Hearing Problem or Just Selective?

(38 Posts)
MummyBurrows Wed 17-Apr-13 22:26:32

I apologise in advance for the long post....But please don't judge.....

I have a 3yo DD due to start school this September. Shes incredibly behind on her speech,always has been. She communicates by taking people where she wants them to go to get her things and by making various incoherent noises and babbling away in gibberish....She can say a few words (bye,hi,I see,you,no,yes,oi,wee,mum,mummy,dad,daddy) and she can just about count to 8 although not all the numbers are clear and say a few letters of the alphabet (b,c,d,e,i,o,p,t,u,v). She has once said bless you (when she was in bed and didn't know I was standing outside her door!) and it came out perfectly clear and there have been another couple if times she has come out with a word or 2 completely out the blue but never repeated them since. She also seems to understand (perhaps not entirely) what people are saying to her going by her reactions and she will sometimes respond to noises but not all the time.

My DD is going for a hearing test next week to see if theres a problem with her ears causing her to be soo behind on her speech and her hit and miss responses to noises of varying volume-perhaps hearing the sounds and words muffled,as if underwater-but I was wondering if anyone has had a similar experience with their DC and what the outcome/explanation was?

I personally think that my DD is being selective and choosing not to talk and choosing to ignore noises and that there's nothing wrong with her hearing/ears or anything that could prevent her from communicating like a "normal" child,although I could of course be in denial and not wanting to believe that there could possibly be anything physically wrong with my beloved DD lol..... My DH,and most of our family members,disagree and think its all down to her ears/hearing as both my little sister and my DHs brother both had problems with speech due to ear/hearing problems that were easily solved and rectified with grommets......but I'm seriously not convinced as it really does sound selective to me going by what the nursery staff have told me when they've tried to test her hearing/reactions to loud noises-first time she will look in the direction of the noise and then any times after that she doesn't-and the fact that WHEN my DD does say something (other than numbers) it's crystal clear and there's no debating or guessing what she's just said!

Please don't judge me or my DD. Just want/need some advice/reassurance off people that have had this same,or similar,problem and perhaps some opinions as to what people think the problem could be? Does it sound more selective to u or does it sound like there is something physically wrong with her? T.I.A xx

awwwwmannnn Thu 25-Apr-13 21:09:05

have sent PM if that's ok xx

MummyBurrows Thu 25-Apr-13 18:40:13

The reasons they gave where down to her behaviour regarding how she interacts with people and children,the fact she prefers to play alone so she can do things her way,the way she likes to have things lined up a certain way,does things in a certain order,likes everything to be in its place,the fact she CAN speak clearly when she chooses to say something,the way she's very "hit and miss" when it comes to responding to noises and her name for example,especially if she's busy/distracted by something else...

The ENT obviously doesn't specialise in Autism but knows that some children (and even adults) with autism can struggle with social skills (including talking) and interactions,like things to be in order and become completely focused on one thing/activity and completly ignore everything and anything going on around them so he said the signs are there so it may be worth investigating in the 6months between now and her next hearing test. I guess once he said it,it did kinda make sense....it had fleetingly crossed my mind that she could be autistic or perhaps have a bit of ocd maybe but it never occurred to me that it could affect speech so I never seriously thought about it or thought it could be a possible reason for her being so behind with speech and seemingly ignoring people!

If your dds results come back normal and they suggest something similar to you awwwwmannnn then it may be worth looking into....I'm going to do some research online and see if it sounds like it could well be the route of the problem...I can't say I'm bothered if it is,it just means she will need a bit of extra support and attention to help her bring on her speech and social skills! I know lots of people who's children have various types of autism so I know its nothing to be worried about smile

Xx

Beamur Wed 24-Apr-13 22:27:45

Just to add my pennorth to the hearing bit - I have a lot of tone loss (don't hear high noises) and also deafness (hear very little in my left ear) as a result of nerve damage as a tiny baby.
This was not picked up for years (despite testing me repeatedly as there was some concern for my hearing) - I struggled with making certain sounds when learning to speak but my ability to hear does vary - background noise and such like makes a huge difference.
Luckily, although it wasn't thought to be genetic my DD has had extra hearing tests just to make sure - her hearing thankfully is fine.
The fact my actually quite severe problem was undiagnosed for years, lies partly with how good you become (without trying) at reading other signs, filling in the gaps, lip-reading, etc. I had no idea that anyone else could hear differently to me - I still wonder how the world sounds to other people.
Hope your little girl gets the support she needs OP.

awwwwmannnn Wed 24-Apr-13 22:16:38

what the road ahead will bring is what i meant to say lol x

awwwwmannnn Wed 24-Apr-13 22:15:45

hi, good news about the hearing test @Mummy grin

what reasons do they give for thinking she is on the autistic spectrum?? nothing in your post suggested autism, is it purely the selective hearing thing?? (not that i'm a doctor or anything, just a little ignorant about these things and wondering if the same thing will be brought up with my DD).

it sounds like things are on the move for you and are now getting some pretty good backing, i truly hope all works out for you and your darling girl..she has a wonderful mummy who will do everything she can for her, she's very lucky as are you!

how do you feel about all this, or is it something you had in your mind anyway?

hope you don't mind me asking, i'm just trying to figure things out with my lil DD and wondering the road ahead will bring.
xxx

MummyBurrows Wed 24-Apr-13 20:37:47

Hi everyone!

We got on ok today smile They couldn't complete the hearing test on DD as she kicked off due to not liking having earphones put in her ears but the results the did manage to get pointed to her not having any hearing problems.

They do think she may be on the Autistic Spectrum though so we have a whole new battle on our hands to get her in with paeds and sent for whatever tests she's going to need to get some answers.

DD is booked in for another hearing test at the end of September where they will hopefully be able to conduct the full test with a follow up app with the ENT specialist beginning October.

Looks like DD won't be starting school this September,ENT doesn't think she will be ready or able to communicate enough to cope so he has recommended keeping her on at nursery until at least Christmas or even waiting until September next year as depending on how she progresses as she may need to go to a special needs school and it will take time to get her into our local one. On the plus side,the nursery SENCO (old school friend of dh) is going to do what she can to put a bit of weight/urgency behind our case with the doctor,paeds,speech therapy,ect and her best friend works at our local special needs school so can put add a bit of weight behind our application there if its where our DD would be best educated to cater to her needs if need be smile

XxX

MummyBurrows Mon 22-Apr-13 22:25:52

We probably will be lol! There's no bad ending which ever way the tests go,both our DDs will get there in the end,they may struggle a little along the way and maybe need an operation but they have strong determined mummies like us (and daddies too of course!) to help them along the way and be there for them,no matter what xxx

awwwwmannnn Mon 22-Apr-13 21:50:30

be interesting to see how we both get on....although i'm pretty sure a few months/year down the line we'll be on here reassuring other mums who are going through a similar thing that there is a happy ending and their little ones will end up talking the same as ours will.....grin x

MummyBurrows Mon 22-Apr-13 21:03:31

Tell me about it! I was getting soo frustrated at the drs fobbing me off so I practically cried when the good one said she would get us referred a priority! My DD is supposed to start school in september but there's no way I could possibly send her if she can't talk and communicate,I feel guilty enough sending her to nursery because she can't really make friends,don't get me wrong,the kids in her room absolutely adore her and are friends with her anyway but it upsets me knowing that she probably can't understand them and can't talk to them sad

Thank you,I hope you get somewhere at the weekend too smile xx

awwwwmannnn Mon 22-Apr-13 20:49:35

twat and utter moron i think i called him lol

its just so frustrating as no matter what you say your kind of looked at like a neurotic mother!! i will be seeing a different GP next time i go back, hopefully one that's a bit more understanding. i do appreciate that all children develop at their own pace, but as for waiting til they start school...that's my biggest fear, she'll start school and not be able to fit in or make little friends as she can't talk to them or join in! over my dead body will i let that happen to her.

i just hope that after her appts this weekend something can be done and help will be given to her.

i hope you get things sorted with your DD to and will look out with interest for any developments smile and flowers x

awwwwmannnn Mon 22-Apr-13 20:47:32

twat and utter moron i think i called him lol

its just so frustrating as no matter what you say your kind of looked at like a neurotic mother!! i will be seeing a different GP next time i go back, hopefully one that's a bit more understanding. i do appreciate that all children develop at their own pace, but as for waiting til they start school...that's my biggest fear, she'll start school and not be able to fit in or make little friends as she can't talk to them or join in! over my dead body will i let that happen to her.

i just hope that after her appts this weekend something can be done and help will be given to her.

i hope you get things sorted with your DD to and will look out with interest for any developments smile and flowers x

MummyBurrows Mon 22-Apr-13 19:56:23

awwwwmannnn Your doctor sounds like a right twat! How on earth is 5times in 6months,hospitalised twice and not being able to speak properly NOT detrimental?! Can't you see a different dr and get a second opinion? I've had to see 3 different gps before I got a good one that listened to me and didn't just palm me off with "kids develop at their own pace,she'll catch up" or "we don't really worry until they start school"!!xx

awwwwmannnn Mon 22-Apr-13 13:26:41

Thank you guys....
well i've agreed with DH to give it one month, and if no improvement, especially after assessment etc this weekend then they will be seeing one pushy mamma!!
its just so frustrating as i know my daughter, and its breaking my heart to see her struggling so much with her speech - if only the blinking doctors would actually listen to you!

@mummyburrows...apparently to consider having tonsils removed it has to have a detrimental effect on their lives and have had it at least 5 times in a year...i sat there looking at my doctor dumbfounded, i was like she's had it 5 times in 6 months you do the maths, twice this year alone she's been hospitalised because of it (on one occassion it turned into Quinsey) how detrimental exactly do you want it to be!!!!

its so nice to know you are not alone when your DC have these problems but you do feel like your fighting a system on your own just to be listened to and have these problems solved. i have actually recorded my DD snoring and trying to speak as she sounds so nasally...hopefully it might do the trick, we can but try!

good luck Mummy, hope all goes well with your appts etc and let us know how you get one grin xx

adoptmama Mon 22-Apr-13 04:44:44

if she can't breathe normally thru her nose awwwwmannnn then it could well be affecting her speech. DD has just had nasal adenoid blockage removed and ear tubes fitted. Absolutely unbelievable improvement in speech already. Keep fighting!

MummyBurrows Sun 21-Apr-13 23:44:26

Wow! Thank you all for the responses and advice you've given me! Soo much help! Now just have to wait and see what tests they do and what the results are! For me wednesday can't come quick enough,I just want to know if my little girl has a hearing problem or not now and what can or can't be done to help her one way or the other. It soo comforting to know that whatever happens I'm not alone.

awwwwmannnn I feel so sorry for you,and more so your dd,tonsillitis 5times in 6months is horrendous! Can't understand why the drs don't really seem bothered by this?! Surely they would at least suggest having them removed! If she can't breathe normally through her nose and keeps getting tonsillitis then I would naturally assume its going to impact on her speech,she must be afraid to make a sound in fear of it hurting her throat (although I doubt she's anything but quiet at her age lol). I really hope you get the ball rolling for some answers on friday and saturday,please let me know what they say smile

Thank you all again so,so much thanks I will keep checking back for any new posts of advice and/or help and I will of course let you all know how we get on wednesday smile xxx

awwwwmannnn Sun 21-Apr-13 21:40:51

a shameless bump here....

OP your post could so well have been written about my 2.4yr old DD.
i've been back and fore the doctors countless times, last time they checked her ears and said her ear drums were "dull" suggesting some fluid build up, gave her a decongestant which cleared her ears, 3 weeks on we're certainly not moving forward!!

she has a speech assessment on Friday with her HV which i hope will get the ball rolling if help is needed. what i have noticed with my DD is that i am pretty sure its not ears that a problem with speech delay but her adenoids! she has had tonsillitis 5 times in 6 months and is unable to breath through her nose and snores like a 60stone drunk man lol

i have mentioned this to the doctor but it seems to be of no consequence...i am giving it a month and if nothing changes then i am taking her back and DEMANDING for her to be referred to an ENT to get some answers.

in the meantime, we have an appointment with a cranial ostepath on Saturday morning as from research i have read and talked with other mums who have had this treatment with their DC with marvelous results. i'm not saying its going to be a miracle cure or will work, but at this point i am willing to do anything and everything i can possibly can to help my daughter talk and be more comfortable etc xxx

Some excellent advice above.

I will just add that I have recently been diagnosed with auditory processing disorder. I score quite well on audiology tone tests but struggle with speech sounds far more than the frequency pattern would suggest.

My "deafness" is variable too, depending on eg tiredness, and, I dunno, the way the wind blows. APD is to do with how the brain processes the sounds it receives, rather than how the ear transmits the sounds, IYSWIM.

If you aren't satisfied with the answers you get from audiology/ENT in the first instance (unlikely given the many posts before mine) you could ask if the speech sounds test could be tried instead.

FrustratedSycamoresRocks Sat 20-Apr-13 08:19:56

mummyb if your dd has a hearing loss, and depending on the frequency that has the loss, it is possible that your dd can hear and respond to music, and to male voices, but not to other sounds.

The tests that Audiology do will be very thorough.

adoptmama Sat 20-Apr-13 07:48:26

DD was tested for glue ear with tympanometry. They basically send an echo down the ear and look for the bounce back. If the test flat lines there is no bounce and the middle ear is blocked = glue ear. Doctors can't see glue ear as the blockage is behind the tympanic membrane (ear drum).

impty Fri 19-Apr-13 22:55:33

Hi,
The test hearing will be a various sounds played and usually add a block to a tower, person in a boat etc etc like a game. In a sound proof room but I've always been in the room.
Just wanted to say that, first I hope all goes well!smile If you do find there is a temporary or permanent problem please don't worry. There is lots of support for you and your child. NDCS etc but I've found care within the NHS to be excellent.
I have a 15 yo dd who wears hearing aids, Its been fine getting the diagnosis was the hardest part. No gp would get her tested. From the age of 3 she's worn aids and is now an articulate, confident bright teen!
Hopefully you'll get the test results you want. .. but if you don't it will still be fine.

MummyBurrows Fri 19-Apr-13 22:40:55

Thank you very much smile I'm going to explain everything I can and think is important before they start the test so they can hopefully test her fully rather than perhaps a few basic sounds....I don't really know how it all works but I'm sure me telling them my thoughts may be of some help to them,after all I know her better than anyone and how she acts/reacts and us mummies do have that mothers instinct where we just "know" things....I will of course let everyone now how we get on but any further thoughts/advice between now and Wednesday will be greatly received smile

Also can anyone tell me what I can expect to happen at her hearing test? I really am clueless blush xx

willitbe Fri 19-Apr-13 15:06:49

Gp's are not great at looking in ears, unless there is raging infection, they will often miss the signs of glue ear. I personally would really only trust an ENT consultant to see glue ear reliably! An audiologist will use tympanometry to test for it when they test the hearing next week. But this will only show what the situation is on that day, it could be a good day and not show the full extent of a hearing problem necessarily.

The audiologist will probably also do a test called OAE, but as there is possibly a problem with high rather than low tones, do make sure they do some behavioural testing of the high frequencies too.

I hope you get answers while you are there.

MummyBurrows Fri 19-Apr-13 14:10:18

I did think glue ear for a while but isn't that something a dr can see or detect if they look inside the ear? My DD has had her ears looked at lots of times at the gp surgery and they've never said anything so I assumed she didn't have it....She's only ever had 1 mild ear infection too so can't be any damage done from that...

She loves having stories read to her although she much prefers to look at the pictures and she will sit and watch dvds,not always all the way through though but she is only 3 and a bit of a fidget like her daddy lol!xx

adoptmama Fri 19-Apr-13 04:51:15

Glue ear here too. Huge improvement not in hearing and speech after surgery. Very significant speech delays and communicated by gesture, body language etc before. Lots of sounds she could hear - like me whispering in her ear - because it is a high frequency sound. In places - inside and out - with a lot of back ground noise her hearing was far worse. Also much worse if she had a cold. Had no interest in being read stories, watching dvds - used to think she had attention span of a gnat. Now realise she couldn't hear it!

Good luck.

MummyBurrows Fri 19-Apr-13 01:47:09

Never knew in some cases hearing can fluctuate! Guessed it could vary on sound frequency though. My mum has also noticed that my DD is more drawn to men and pays them more attention than females...until now I had actually just thought that she was a massive daddy's girl and loved and adored my dad as much as I do and did as a child,but the more I thought about it I realised that she also preferss to sit and play with my grandad,the only male nursery assistant and my friends dp but will practically ignore me,my mum,my nans,the female nursery staff and my friends so perhaps she does hav trouble with higher frequences...?

The nursery only did it once,2 of the staff involved are specially trained to deal with children with hearing,speech and behavioural problems and it wasn't a big test as such,just making a couple of noises 3 times each from different corners of the room to see if she would react each time and turn but she only did it once for each noise,not each time with the same noise....

My dd absolutely loves music and will happily dance around to it and doesn't appear to be fussed what kind/sound it is just as long as its lively,up tempo and happy sounding (if that makes sense)... Will look up the ling 6 sounds and see if I get anywhere with her responses.

Thank you all for ur input,it really is helping to give me some insight so please feel free to continue writing anything that u think may be relevant or help,god knows google didn't help much,it jus made me over-think everything and become paranoid! smile thanks xxx

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