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Antenatal tests

waiting for Cvs results, scan risk of one in two feeling sick.

43 replies

Aoifebelle · 24/05/2013 10:36

On Wednesday I had a cvs following a 12 week scan that came back with a risk of one in two for a chromosomal disorder. All markers were bad. Nucal 4.9, hcg 1.6 MoM, PappAs 0.4 MoM, no nasal bone and other soft markers. Results of cvs are due today, and I feel sick. Basically even if chromosome are ok, very high chance that something else structural has gone wrong. We are heartbroken

We have pretty much decided to terminate if the results are confirmed to be as bad as we think. What I want is for things to move as quickly as possible. Any advice for how to help this happen.

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Abra1d · 24/05/2013 10:37

No advice but wanted you to know I am thinking of you. This must be very distressing.

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FattyMcChubster · 24/05/2013 10:40

Just wanted to say I'm thinking of you and here if you'd like a hand hold x

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Asparagui · 24/05/2013 11:18

No advice but thinking of you. I had a 1 in 10 risk and I remember the terrible fear and the awful waiting. I was lucky and all was OK but I found the ARC helpline invaluable for information. Could you contact them?

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Mama1980 · 24/05/2013 11:28

Am here for a virtual hand hold. I remember the waiting with ds2 after bad scans. X

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Aoifebelle · 24/05/2013 12:36

Just heard cvs results not due back until after five. Earliest possible I will get to see a consultant is Tuesday, if I am lucky. Because of bank holiday and half term reduced clinic for the next two weeks ( ironically was due to go on family holiday on Wednesday, would have announced pregnancy there, now prob won't be able to go and will be giving some very different news). I have no idea what next. It feels like I am having my finger nails removed very slowly one by one. It's just a matter of time before I will have nothing left to hang on with.

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DewDr0p · 24/05/2013 12:37

Holding your hand OP x

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newbie6 · 24/05/2013 13:24

Just wanted to say I'm thinking of you, ARC are apparently very good for support and information. X

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Startail · 24/05/2013 13:26

Handholding here too.

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Aoifebelle · 24/05/2013 13:40

Thanks, just spoke to arc they were fab, but can't help me unless I get a referral from the hospital, or I pay which isn't am option as I spunked all my money on a harmony test and cvs at the foetal medicine centre.

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Asparagui · 24/05/2013 16:46

Thinking of you as 5pm approaches. You sound very brave.

Might BPAS or Marie Stopes be able to act more quickly if that needs to happen? I have no idea but its all I could think of.

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Aoifebelle · 24/05/2013 17:15

Results back, not good, t21 with high likelihood of additional complications. Very unlikely pregnancy is viable. NHS came through in the end. Appointment on Tuesday, termination on Thursday, but all my symptoms have disappeared, feels just like what happened when I miscarried last year. Feel like I am in total robot mode. Now I need to tell my mum, she didn't know I was pregnant. We were due to go on holiday with my folks on Wednesday. I fear this may break her.

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Abra1d · 24/05/2013 17:26

I am so sorry. Do you think there's any chance you might actually be having a miscarriage now? I suppose that might make this a tiny, tiny bit more bearable. I hope you have lots of support, either way.

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jmf294 · 24/05/2013 17:30

I am so desperately sorry Aoife.
I was so hoping for good news for you.
Thinking of you and sending you hugs and I hope next week is a gentle and as peaceful an experience as possible. Xx

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Mama1980 · 24/05/2013 17:35

I'm so very sorry xxx

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Pancakeflipper · 24/05/2013 17:39

I am so sorry for you too xxxx

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DewDr0p · 24/05/2013 17:45

Oh Aoife I am so so sorry ((()))

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Aoifebelle · 24/05/2013 17:57

life sucks, but this forum is fucking amazing. The support I have had on here had been a real life line, particularly as all the women in my family have had completely uneventful pregnancies. They are lovely and really supportive, but they will never really understand. Thank you all xx

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Startail · 24/05/2013 18:22

I'm so sorry, sending you strength and best wishes. xx

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FattyMcChubster · 24/05/2013 19:26

Aoife, sending you prayers and strength to get through this. We're always here if you need to talk. Thanks

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mb2512cat · 24/05/2013 20:14

Very sorry to hear your news. I have been through similar.

Hugs

Mx

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Asparagui · 24/05/2013 22:39

I'm so sorry Aoife. Keep strong and I hope next week goes as smoothly as possible.

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newbie6 · 25/05/2013 01:28

I'm so sorry, thinking of you and your wee angel, take care xx

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Abra1d · 25/05/2013 12:05

How are you today, Aoife?

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Aoifebelle · 25/05/2013 12:22

Parents told, holiday cancelled, termination booked. Have no idea what to do with myself now.haven't left the house in days, not sure if I trust myself in public. Pregnancy symptoms have returned, which weirdly means I am managing to eat and sleep a bit. Dreading that lurch from pregnant into not pregnant. All the hard won and subtle symptoms just evaporate like they were never there, and your body just gets on with life. If only my head could follow suit

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Abra1d · 25/05/2013 12:25

So sorry. But I am glad you are managing to eat and sleep.

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