others I make a packed lunch for her with a post-it-note with the carbs written on. Try to make life simpler by repeating meals where possible - she eats the same packed lunch everyday for a week and then it changes to something else the following week. I hate anything that doesn't have the carb amount on it and have to spend time googling, weighing and calculating. I still get very emotional about her condition and hope that there will be a cure one day (soon). Most diabetics (type 1) grow up to be diet conscious individuals and generally do better than type 2s. When she's older I'm going to encourage her to eat low carb.

busybee20 Thu 06-Dec-12 23:42:07

Hi diamond, scary to hear about doctors misdiagnosing your DD. I guess that's one thing I will be grateful for to my G.P. If it wasn't for his prompt decision to send us to A+E, hate to think what would have happened.
At the moment DD b.g levels are all over the place. One minute it's high the next it'e border line hypo.

busybee20 Sun 09-Dec-12 00:01:34

Today my DD had her second hypo since diagnosis. It was horrible to see my baby look so weak. She went down to 3.6. I gave her 100ml of ribena. Then waited and gave her a snack which was due. It took about an hour before she was back to her normal self again. As a mother I feel so helpless that I can't do anything about this horrid illness.. sad

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